164,617 Posts

  •   loren_hall I need a huge favor please! Please read and repost any of my recent instagram posts.. It's for a good cause and involves those that have Autism, Down Syndrome, Depression, and more.. Please help us create awareness and spread the word about this! 39min
  •   levi_not_diarfa Check out @slick_bartender 21min

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Normal Annemarie Stevens
  •   loren_hall I need a huge favor please! Please read and repost any of my recent instagram posts.. It's for a good cause and involves those that have Autism, Down Syndrome, Depression, and more.. Please help us create awareness and spread the word about this! 18min

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1h acovas
Normal Ana Margarida Covas
acovas Este cão acha que é um gato! This dog thinks he is as cat! #dog #iggymix #instadogs #rescue #rescuedog #dirtyclothes #laundry #sleep #basket #lupus #cozy #conffy 1h

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nikki85lynn Good days, not so good days.... 2h

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thewolfandme Got me a new lip gloss! This ones max factor glam shine with a hint of gold! Looks good and it smells like strawberries!! Weird old selfie this one haha love a good weirdo face!! Love to all and stay wrapped up warm it's freezing today!! #lupus #lupusawareness #chemo #chronicillness #invisibleillness #beauty #lipstick #lipgloss #selfie #wtf 2h

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Normal Megan Vincent

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Normal MCTD Support (Spoonies Unite!)
mctd_support Guess who has #trochantericbursitis? Yours truly. Two 80mg #methylprednisolone injections into each hip later and I'm feeling like I'm about to crawl out of my skin. And I scored an 80mg injection straight down the middle of my shoulder just for complaining. I'm not going to say a word next time about pain. #wired #hurting #wideawake #hAWngry #cray #justmakeitstop #teampajamas #spoonieproblems #spooniesunite #mctd #mctdsupport #mixedconnectivetissuedisease #mctdsucks #uctd #lupus #rheumatoidarthritis #sjogrens #scleroderma #polymyositis #raynauds #pulmonaryhypertension #pulmonaryfibrosis #fibromyalgia #ankylosingspondylitis #hashimotos #spoonie #chronicallyawesome 3h
  •   mctd_support I can't stop peeing. TMI, I know. Thanks, kidneys. 3h
  •   mbearof2 I have chronic pain over my hips and thighs but I have painful fatty lipomas under the skin #dercumsdisease 3h
  •   meeradollart Yes! RA 2h
  •   catsforever87 I've had those injections before... not so fun. Take it easy the next few days and I hope you get some relief quickly! 2h
  •   m_m_m_freire Holy crap. Ditto what @catsforever87 said. I've only had one in my shoulder. Never 3 at a time. I would a been all "huh uh. Where's my sleepy time meds, doc?" 1h

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karinaangelica__ Thank you lupus for waiting till after my baby left to give me 100% of you but UGH relax... This is what doctors say I have along with fibromyalgia and autoimmune anemia. I am 24 years old and was healthy till the age of 22. A lot of people don't know what is lupus. They also would never imagine I live in constant pain everyday, or that I'm even sick. Lupus along with other disease are invisible and kill you internally. Lupus can be terminal. Pray for a cure, or for those battling it get some relief. Tonight mines attacking everything from the neck down especially more in my stomach. :( Lord you are greater!! And better then anyone give me endurance to deal with this!! #lupustruth #lupuswarrior #lupusproblems #lupus #fibromyalgia #autoimmuneanemia #myGodisGreater 3h
  •   mjosie_42 WHERE CAN I FIND THIS TO ADD TO MY FACEBOOK PAGE I AM STRUGGLES MaryJoFinan@FACEBOOK.COM 2h
  •   x_stephanieemarie Kingston and I love you and hope you get some relief soon! 1h

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thewolfandme Today's socks are winter spots!! Finally finished my e book about dealing with a chronic illness as a young woman! Excited is an understatement!! Will be released for free download soon! Love you all #lupus #lupusawareness #chemo #chronicillness #invisibleillness #autoimmune #awareness #writer #book #socks #winter #cosy 3h
  •   thewolfandme Ah don't be worrying im a tough cookie! I have weekly injections and tablets mix of MTX and cytoxan (american name cannot spell the British name lol) @chellingtonboots it's a really rare treatment plan because I have too many autoimmune issues and it seems to work xx 2h
  •   thewolfandme Thank you sweetie @chicky_2209 2h
  •   chellingtonboots Omg im sorry you have to go through all of that theres me here moaning because I've to be admitted aha. My heart and spoons are all for you today @thewolfandme 2h
  •   thewolfandme No lovely lady we all go through the fight no one has it better or worse sweetie it's all relative! I'm happy because this mix keeps me out of hospital and my heart goes out to you because you have to go in!! Sending you a massive virtual hug!! 2h
  •   kirstygilboy Best sock collection I've seen 2h
  •   thewolfandme Well I know what to get you for presents @kirstygilboy 2h
  •   kirstygilboy Simple things for a simple soul 2h

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little_miss_lupie I WILL get my body back! I worked so hard to get to that point ️ and I hate that all my hard work goes down the drain with this almost week issue! | #lupie #lupus #goals #weightgain #canthelpit #struggle #b&w #iphone #flare #episodes #uclabound #upsetting #proud #commitment #vegasbody #marchmadness #motivation 3h

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chikkacrystal Having a suppressed immune system sucks, the simplest little cold has become a major pain in the ass! I just want to breathe & eat normal. #Lupus #MCTD 4h
  •   cindeezee_ Drink lemons grass tea. That's what julios been doing for his cold. 4h
  •   chikkacrystal I'm sending positive wishes his way! I have been drinking ginger tea, I def try lemon grass. My throat tightens shut at night & tea is the only thing that soothes. Aside from hydration for the fevers. 4h
  •   cindeezee_ Omg that's scary. 😬 hope you recover soon. And thanks!!! 4h
  •   hello_lizz Hope you feel better! Xoxoxo 3h
  •   lovelysusie1 Aww sorry hun, feel better soon. Big hugs. 3h
  •   vane_53 Hope you feel better tomorrow 3h
  •   olgahurtado @chikkacrystal I will see you Saturday my love! Sending hugs your way! 1h

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4h arzyan
Normal Norlian Mokhtar

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bahhb1540 Work, wrapping, more wrapping, cleaning a wee bit. It's been a tiring day #lupus #lupusproblems #lupie #spoonieproblems #wrapping #Christmas #presents #ilovewrapping #sometimes #happy #exhausted 4h

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howsefoundation #Seal
Lupus and scarring: Some of us get small, red, coin-shaped sores. These are caused by exposure to the sun's UV rays and are called subacute cutaneous lesions. They'll likely appear on your arms, shoulders, neck, or upper torso in patches, like psoriasis.

They don't cause scarring, but they can darken or lighten the skin where they appear.

The sores can get worse without treatment. They usually don't itch or hurt, but they can cause scarring. If this happens on your scalp, you may get patches of long-term baldness especially if left untreated.
See your #Dermatologists #lupus #itcouldbeyou #notthatrare
5h
  •   cocob_elieve It's called discoid lupus which is what I have. My scarring is similar but not too bad 4h
  •   howsefoundation @cocob_elieve Yes some may be coin-shaped (which are called discoid lupus). Or you may develop red, scaly patches or a red, ring-shaped rash, especially where your skin gets sun or other UV light. 4h
  •   cocob_elieve You are absolutely correct @howsefoundation . My skin gets a little red and I suffer from hair loss but I so grateful to be able to tell and share my story. Now that I'm done with my BS I am ready to give my all within the lupus family and organizations. 4h
  •   howsefoundation @cocob_elieve I'm looking forward to hearing from you!! 4h
  •   cocob_elieve Yes ma'am 4h

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Unknown Alexandra Moffett-Bateau
amoffettb I am so excited about my progress! As of Dec 30 I will be finished with the steroids. I went from 40mg daily, to now taking 10mg daily (next week it will be five mg) and I am already noticing a lot of changes in how my body is reacting.
Exhibit A: it is midnight and my face is not super swollen!
Now I really have to work on my diet and stop eating all the candy and junk food that crosses my path!
Onward and upward.
#lupus
5h

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