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  Posted: Jul 26, 2012 12:21 PM FEED
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More posts from this user

Today is International Day Of The Girl.

1:50,000,000 girls will have been born with Duchenne which most commonly affects boys 1:3500.

Today we highlight one of our rare but very special girls with Duchenne, Megan Howe from Sydney NSW.

Megan is 13 and a huge Rabbitohs supporter, pictured here with her sporting hero and Save Our Sons Duchenne Foundation Ambassador, Sam Burgess.

Head to https://www.saveoursons.org.au/about-duchenne/girls-with-duchenne/
for more information on girls with Duchenne and donate to our fight.

#SOSDuchenneFoundation #GirlsWithDuchenne #FightingToCureDuchenne #Rabbitohs #UnitedNations
Posted: Oct 6, 2017 1:01 AM
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Nathan Brown, Sam Burgess and Dean Halatau at the #SaveOurSonGolfDay2017
A huge thank you to our long time supporters URBANISTA CAFE & CONVENIENCE and good friend Eddy Nader for raising over $4,000 for Save Our Sons in the month of September!
Thank you to everyone who supported this campaign and purchased a cup of coffee & making a difference in the lives of all living with Duchenne.
#SOSDuchenneFoundation #Duchenne #Urbanista
The winners of the Hugh Jackman experience having breakfast with Hugh in New York City last Sunday!

Congratulations to our winners, we're glad you enjoyed this once in a lifetime experience.

A huge thank you to Hugh Jackman & our ambassador Gus Worland for making this happen and their continued support in helping us make a difference in the lives of all affected by Duchenne!

#SOSDuchenneFoundation #Duchenne #HughJackman #ThankYou
Posted: Sep 21, 2017 10:18 AM
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Check out our Facebook page for photos from our Sydney Gala Dinner 🌟
Link in bio!
#sosduchennefoundation #duchenne #SOSGalaDinner
Posted: Sep 16, 2017 11:39 PM
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Thank you to our amazing celebrity ambassadors and supporters for believing in our cause and their constant support! We ❀️you.
#sosduchennefoundation #sosgaladinner #thestarsydney #duchenne #gala
Posted: Sep 16, 2017 11:34 PM
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Last night we had our annual gala dinner to raise money and awareness for Duchenne muscular dystrophy. Thank you to everyone who attended and made this night one to remember! A special thanks to our National Partner @wellnessaustralia, our Venue Partner @thestarsydney and our Event Partner @audialtopennanthills 🌟

#sosduchennefoundation #sosgaladinner #thestarsydney #chemistwarehouse #gala #duchenne
Posted: Sep 6, 2017 11:53 PM
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Today is World Duchenne Awareness Day!

This date (the 7th day of the 9th month) symbolises the number of exons (pieces) in the dystrophin gene.

The focus for this year is the 'Dreams' of those with Duchenne and the community.

At Save Our Sons Duchenne Foundation our dream is for a cure or an effective treatment for all those living with Duchenne.
To achieve our dream, and the dreams of the community, we need your help.
Please help us raise awareness of #Duchenne by sharing the red balloon 🎈& donate to the link in our bio!

Let's fight Duchenne together.

#SOSDuchenneFoundation #WDAD #Dreams #Hope
Posted: Sep 5, 2017 3:34 AM
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A huge thank you to the team at @knafehbakery and the bearded bakers for taking the time last night to hear our story - we look forward to our future endeavours together.
#sosduchennefoundation #duchenne #knafebakery #beardedbakers
Posted: Aug 31, 2017 6:48 AM
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Our good friends and long time supporters Nader Petroleum Group, owner-operators of the BP URBANISTA CAFE & CONVENIENCE stores will be generously donating 30c from every cup of coffee sold for the month of September at three of their Urbanista locations: - Smeaton Grange
- Condell Park - Chipping Norton
Support #saveoursons by purchasing a cup of coffee during the month of September.
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A big thank you to Eddy Nader from Nader Petroleum Group for his ongoing support!
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#SOSDuchenneFoundation #Duchenne #Urbanista
Thank you to Georgie and Ben from Marrickville Red Devils for organising a charity day at Mackey Park raising money for all affected by Duchenne and to Mark Bosnich for his time and support! .
#sosduchennefoundation #duchenne #marrickvillereddevils #soccer #markbosnich
Posted: Jul 21, 2017 8:31 AM
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Our inaugural ladies high tea today was a huge success!
Thank you to all the wonderful ladies that came along to support all affected by Duchenne.
Stay tuned for photos from the day coming soon to our Facebook page! .
#sosduchennefoundation #sosladieshightea #Duchenne
Posted: Jun 23, 2017 6:58 AM
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Happy Friday 😊
Hope everyone has an amazing weekend ✨
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#sosduchennefoundation #duchenne #tgif #weekend
Posted: Jun 15, 2017 6:15 AM
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Save Our Sons is proud to bring you our inaugural ladies high tea!
For more information and to purchase tickets, click on the link in our bio!
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#sosduchennefoundation #duchenne #ladieshightea
Posted: Jun 1, 2017 7:26 AM
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An exciting ladies only event on the 21st of July, to be announced early next week ... Stay tuned πŸ’
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#sosduchennefoundation #ladiesevent #link4dmd
Fun weekend shooting a segment of our new documentary - w/ some truly inspirational human beings @alexscollard, James & Andrew - All living w/ Duchenne & playing Powerchair Football ⚽️⚽️⚽️
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Fact: Alex played for Australia πŸ‡¦πŸ‡Ί & scored a goal at the world 🌎 Powerchair Football comp in 2011 in Paris πŸ™ŒπŸΌπŸ’«
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#SosDuchenneFoundation #PowerChairFootball #Inspirational #TrueFighters #DMD #LivingWithDuchenne #livinglife
Today's #SOSDuchenneSmile is the gorgeous 4 year old Mason - you are not aloneπŸ’« .

#DuchenneSmile #Link4DMD #Duchenne
Posted: May 18, 2017 7:37 AM
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Tbt....the animal kingdom supporting Save Our Sons and linking for Duchenne muscular dystrophy πŸ™ŒπŸ» #sosduchennefoundation #duchenne #link4dmd
To all the wonderful mothers out there - Thank you for simply being you β™₯️
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#momsrock #mommylife #childrenarethefuture #love #world #mumstheword #SosDuchenneFoundation