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#creatingconnections201731 POSTS

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We so much enjoyed Denver Dames and Meghann Conter! What a spectacular evening at Beacons! #womennetworking #events #creatingconnections2017 #empoweredwomen
User Image wwest_sfu Posted: Sep 22, 2017 8:13 PM (UTC)

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User Image missyajoy Posted: Aug 6, 2017 7:42 PM (UTC)
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9 years ago, Frank and I attended our first national conference with the #marfanfoundation. It was in Boston that year and Frank was 3 years old. We've been blessed with opportunities to attend this conference a total of 5 more times. Celebrating this community and all it has to share. XXOO Atlanta #marfamily #iknowmarfan #marfanconference2017 #marfanfoundationconference2017 #creatingconnections2017
User Image missyajoy Posted: Aug 5, 2017 7:23 PM (UTC)
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My beautiful friend, Heather, was recognized for her contributions to our local community as president and volunteer for the MN Chapter of the Marfan Foundation. It was an amazing moment for both her and the chapter. #marfanfoundation #marfanconference2017 #iknowmarfan #communityleader #marfanmoms #creatingconnections2017
User Image austincarlile Posted: Aug 9, 2017 1:16 AM (UTC)

themarfanfoundation
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Thank you @themarfanfoundation for having me, and allowing me to speak at this year's Family Conference in Atlanta! ❤ Back home to Costa Rica! #marfanconference2017 #creatingconnections2017 #fightforvictory
User Image dominoe44 Posted: Aug 7, 2017 6:48 PM (UTC)
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Am I sleeping or working in this shot? It's conference so either is possible... 📸cred: @imagesbyperry
#conferencecrashisreal #creatingconnections2017 #actionshot
User Image rodgray00 Posted: Aug 7, 2017 4:37 AM (UTC)
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It's Sunday night and I just arrived in Atlanta for the Marfan Foundation 33rd Annual Conference. Looking for registration. Better late than never! LOL! ❤️😜😎Thanks for the warm welcome Michael Weamer. #Marfansyndrome #MarfanFoundation #creatingconnections2017
User Image alyshelly Posted: Aug 6, 2017 8:38 PM (UTC)
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Had such a great time at the Marfan Foundation Annual Conference volunteering for my mom, @eileenm904, everyone at the Marfan Foundation, @themarfanfoundation, and all the families and individuals who attended. I truly love to listen to people's stories and help out in any way that I can. Can't wait for next year at Stanford. Special shoutout to @austincarlile 's dad for this great shot. #CreatingConnections2017 #Marfan
My glasses fell down and look crazy, but I just want to give a shoutout to this amazing member of our Marfamily for being so encouraging, inclusive, and truly, genuinely kind to all of us. Glad you're my marfbro and I hope you've had an opportunity to experience conference through the lens of more than just an incredible spokesperson and honoree, but also as one of "us". ❤ #marfan #marfansyndrome #creatingconnections2017
User Image annaweds Posted: Aug 5, 2017 10:34 PM (UTC)

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Repost from @themarfanfoundation using @RepostRegramApp - Austin took over our Snapchat at our Victory Party today! Check out our Snapchat for the full story. We are marfanfdn. @austincarlile #creatingconnections2017
User Image lizerlfunk Posted: Aug 5, 2017 1:51 AM (UTC)
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I also met Austin Carlile, formerly of Of Mice and Men, and recipient of the Heart of the Matter award. Such a nice guy! #creatingconnections2017 #marfanconference2017 #marfansyndrome @themarfanfoundation