3,790 Posts

  •   rimplebal So I'm upset, mostly I'm pissed off!! Because I really didn't understand how much it hurt me that I have this terrible effing disease, I've had it for so long now that it just became a way of life and dealing with it just became normal. I didn't realize how UNFAIR it is and how ANGRY it makes me that I have to live with it!!! I went to India for five weeks this summer where it was at least 90 degrees Fahrenheit everyday and my joints loved that, I had so much energy, I jumped around and skipped without my knees giving out on me and NOTHING HURT. I actually felt HEALTHY AND NORMAL. And now I'm back in upstate New York, I haven't even been back one week and my knee is swollen and it hurts and it's hard to move it. I'm wearing wool socks, thick pajamas, and a sweater in August and I'm still in pain. I'm gonna have a hard time getting my leg out of bed while most others jump out tomorrow morning & it just really breaks my heart. I know I should be thankful that at least I have somewhat well functioning legs and that I can walk even though I'm limping, because not everyone has that privilege but I think it's okay to put aside the rainbows and unicorns once in a while and openly talk about how much it absolutely effing sucks to go through this as a way of life. I'm 20 years old and I've had Rheumatoid Arthritis since I was 3 years old. Arthritis is not just a disease of old age. Someone find us a cure. #CureArthritis #rheumatoidarthritis #JuvenileIdiopathicArthritis #kidsgetarthritistoo #rheum #arthritiswarrior #instadaily 5h

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audrey_katherine_ It's almost 5:30 - the end of the work day for many so I can officially say Happy Labor Day Weekend!! #CloseEnough #TGIF #longweekend #restup #catchup 12h

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hurtblogger Hit the trails today with @stevulon for 3.6 miles through the Verdugo Hills! Let's not even talk about how hot and dry it is here in SoCal... #raindance #arthritis #rheum #denalibound #spondylitis #rheumatoidarthritis #spoonie #kidsgetarthritistoo #hiking #mountains #curearthritis 10h
  •   carolinagirlruns Awesome! Thought of you as I get my plan together to run my 1st 5K since I've been "sick." It's the annual Turkey Day race, which was my first ever race when I started running, and my son will be doing it with me this year. Praying I can push, and stay healthy enough to just finish it! Thanks for being an inspiration to so many people like me, who sometimes doubt we will ever get better! 9h
  •   hurtblogger @carolinagirlruns Thank YOU for the smile! I think believing that the tide can and will turn greatly promotes our ability to get feeling better :) Congrats on signing up - I live the significance! Just take it slow, you have time! One day at a time :) 6h
  •   rockone77 Awesome! ! Get it girl 6h

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peachypains I did it! I #ran 5 miles!!! Three weeks post major #arthritis flare and I didn't quit. I didn't quit with my flare and I didn't quit running. I didn't even stop for a break. I feel #AMAZING! 12h

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Normal Catherine (aka Cat/Katie)
starweaver Ow! 3 sticks later........ It is done. #ra #rheum #arthritis #chronicillness 14h

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starweaver For the next 6 hours or so all I am is a barcode and a pin cushion! #ra #rheum #arthritis #chronicillness 16h

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bookluvr777 Slowly but surely. I haven't been able to do much crocheting lately because of my hands but I'm trying to do as much as I can. #crochet #chevron #chevronblanket #ra #rheum #rheumatoidarthritis 17h

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Normal Catherine (aka Cat/Katie)
starweaver Clinic day. Bloodwork tests and then my infusion. The day I both dread (cause of how hard the IVs is to start) and look forward to (cause I know how much better I will feel afterwards). #ra #rheum #arthritis #chronicillness 19h

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hopecourageinspiration Adversity’s Blessings
August 29
**
Every battle you fight has a purpose. Every challenge illuminates the strength you possess. Your pain is not permanent and your life is not cursed. You are beautiful and strong beyond measure.

In adversity, there is always the opportunity to choose hope. Amidst the difficulties, there is always the opportunity to embrace gratitude for what’s good in your life. Through the challenges, there are always blessings hidden in the folds; you simply have to choose to see them.

Gratitude is not simply looking out at the world around you and smiling, it is smiling and embracing the small blessings throughout your world.

Courage is not the absence of fear, it is the ability to act in the presence of fear.

Perseverance is not the random act of getting up after one fall, it is the conscious choice to get up after every fall with a renewed sense of purpose.

Whether you see it or not, you embody gratitude, courage and perseverance simply by virtue of your journey. Hone those skills each day and find joy in the person you are becoming because of the adversity you’ve faced.

Every obstacle you face has a purpose.
#hopelives
You can listen to the audio version of this message, along with the story behind it, at: http://wp.me/p45MKU-su
22h

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goodneighborgirl First go on Orencia! #spoonie #rheum 22h

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tfiggity Off toto see the new Rheum! Hopefully this one isn't about to keel over and is open minded towards not poisoning me! Which would be a tenfold improvement from the previous one.
#rheum #rheumatoidarthritis #rheumatologjst #universityofmichigan #uofm #solid #autoimmunedisease #ra #rawarrior #spoonje #butyoudontlooksick
23h
  •   xoxthelugirlxox Good luck! If you stop by the mall I'll be working haha 22h
  •   aprilstyers Good luck @tfiggity! My rheumatologist is down there, all of the doctors are great and actually care about your health. Who are you seeing? 19h
  •   tfiggity @aprilstyers I actually saw the nurse practitioner today, Rizzo. Initial office visit and I'm unsure of how I feel about it. Looks like they want me on prednisone and injectables and possibly infusions soon after. Really overwhelming and I'm still trying to process it all while I wait for my blood draw. Oy. 19h
  •   aprilstyers @tfiggity I wish you the best. I was on iv infusions three years ago, they have terrible side effects and made me incredibly ill. My doctors actually want to start doing them again, but am totally against it. Do your research on anything they recommend!! Hopefully they will be able to find answers for you. I know what its like living with the never ending struggle to find "real" answers without poisoning your body. I'm right there with ya girl :) 6h

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brownnsheep Guess what day it is?
Once again, arthritis and rheumatoid arthritis are NOT the same thing. This is my ten year old daughters meds...NOT mine
#awareness #facearthritis #curearthritis #rheum #rheumatoidarthritis #jia #jra #ja #arthritis #arthritissucks
1d

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littlemissarthritis It doesn't look like it, but my skin is actually starting to show improvement! Yeah, Otezla! :) it's drying out and starting to heal. I'm on day 11, and the side effects are getting better. I developed a sinus infection earlier this week, and I'm still having nausea, GI upset, and hot flashes...but if it's already helping after just 11 days, it's worth it, right? // #otezla #sideeffects #healing #arthritis #arthritisproblems #arthritissucks #rheum #rheumatoidarthritis #ra #rawarrior #psoriasis #psoriasisproblems #spoonie #invisibledisease #autoimmune #chronicpain #staypositive #iamthefaceofarthritis #chronicillness #chronicallybeautiful #chronicallyfabulous #spooniesupport #fighter #remicade #methotrexate #mtx 1d
  •   the_cupcakeman Ugh I have that on my left ear 1d
  •   smewch I get this behind my ears too. It flares up and down and is wet. Is it linked to our RA then? I never think to mention it at my rheumy appointments x 1d
  •   littlemissarthritis @smewch Unfortunately, yes! It's another autoimmune disease called psoriasis. You should definitely tell your Rheumy about it! Do you put anything on it to help heal it? 22h
  •   littlemissarthritis @jllands I hope the stelara works for you, girl! I've heard good things about it :) 22h
  •   littlemissarthritis @madiison.mariie @the_cupcakeman it's the worst, right?! I hope your patches are clearing up, too! 22h
  •   jllands Thanks @littlemissarthritis :) 22h
  •   littlemissarthritis @breynartistry I am so thankful for that! I'll be starting my 3rd week on Monday, and I'm hoping to feel normal again :) 22h
  •   the_cupcakeman Mine has been there for so many years it never disappeared! But it never spread it remained the same size 19h

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Normal Catherine (aka Cat/Katie)
starweaver 101.4 ounces down, 130.4 ounces of water and Gatorade left to go. Damn my veins. Damn them! My eyeballs are swimming right now. The more I drink now the less tomorrow will suck (hopefully! *crosses fingers*) . #ra #rheum #arthritis #chronicillness 2d

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