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#ZofranToTheRescue274 POSTS

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User Image chronically_mambers Posted: Feb 14, 2018 2:15 PM (UTC)

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I'm having a high pain day today.😓 I'm fighting through it though💪. I'm finishing the dishes🍽 and trying to finish cleaning the second bedroom today. It's the last of the to do list I have😄❤. This is the most productive week I've had in a long time. I feel so accomplished though I'm hurting🌼. My surgery is next week and I'm excited for relief but I'm still freaked out about it. I hope everyone has a wonderful Valentine's day with many spoons! 💜 #surgerysoon #highpainday #doingtheimpossible #chronicpainprincess #chronicillnessawareness #ehlersdanlossyndrome #digestivedisorder #digestivedysfunction #dysautonomia #zofrantotherescue #disabledbabe #staypositive #futureostomate #futureservicedoghandler
User Image originalheystefany Posted: Feb 13, 2018 2:07 PM (UTC)

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4 Ludwig
User Image chronically_mambers Posted: Feb 12, 2018 7:01 PM (UTC)

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I got this image from Pinterest. I'm glad to say that I'm having a wonderful day😄 minus some nausea. I've spent my day calling places and getting stuff done💪. I even called to get my custom wheelchair started♿. Since my out of pocket maximum will be hit with this upcoming surgery I can afford some medical things I need for the next 2 months until insurance starts over. 😁 I hope everyone has a wonderful day with many spoons.🥄 #goodday #nausea #gettingthingsdone #surgerysoon #customwheelchair #disabledbabe #wonderfulday #futureostomate #futureservicedoghandler #outofpocketmaximum #goodafternoon #chronicillnessawareness #chronicillnesswarrior #ehlersdanlossyndrome #ehlersdanlosgrrrls #ehlersdanlos #digestivedisorder #digestivedysfunction #invisableillnesswarrior #spoonie #spoonielife #nausea #zofrantotherescue #butyoudontlooksick
User Image chronically_mambers Posted: Feb 12, 2018 2:37 AM (UTC)

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7 Nashville
Tonight I did what I thought was impossible😂. I spent several hours cleaning and doing laundry. I know that sounds silly to think of that as impossible but I'm out of spoons 🥄and had to take so many breaks. I have more to do tomorrow but it's a start. I'm making a list of things to get taken care of this week and hopefully by the time of my surgery it'll be done💪. I'm always terrified of surgery so I'm a little freaked out but I'm ready for relief. 😄 On a good note I got my disability parking placards today. #surgerysoon #loopilleostomy #housework #doingtheimpossible #todolist #relief #chronicillnessawareness #ehlersdanlossyndrome #disabledbabe #invisableillnesswarrior #inspireothers #gettingthingsdone #digestivedisorder #digestivedysfunction #colonicinertia #awareness #readyforrelief #dysautonomia #ptsd #posturalorthostatictachycardiasyndrome #possiblenarcolepsy #sleepstudysoon #sleepparalysis #zofrantotherescue #futureservicedoghandler #fightinginvisableillness #fightingtobehealthy #dontgiveup
User Image chronically_mambers Posted: Feb 11, 2018 4:25 PM (UTC)

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5 X-Pro II
I'm sorry that I haven't really been posting much since my mom's surgery and how hectic this past week has been. I've got such a long to-do list for this week and I'm very overwhelmed. I'm getting everything ready for my hospital stay next week and finishing up some much needed housework and paperwork. I also have to meet with my lawyer on Tuesday. I'm trying to get stuff done today but my physical and mental health is fighting me all the way. Im going to pack my hospital bag soon. What are some essentials you carry for a hospital stay?#chronicillnessawareness #chronicpain #chronicillness #ehlersdanlosgrrrls #ehlersdanlossyndrome #ehlersdanlos #ptsd #tryingtobeoptimistic #colonicinertia #digestivedisorder #digestivedysfunction #nausea #zofrantotherescue #housework #todolist #fightinginvisableillness #idontlooksick #fightingtobehealthy #overwhelmed #mentalhealth #spoonielife #nospoons #negativespoons #spoontheory #whatsinyourhospitalbag
User Image chronically_mambers Posted: Feb 9, 2018 3:31 PM (UTC)

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I've taken a few days off of Instagram due to my mother's condition. She is stable now and acting more like herself. We have some troubling times ahead with her recovery but it'll all be worth it. Needless to say running all over the hospital multiple days, running to finish her FMLA paperwork, hardly sleeping, plus going to some appointments for myself an hour away I'm super out of spoons and it's only 10am. I'm having someone stay with mom today so that I can rest and try to control my chronic illness that has forced me to be miserable the last few days. I'm very thankful that God has pulled her through this surgery and he will be with her during the radiation and therapies to come. I hope you all have a wonderful day full of spoons. ❤🥄 #thankful #chronicillnessawareness #chronicpainwarrior #zofrantotherescue #whenitrainsitpours #brainsurgeryrecovery #radiationtherapy #nospoonsleft #negativespoons #sleepstudysoon #possiblenarcolepsy #surgerysoon #invisableillnesswarrior #restday
User Image unboxedr Posted: Feb 7, 2018 4:13 AM (UTC)

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Seeing your child like this is heart wrenching. #stomachbug #zofrantotherescue for pukes now to settle the #poops here's going there are no ER visits tonight for dehydration. Hoping for a break in sicknesses soon. It could have been soon as in yesterday.
User Image jessmae328 Posted: Jan 28, 2018 3:35 PM (UTC)

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User Image yelshaluhu Posted: Jan 27, 2018 1:29 AM (UTC)

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2 Reyes
This is what happens when you're sick, and don't know it. I've had terrible vertigo and nausea for almost a week. Finally went to urgent care today. My middle ear in both ears have so much fluid in them the doctor couldnt even see into my ears.
No other symptoms other than vertigo. Two hours at urgent care 2 anti nausea/dizzy medications and a steroid later... This is my life. 🤢😐
#apparentlyimsick #vertigosucks #imspinning #waitno #theworldisspinning #zofran #zofrantotherescue
User Image chronically_mambers Posted: Jan 26, 2018 11:47 PM (UTC)

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Today they finally called me to tell me that my lleostomy surgery date is Feb 23. I'm still fighting stomach issues but I'm remaining hopeful. I'm also having issues with my POTS today. My heart rate lying down is 109. Obviously I cant get up without feeling like Im going to pass out and my heart rate jumping to 170. I'm spending my day lying down and drinking alot of water and eating salty food. Also as a reminder my online store has new products for chronic illness awareness. All profits go toward funding for my medical needs.

www.redbubble.com/people/ammiller4644
#chronicpain #chronicpainwarriors #posturalorthostatictachycardiasyndrome #chronicillness #chronicillnesswarrior #gastroproblems #colonicinertia #ostomy #futureostomate #badday #spoons #spoonielife #spoonie #invisableillnesswarrior #futureservicedoghandler #disabledbabe #highheartrate #dysautonomia #nausea #zofrantotherescue
User Image cscriddle Posted: Jan 18, 2018 5:21 AM (UTC)

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Praying that sweet Sadie Mae has a better day tomorrow. She hasn't kept much down since Monday night. Poor little one. #zofrantotherescue #thoughshebebutlittlesheisfierce #SadieMae
User Image chronically_mambers Posted: Jan 11, 2018 9:01 PM (UTC)

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The surgery consultation went very well. I'm very excited for some relief. Still haven't made a date for it yet though. I'm all out of spoons🥄 from the appointment and the long drive there and back #spoontheory. I'm battling joint pain from Ehlers Danlos Syndrome plus horrible abdominal pains. I'm also feeling very sick from a digestive system that refuses to work properly. Today I'll be wrapped in a heating pad with my doggie and watching my favorite shows on Amazon Prime and Hulu to try and lift my spirits. #itsoktonotbeok #surgeryconsult #spoonie #spoons #nospoons #ehlersdanlosawareness #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosgrrrls #ehlersdanlosproblems #abdominalpain #gerd #chronicpain #chronicpainwarriors #chronicillness #invisableillnessawareness #digestiveproblems #digestivedysfunction #tryingtobeoptimistic #zofrantotherescue #ptsd #depression #dysautonomia #potssyndrome
User Image chronically_mambers Posted: Jan 10, 2018 4:58 AM (UTC)

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2 Perpetua
Found this on Pinterest. I'm having a terrible night of symptoms and having painsomnia. I can't even keep anything down right now. #zofrantotherescue I'm trying to stay positive and think of what to pack for my hospital stay. My surgery consult is Jan 11 so I won't know the for sure date of surgery until after that. Anyone have any recommendations for what to bring to the hospital to make it more comfortable? #hospital #totalcolectomy #ostomysurgery #surgerysoon #digestiveproblems #digestivedysfunction #chronicpain #chronicpainwarriors #chronicillness #ehlersdanlosawareness #ehlersdanlossyndrome #hospitalbag #keepgoing #invisableillnessawareness #surgeryconsult #gerd #painsomnia #zofran
User Image jennlynnglover Posted: Jan 8, 2018 11:23 PM (UTC)

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Day five of this crud, and I have never been so thankful for these magic anti-nausea pills. #stupidfreakingvirus #overit #zofrantotherescue
User Image lc_staynings Posted: Jan 8, 2018 1:46 AM (UTC)

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User Image chronically_mambers Posted: Jan 7, 2018 1:25 AM (UTC)

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I found this on Pinterest and really like this. I'm having a hard night tonight with pain and alot of nausea. I am struggling tonight and I'm trying to not get myself down about it. Having a chronic illness can make you feel defeated and most times it does for me. #struggling #upcomingsurgery #chronicpain #chronicillness #chronicpainwarrior #nausea #zofrantotherescue #defeated #trytostaypositive #ehlersdanlosawareness #ehlersdanlossyndrome #digestiveproblems #digestivedysfunction #dysautonomia #godisstrongerthanyourproblems

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