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#invisibleillness656,638 POSTS

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User Image bendyblogs Posted: Dec 14, 2017 7:11 PM (UTC)

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Had awful problems with my hip and joints subluxing all of last night and today. Who knew how much makeup and a smile can hide. 💁🏻❤️ #ehlersdanlos #ehlersdanlossyndrome #subluxation #depression #invisibleillness #invisibledisability #raisingawareness #work #blogger #lifestyleblogger #apprentice #accounting
User Image sakaradee Posted: Dec 14, 2017 7:04 PM (UTC)

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Hands up who still can't believe this was real 👋 I hope it snows again sometime soon and I'm up to going out somewhere in it 😍 #SpoonieXmas2017 x ~
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#spoonie #chronicillness #invisibleillness #sickchick #mecfs #meawareness #trees #hypermobility #chronicpain #bnw #winterwonderland #spoonieblog
User Image natashalipman Posted: Dec 14, 2017 7:01 PM (UTC)

thechronicills
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I often define myself by what I can’t do. It’s not a conscious thing, but when you’re so frequently limited - be that in work, in socialising, in hobbies, or even in getting out of bed, it can become really difficult to see yourself as having any inherent value. A lot of this is tied up with the way society sees value: the more hours you put in, the more you physically ‘show up’, the harder you’re working and the more value you have. I see this manifest in two ways in my life. The first one, obviously, is with my work. I know that I have talents and skills and things that I can offer above and beyond even healthy people, but because I can’t ‘be there’, or even work anywhere near to full-time when I’m at home, it severely diminishes my self-confidence and how I see my value. It’s bollocks because what I can do can mostly be done from my bed, but I genuinely wasn’t expecting it to be so emotionally hard catching a glimpse of the life I could have been living, while trapped at home trying to make the most of it. It has been hard to accept that I may be producing LESS work, and at a rate and quality that is often below what I know I’m capable of - but that’s unfortunately something I have to get better at living with. I may work slower. I may have days where I can’t function. And ultimately, I shouldn’t tie up my self-worth with my work, but when it’s been taken away from you, I think it’s inevitable that in some way you will. This also manifests for me in my relationships. I often find it hard to accept that I have value in a relationship because I find it so hard to see beyond ‘the burden I place on others’ (WHICH TO THEM I DO NOT AT ALL AND EVEN THOUGH I KNOW THAT IT’S SO HARD TO BELIEVE) and that I can offer anything to them aside from that. Which, obviously is totally bollocks because I’m fucking amazing and supportive of the people I love. But when your body feels like it’s constantly attacking you, it’s hard to forget that ‘showing up’ in a traditional way doesn’t mean anything. We need to shift how we view productivity and challenge our assumptions of value in our society. Continued in comment!
User Image lotsthatlaurieloves Posted: Dec 14, 2017 6:56 PM (UTC)

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Thanks to @thepsychologymum for sharing this. Go check out her post and the #alternativeadvent by @mumologist if you fancy an interesting read ❤️
User Image hypermobileguy Posted: Dec 14, 2017 6:58 PM (UTC)

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0 Clarendon
Fed up with life at the moment. Fed up being pain everyday. Fed up having to deal with joint issues everyday. Fed up of needing to use a wheelchair. Just wish things would settle down again.
I also won’t stop using mh IG because a website thinks they are medically trained and knows all about the ins and outs of my. What I talk about on here is not in anyway every single in and out of my life. Spend a day in my shoes because you judge me #hypermobility #hypermobilitysyndrome #ehlersdanlos #ehlersdanlossyndrome #EDS #epilepsy #seizure #seizuredisorder #asthma #ADHD #christian #chronicpain #chronicfatigue #invisibleillness #mentalhealth #mentalhealthproblems #hallucinations #mooddisorder #depression #wheelchairuser #neurologicalfunctionaldisorder #hypoglycemia #borderlinepersonalitydisorder #emotionallyunstabledborderlinepersonalitydisorder #BPD
User Image finding_beauty_in_pain Posted: Dec 14, 2017 6:57 PM (UTC)

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I've said it before and I'll say it again. As far as the chronic illness community goes, we are all on the same team. It's us against chronic illness. It isn't a competition. We're all human and we all want the same thing... health. Hope you're all having a low pain day! 💮
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#weareinthistogether #lifeistooshort #quoteoftheday #strongertogether #chronicillnesswarriors #empathy #fibromyalgia #fibro #chronicillness #chronicpain #migraine #chronicmigraine #endometriosis #endosisters #lymedisease #lymewarrior #multiplesclerosis #eds #mecfs #spoonie #spooniefamily #spoonielife #invisibleillness #mentalhealthawareness
User Image chronically.shells Posted: Dec 14, 2017 6:52 PM (UTC)

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When you regretfully agree to driving half an hour to cat sit for a few hours and try to put on your "happy" face but your "resting pain" face wont let up. And honestly, im really disgusted with myself and my fat face because of all the weight gabapentin has added. I already had low self esteem before but fuuuuuck. This is supposed to be an oversized sweater. At least i can laugh at myself🤣
User Image phoebsbo Posted: Dec 14, 2017 6:52 PM (UTC)

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New blog post! First adventures in my new wheelchair. There's some good and some not so good. It's a learning curve, but still very much worthwhile. ♿️ Link in bio. #me #mecfs #myalgicencephalomyelitis #chronicillness #chronicillnessblogger #invisibleillness #disabilityblogger #newwheels #newwheelchair #electricwheelchair #powerchair #crowdfundedwheelchair #foldawheel #learningcurve #mobility #mobilityaid
User Image livinwithlupus Posted: Dec 14, 2017 6:48 PM (UTC)

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Winter is the hardest season for me, the aches and pains that I have daily usually result in me having to use a wheelchair or a parking pass. This picture is pretty self explanatory, just because someone doesn’t look ill doesn’t mean they aren’t ill. Please don’t be quick to judge!!! #invisibleillness

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