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The many shades of #BehcetsDisease. I'm being told I've got "classical manifestations" including ulceration when my IVs are removed - fun! This however seems to have turned allergic and created more systemic fun... I'm suddenly allergic to the many adhesives being used so I got EVERYTHING switched over today & replaced with smaller, gentler pediatrics products! Mah body is pissed! #Red #CureArthritis #Behcets #Day4
“I am working on appreciating what I do have in this life...make it count!” - Dani B. Read Dani’s story at CureArthritis.org/weight-lifting-with-arthritis-dani
Yesterday I managed to gather the strength to get out and about. Today I'm exhausted, so it looks like a good staying in bed reading a book kinda day. As the autoimmune roller coaster goes on. Hoping tomorrow is a better day, though I'm really enjoying this book. #RA #Rheum #psoriaticarthritis #PsA #curearthritis #RAwarrior #AutoimmuneRollercoaster
#AS warrior Adam’s pre-race photo! This past weekend, he ran the @marinecorpsmarathon in Washington, DC, all while representing #CureArthritis & @racinforacure!
So far, today is not a good day, physically-speaking. It’s rainy, so I’m sore. I feel like I am getting sick, I didn’t sleep well, and my arthritis is bothering me. The weather is prime for a migraine to strike at any time. And the funny thing is, it isn’t even my knee/surgical pain that is really the issue — I just don’t feel well. 😔 I started back on one of my RA meds (Imuran) that comes with a lot of side effects, so between that and the weather changes, my body feels blah. I wasn’t in a pleasant mood when I awoke with nausea and a headache after a night filled with bouts of off-and-on insomnia, but I’m going to nonetheless make the best of this day. 💪🏼 I will still try to get some work done, to be productive on some personal projects, and I will still go to PT. Today’s bound to be an even harder physical therapy session than usual, but I’ll get through it. 🙌🏼 Every day is a blessing and every day is a gift. #Gratitude is always somewhere to be found. A few favorite sayings of mine that all sound cliché but nonetheless still ring true: ⭐️ “Every day may not be good, but there is something good in every day.” ⭐️ ”It is just a bad day, not a bad life.” ⭐️ ”Everyone’s got something.” ⭐️ “Be kind, for everyone you meet is fighting some kind of battle.” ⭐️ and lastly, “We must embrace pain and burn it as fuel for our journey.” ⭐️ Time to suck it up and keep on keepin’ on. The world won’t stop bc I’m sick. It just keeps on spinning. 🌎 Remembering this fact and then mindfully balancing it with proper rest and self-care is key in dealing with health struggles! 💖 I wish you all a decent day. And if your day isn’t decent, then I hope that your tomorrow is beautiful ... or at least, better. ✨ #arthritisashley #chronicillness #chronicpain #autoimmunedisease #autoimmune #rheum #RA #chronicmigraine #totalkneereplacement #physicaltherapy #surgeryrecovery #mindfulness #selfcare #balance #positivevibes #staystrong #grateful #spiritualgangster #chronicwarrior #tinyvictories #affirmations #rainymonday #somethinggoodineveryday 💫
Reading Choose Joy by Sara Frankl and Mary Carver as I sneak in reading time at lunch. I won this book from a giveaway that @beingfibromom hosted. The book is about and written in parts by Sara, who lost her battle with ankylosing spondylitis, an autoimmune arthritis that primarily affects the spine, at the young age of 38., She wasn't able to work or start a family of her own. She was homebound because of the severity of her condition which caused her much pain as her spine fused in a fixed position. *
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Yet through her tragedy, Sara leaves a legacy of choosing joy along the way, providing hope, inspiration, faith and purpose to her life and those who knew her. What a remarkable young lady, to put all her trust in God, to continue to inspire others through her blog and writing, and now in this book which will undoubtedly make me cry and put my own difficulties living with Rheumatoid arthritis (an autoimmune arthritis which affects primarily my hands, shoulders and feet) in perspective. *
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Ya know, it's hard with a chronic disease to maintain joy and faith that God has given us a purpose for this pain and frustrations. I struggle with it a lot, on a daily, sometimes hourly basis. *
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Its those times of struggle when I have to force myself to focus on the small victories in my life since being diagnosed 16 years ago, to focus on the present and future rather than the mistakes and pain of my past, and to choose joy in this chaotic world. *
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How are you choosing joy today? What are you thankful for? How will you be embracing your life? What legacy do you hope to leave? Life is too short to let the past, pain and negativity around you steal your joy. Gentle hugs, spoonie friends 💕
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#momssmallvictories #celebratelife #thrivewithchronicillness #bookworm #bookaddict #bookstagram #bookfeaturepage #igreads #igbooks #choosejoy #ankylosingspondylitis #rheumatoidarthritiswarrior #chronicpain #autoimmune #chronicillnesswarrior #rheum #spoonie #currentlyreading #amreading #gratitude #thankful
This. Is. Fantastic. 🙌🏼 Non-alcoholic rosé with rose hips 🥀🍷
Since being diagnosed with Primary Biliary Cirrhosis in 2014 (when I was 20), I was told to never drink alcohol, so I have abstained. It's hard to be in your twenties and not be able to have a drink with friends or family. I was so excited when I saw that @worldmarket sells non-alcoholic wines. I get to enjoy a drink with my loved ones while not worrying about my liver. ❤️🌿 #chroniclife #chronicillness #chronicpain #chronicfatigue #chronicpatient #chronicstudent #LifewithLupus #Lupus #rheum #PBC #curearthritis #heartattacksurvivor #heartfailure #rosé #nonalcoholicwine #chroniclifewin
Thanks #FB for the reminder! Life is really too short to dwell on things you can't change. Life is beautiful no matter what😊
#spoonie #spoonielife #rheum #arthritis

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