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fabulousfighter If you're in Southern California, consider attending this community seminar on autoimmune diseases. It will be at Keck USC and my wonderful rheumatologist will be a speaker. I will also be attending! All donations will be credited to the Doctors research in their speciality of AI diseases. 4h

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fitaimee_ra A lot of people don't post their struggles/challenges they face.
I hope I can share with you all my accomplishments & challenges because life is a roller coaster & we are riding on that same car. .
Today I have to wrap my knee & ankle up because my legs really don't want to function today
Show me how you #braceyourself
5h

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laurenlovesyou2015 Reducing the prednisone has me exhausted but I'm up and working! Cheers to you, Wednesday! #prednisone #flare #psoriasis #psoriaticarthritis #rheum #spoonie #chronicillness #chronicallyawesome #coffee #wednesday 8h

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ambshuck Trying to just learn to relax when life throws me curveballs, or when unexpected things mess up plans or intentions. Tonight would have been a fun #tarot card party with my insta-BFF @elehad4 but the Universe had other ideas for me! #God doesn't give us more than we can handle -- or so they say! Interestingly, this week's episode of "Chasing Life" discussed the idea that life is perfect in each moment because each moment -- whether we chase to place good or bad value on it -- is exactly as it is meant to be. A life with chronic illness forces you to embrace the idea of accepting what you can't control. I'm trying to learn to just let things be, and know that my bad days don't define me as a person! (And side note: @chasinglifeabc: what an excellent show for any young person living with an ongoing/life-altering medical problem or health crises! It focuses on cancer but I can relate to quite a bit of the emotion and chaos myself!) So, tonight will consist of soup, hot tea, and a bubble bath with my essential oils, a good book, and a #PositiveEnergy chakra candle burning! #buddhism #christianity #faith #spiritjunkie #mindfulness #chakras #innerpeace #ghostboy #youngliving #essentialoils #chasinglife #rheum #chronicillness #autoimmune #immunedisorders #lupus #letitbe #livewell #lovelife #relax #health 22h

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Crema Hope For Juvenile Arthritis
hopeforja Have a story I wanted to share... A couple days ago I had a conversation with one of my friends who isn't affected by RA about my arthritis. After hearing me complain for a while about how annoyed I was about always getting sick and having to get shots every week, she asked me if I ever just wished for a "normal" day. At first my immediate response was to say "YES!" But after thinking about all I've been able to accomplish since my diagnosis, I don't think I would trade any of my challenging days for a "normal" day. I have found so many people who have been supportive through everything I have gone through and who have looked into ways to help me. I also have met kids with JRA who have gone through so much more than me but still continue to fight and put on a smile everyday. You guys are my real hero's:) Because of this I am thankful for my arthritis. I think so many kids who have JRA would say the same. Although it can be frustrating at times, I think we would all be a little shocked if we had a day go back to "normal" without having to worry about getting sick or going in for infusions or worrying about our next steroid injection. Arthritis can have its downsides, but it also has the potential to make us so much stronger!
Update on the boxes: HOPE should be sending out another round of boxes soon! Sorry for the delay. With both of the people running the organization being sick, there has been a delay in the shipments but more should come your way shortly. Also, if you sent an email over 3 months ago and haven't received a response please email us again. There are a couple people running the gmail account so sometimes emails get lost! Happy Tuesday! #JRA #hope #for #arthritis #cure #follow ##rheum #spoonie #iamthefaceofarthritis #kidsgetarthritistoo #happy #tuesday #ra #rawarrior
1d
  •   haaaannahh Couldn't have said it any better!! 1d
  •   carriemomof8kids You're amazing! Thanks for all you do and the inspiration you are to all!!! 18h
  •   pamsabattus You are truly AMAZING!!!! 15h

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laurenlovesyou2015 Drinking my greens to get me through this flare. Good nutrition is key when ill! Do you get your 8 servings of fruits and veggies everyday?? #nutrition #health #chronicillness #chronicallyawesome #spoonie #psoriasis #psoriaticarthritis #rheum #flare 1d

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Lo-fi My Chronic Disease Secret
mydiseasesecret "So sick of primary physician doctors who know less than I do about my RA" #chronicpain #arthritis #chronicdisease #rheum 1d

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ambshuck Well this bugger can come off. Brain MRI looked good; and neursurgeon said no #Chiari complications, thank goodness!! Now just have to figure out how to get my symptoms under control and go from there. Fingers crossed that my next Botox for Migraine injections and Cefaly headband will help, that the Relpax/Oxycodone/Zofran combo will keep any occurring migraines at bay, and that hypoallergenic bedding and a HEPA filter will help prevent allergen-related triggers! And also, maybe my Enbrel and some new supplements I've been trying will work for overall body aches and pain! I'm hoping that I can get back into the gym soon too, but can't see my new cardiologist for a couple of weeks. Friday I will try #Reiki and I'm hoping to get back into an acupuncture/massage/chiropractor routine again too. Having health problems sure gets to be costly! #rheum #rheumatoidarthritis #lupus #SLE #chronicpain #chronicillness #chronicmigraine #migraines #chiari #chiarimalformation #sjogrens #mctd #mixedconnectivetissuedisease #autoimmunelife #autoimmuneproblems #autoimmune #inflammatorydisease #invisibleillness #arthritisashley 1d
  •   intentionallyfitlife Oh my goodness hun, that's a lot on your plate. Prayers that everything goes well and that new meds/supplements help you. 1d
  •   ambshuck @elehad4 speaking of all of this - I'm going to really try to make it later. I'm exhausted from my day at UPMC but really want to come so I'm going to go rest and see how it feels. Please text me details, sounds fun! Love ya! 1d
  •   laro427 Holy moly! I hope you get some relief! I've got a Greens supplement that's been really good for a lot of people with different inflammatory things, from allergies to migraines, and arthritis. It definitely helped my Dad with some of the less than awesome side effects from Relpax. 😕 I'd love to send you some to try if you'd like. 1d
  •   ambshuck Do you sell It Works? Been there, done that. Greens sadly didn't help my situation but thank you! They do sure help a lot of people! Good to hear they've helped your father! @laro427 1d
  •   laro427 Sure do! I hope you find something that does help! All the inflammatory diseases are the pitts, seems like the solution is never the same for anyone either. Its tough! 1d
  •   elehad4 19h
  •   lymeworld 14h

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laurenlovesyou2015 Reducing prednisone dose but continuing for 2 more weeks... Because before the flare I wasn't feeling the greatest. 6 weeks to next visit. #flare #psoriasis #psoriaticarthritis #rheum #chronicillness #chronicallyawesome #spoonie 1d

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Normal Raising Awareness On Arthritis
fightarthritis I strongly believe in when your negative thoughts are on replay in your head, your body will end up to agreeing. Which is why you need to take the positive out of every situation and use it to your advantage. #thoughtoftheday #heeling #postivevibes 1d

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kirbir Where brain go? No can brain!

After my injection, it was suggested that I take one of my big girl pain pills, zohydro. Brain not coming back until like 8... which is bad because I have a meeting right away at 7am... that isn't quite done yet... so hooray.
2d

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jiffynerd Today's selfie brought to you in honor of my new specs. #chronicLife #rheum 2d

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wellvess Awesome news this morning: The Australasian Integrative Medicine Association (AIMA) is getting the word out about our arthritis program to their members 2d

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