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renoy92 Tranfusi darah dulu biar perpanjang masa hidup sementara ^^ #Thalassemia #IamThaller #Tranfusi #Bloods #Fresh 30&31/07/2015 8h

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loay_agha شمس الدين... أحترق قلبي لسماع موتك اليوم صاحبي و اخي و اغلى شي في صداقه وداعا يا عزيزي مت و انت لم تلاقي للعلاج تكسرات الدم.....#نام_بهدوء_وسلام
الشاب العصامي
صاحب الطموح العالي
لم يكل أو يمل في حياته القصيرة
درس وتعلم ونال التفوق والتميز
والتحق بجامعة الإمارات
كلية الهندسة النفطية
تحمل الكثير في الأيام الأخيرة
والأحداث الأليمة التي مرت وما زلنا فيها .. غادر جميع أهله صنعاء عادوا للقرية وتركوه وحيدا يصارع مرضه المزمن والوحش القاتل .. لم يكن له من قريب أو بعيد يقف إلى جانبه ..أسعف قبل ليلتين من قبل جار له إلى م آزال .. وفي اليوم التالي جاء إلى مركز رعاية مرضى الثلاسيميا والدم الوراثي بجمعية
أستنفر الجميع وخاصة الأطباء جل طاقاتهم ليخففوا ألمه .. لم نكن نعلم أن شمس الدين هو في ساعاته الأخيرة جاء فقط ليودعنا .. #شمس الدين قضى جل وقته في آخر أيامه بالجمعية لا أدري هل شعروا بما كان يدور في ذهنه ..
هل أحسوا بقرب فراقه .. حظيتم بالأجر الكبير فأنت من أسعفه للمستشفى الجمهوري وتابع حالته بكل ود وحب ..
ليتني كنت مكان أحدكم ، ليتني حظيت بالجلوس معه ، لأنه كان الجلوس الأخير .. شمس الدين ... كنت تأمل أن تكون مهندسا نفطيا و نتخرج سويا و نكمل خططنا إلي لنا شهر عشان نغادر البلاد و الى وضع احسن و نكمل دراستنا. لكن ربك أرادك إلى جواره ..لن انساك بقرائه القران والدعاء و فراقك سببت لي ألم و جرح عميق في قلبي
فإلى جنة الخلد أيها الحبيب الغالىLoai Agha " #إنا_لله_وإنا_إليه_راجعون "
# موت #عزاء #مريض #مرض #الثلاسيميا #رحمه_الله_عليك #صداقه #اخ #consolation #Thalassemia #ill #illness #جنه_الخلد
14h

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manifestedlaser What the actual crap is she doing to to me?!!!! 😧😮😯😦😈 #thalassemia #nurse #Angie #blood #bloodtransfusion #vampire 20h

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winknod It's a rare run when I can look down the road with a 1.5 mile stretch and have my body say "we can do that, and more!"rather than "don't focus on that, and PUSH!" And to have power left in my kick at the end to get me home at a sprint. Which for me is a 10 pace. I envy and admire runners who can post 6-8 paces. Thalassemia won't let me go that fast. I do love my faster paced runs though! #thalassemia #run #running #instarunner #iLoveitALL #runningcommunity #runlikeagirl #BuffaloNY #newhometown #nikeplus #garmin #goodmorning #morningrun #adidasboost #alwaysrunning 1d

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2d aadporg
Normal Asian American Donor Program
aadporg Marrow transplant recipient Mailyna met with her marrow donor Kristine for the first time. Mailyna no longer needs monthly blood transfusion and daily medications after the transplant. Congratulations! To sign up as a donor, go to www.aadp.org/homekit
#AADP #kaiserpermanente #amatchformailyna #marrow #marrowdonor #thalassemia Photo credit @duyhophotography
2d

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manifestedlaser I just want to say happy birthday to my adorable #Thalassemia #Sister Scarlett..when I met her in New Jersey I never thought I'd meet such a vibrant and smart 4 year old. It started with me walking into the a room and her and the other kids were playing and the aid John waved me in and the first thing she did was asked what my pump was and as I told her and the kids she asked "Where's your super hero cape?" I told her I was too old to be a super hero and she said "you're never too old to be a superhero" and she gave me a cape she then told "There now you're our superhero".. They then said I will be "Z Man" she hugged me and started wooshing around the room with her cape, I told her she had made my day, it's amazing that a kid her age was capable of making me cry with a few simple words. I definitely enjoyed meeting her and her dad and dancing with her as she told me as we danced that as I a hero I have to save her if she needs it, I told her as my Thal sister I would do my best she gave me a big smile and said thanks. She's definitely not your average kid and I'm glad because the life we live is not easy but as heroes and heroines it is worth especially to put a smile on the face of others. Happy 5th birthday Scarlett I may not be able to save you directly but your dad will and as a big Thal brother I will be here to help guide you through life, lots of love to you kiddo, see you next year!! #Thalassemia #ThalPal #NewJersey #amazing 2d

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theblueeyedbrowngirl #tbt Once there was a girl who wanted to be an astronaut but couldn't because of #Thalassemia and no mathematical aptitude. Instead, she grew up to do good things, stupid stuff, make mistakes, and learn that there's something new to learn every single day. She thanks #blooddonors for keeping her alive and thanks you for dropping by! #theblueeyedbrowngirl #Ohio #Florida #newyork #NY #NYC #diversity #sonycameras #live #love #laugh #learn 2d

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shenellerm Blood date with my sister from another mother.. lol 😀 👭 #sistersister #welookalike #smiles #blood #heamoglobin #redcells #transfusion #hospital #thalassemia #bloodislife 4d

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iamwdc This week show is the Hospital Experience. Maybe this whole month series is... we not here to bash our Medical Community but for us as a CommUnity to come together so they can hear our concerns.
The Hospital Experience as it relates to Sickle Cell moreso the ER as it pertains to treatment and protocol. So if you have input please get ready. This week we gonna open the topic and each week pull another layer off.. oh yeah it just might hurt too... Follow me on IG and Twitter for more updates about the show.. WDC Radio Show
Saturday's 4pm PST / 7pm EST on LA Talk Live www.americatalklive.com "The Hospital Experience"
August 2015 Series
#WDCRADIO #sicklecelltrait #sicklecell #thalassemia #stopsicklesex #sicklecellwarrior #chronicillness #awareness #education #prevention #whatzdacount
#thehospitalexperience #august #2015
4d

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iamwdc This week show is the Hospital Experience. Maybe this whole month series is... we not here to bash our Medical Community but for us as a CommUnity to come together so they can hear our concerns.
The Hospital Experience as it relates to Sickle Cell moreso the ER as it pertains to treatment and protocol. So if you have input please get ready. This week we gonna open the topic and each week pull another layer off.. oh yeah it just might hurt too... Follow me on IG and Twitter for more updates about the show.. WDC Radio Show
Saturday's 4pm PST / 7pm EST on LA Talk Live www.americatalklive.com "The Hospital Experience"
August 2015 Series
#WDCRADIO #sicklecelltrait #sicklecell #thalassemia #stopsicklesex #sicklecellwarrior #chronicillness #awareness #education #prevention #whatzdacount
#thehospitalexperience #august #2015
4d

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tanat_sitthirat โครงการดีๆ เพื่อผู้ป่วย Thalassemia ครับ #thalassemia #dentistry #dentalstudent #NU 4d

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tasneemameer As old as I am, when it gets to this, I still want my Mommy or my IdoBear #thalassemia #blood #transfusion #itpains #missmymommy 4d

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  •   danaboo81 No @spicepinkie1 I wouldn't say it lasted but I would have been better off just doing the replacement. And the limp goes away until the AVN starts spreading. Hopefully that doesn't happen to you. Mine spread due to sickle cell anemia disease. Do you mind me asking how'd you end up with AVN? 4d
  •   spicepinkie1 @danaboo81 They don't know. I never took steroids or alcohol etc... I was diagnosed on JuNE 26 and July 3rd I had my CD.. still on crutches and if I put my feet down I know i'm limping. People seems doing well after a THR.. If the pain doesn't stop how are u going to do?I hope mine doesn't spread 4d
  •   danaboo81 I honestly don't know @spicepinkie1 I'm waiting to see a specialist on what can be done. It's taking a toll on me now physically and mentally 4d
  •   spicepinkie1 @danaboo81 I know how u feel. I'm drained as well and tired to deal with this. Mentally I'm consumed so much that i'm thinking of just running away 4d
  •   danaboo81 Lol @spicepinkie1 thought I was the only one trying to run away!!! 4d
  •   spicepinkie1 @danaboo81 nope I actually got even a plan this time because I can't take this illness anymore and I look at u with admiration...7 years are a lot 4d
  •   danaboo81 Lol well @spicepinkie1 all of those hash tags are what I'm dealing with and I promise, wherever you run it follows. BUT a nice getaway will help. And no matter how bad it gets, DON'T give up 4d
  •   spicepinkie1 @danaboo81 I'm so tired that i'm seriously thinking to a THR 😕 . My next app is August 11th and i'm tired of doctors...no work...no life...Also there is hope with stem cells injections ... Ì called a clinic in Fl that has them 😈 4d

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