8,596 Posts

Ludwig Sandra Witzel
wellvess Starting meal creations for the upcoming spring/summer program. Lots of fun! 5h

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theperksofbeingamixedgirl In the morning I have my surgery to get my G and J tubes replaced and put in. I'm praying that the doctor & robot(the da Vinci) is able to do what they need to do so I don't need another surgery(except for changing tubes out)again. I hope they're able to drop the tubes down but that all depends on how bad I'm flaring in my jejunum but I think it should be fine because I've taken steroids most of the summer and just got off last Monday 🏽 Today I also had an appointment with my primary care physician. I've lost 6 pounds since my doctor appointment last Thursday with my new Gastroenterologist But hopefully the new tubes can stop that from happening so dramatically. My PCP prescribed me Restoril to take instead of Klonopin for my insomnia since it's stronger. I gotta pick that up from the pharmacy tomorrow. He also upped my B-12 dosage to help me absorb nutrients better since I can't absorb it. He drew blood work too. Been a busy week with doctors appointments and now surgery tomorrow but I have faith in my surgeon, Dr. Mason, because he seemed very confident in himself. I'm debating on even going to sleep at all since I have to get up at 4:30 AM and take a good shower. I just took some Tramadol, Phenergan suppository and Norco so I'm not hurting or nauseous right now which is great ️ Please pray for me that the surgery goes smooth #crohns #crohnsdisease #Gastroparesis #tubie #feedingtube #gtube #jtube #rheum #arthritis #jra #kidsgetarthritistoo #endometriosis #chronicpain #chronicillness #spoonie 6h

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ness__g Earlier today I was feeling guilty for being chronically ill and having to lay down. Because when I have to rest on my bed that means my baby has to play on the bed & I feel like I'm hindering his learning. I know it sounds stupid but it's how I feel sometimes. My mom helped me realize that he loves playing on the bed, especially jumping on his bed. So I know I shouldn't feel guilty & if people judge me for being in my room/laying down as a stay at home mom, then so be it. I know I'm a great mom. I'm just learning how to be a mom & be chronically fabulous at the same time #learning #life #welcometomylife #chroniclife #chronicpain #chronicillness #RA #rheum #rheumatoidarthritis #rheumatoidarthritisawareness #fibro #fibromyalgia #spoonie #spoonielife #spoonieproblems #newmommy #chronicallyfabulous #chronicallyill 6h

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  •   loufitness nice page overall check mines out if you can 7h

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hopecourageinspiration Some of our best growth comes from being annoyed, frustrated and angry. Don't let difficult circumstances get you down. Allow them to push you forward.
#rheum #hopelives #inspiration
10h

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  •   raisingbushs @haspell. Did you switch to Actemra SubQ? How do you like it? 12h
  •   haspell @raisingbushs yes! I switched 5 weeks ago. On lots of pred right now so can't tell yet until I start weaning how much it's helping! I did pretty well on actemra IV previously but it seemed to wear off too quickly. Rheumy says he has patients who had that prob on IV doing great now on the subQ since it is administered weekly! So I'm feeling pretty optimistic! Unfortunately we decided that the ilaris just wasn't doing quite enough for my symptoms! 11h

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curearthritis #Filming the next episode of #ArthritisNow w/ Dr. Kriegel of @Yale! Talking about gut bacteria and its relation to #autoimmune disease. Hosted by @kyjolang ----------------------------------------------
#CureArthritis.org/arthritis-now
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#Lupus #RheumatoidArthritis #spoonie #research #ArthritisResearch #science #rheum
13h
  •   rheumerhasit I look forward to this, given what I just read about gut bacteria/ food sensitivities & tongue appearance changes with my Hashimoto's-- the autoimmune gateway for #RA. 12h
  •   ra_athlete When is it available online? 12h
  •   kyjolang @ra_athlete next Wednesday! Stay tuned! 11h
  •   ra_athlete Awesome, thanks. I've often thought there was a tie between the two. 11h

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angeladurazo RA got me like 😴 #rheum #spoonie 13h

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curearthritis We love when our #arthritis #supporters share their #CureArthritis bracelet photos! Thanks to @mslynda85 for helping spread awareness!
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CureArthritis.org/bracelet

#rheumatoidarthritis
#RAWarrior

#spoonie

#RA
#rheum
16h
  •   allthatjaz24 Clearly not I posted a cute one and no one cared! 11h

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spindleprincess It's Thursday, which can only mean one thing...#rheum #spoonie #chroniclife 17h

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arlaunika Så er det i morgen vi får besøg af Jens fra Cold Hand Winery i vores butik i Torvehallerne i København. Kom og smag på ost og frugtvin fra kl. 13. 1d

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  •   queen_wren Bout to have my checkup today. And hes not gonna like what i have to tell him. I feel your pain. 18h
  •   ness__g @queen_wren sucks! 13h

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ness__g So today I walked .64miles. I know it's not a lot. I mean it's not even a damn mile but I FUCKING DID IT & It felt great! It may have taken me 20 mins but shit I DID IT! My body is killing me, especially my knees, I'm completely exhausted but I DID IT! EVERY ACCOMPLISHMENT COUNTS! Today is definitely a GREAT DAY compared to the last few days! Words do not describe how HAPPY I am right now! I DON'T KNOW WHAT I WOULD DO WITHOUT THE SUPPORT OF MY FAMILY #happiness #fitness #rheum #rheumatoidarthritis #fibro #fibromyalgia #spoonies #spoonies #spoonielife #chronicpain #chronicpain #chronicillness #grateful #family #familysupport #sistersupport #thankyou #lovemyfamily #everyaccomplishmentcounts 1d

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soothezepals Peppermint is another natural herb that is found in our Sootheze Pals. A refreshing scent, peppermint is also known for its soothing effects on the digestive system.
Settles upset stomachs and reduces nausea
Eases skin irritations and sunburn
Alleviates headaches
Relieves cold and flu symptoms
Provides overall refreshment and energy boost
www.soothezepals.com
2d

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