233,488 Posts

7min ifektiv
Earlybird I-'fek-tiv Lupus Support
ifektiv My thought today is "I would scare the public if I looked the way I feel" blessing or not, I'll take it #lupusawareness #knowlupus #Lsign #lupustruth #lupus #cure #lupussupport #mylifewithlupus #lupusawareness #spoonie #chronicliving #lupusproblems #lupieninja 7min

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mirabella.pittiesd Going to work with my dad today... All ready regretting this decision & we haven't even left the house. you would think after my AS, lupus, *&* fibro acting up yesterday from my 2.5 mile walk that I would rethink going to do construction today. Nope. I'm a smart one @oneredyesterday stop laughing at me. #bellatheSD #servicedog #workingdog #workingpittie #ptsd #anxietydisorder #spoonie #lupus #fibromyalgia #mirabella #manicdepression #bipolar #socialanxiety #pittie #dogsofinstagram #psychiatricalertdog #servicedogofinstagram #ptsdservicedog #chronicillness #pinkforpsychiatricalert #sdit #stilltraining #pinkforPASD #excoriation #skinpicking #autoimmune #fibro #butyoudontlooksick #anklyosingspondylitis #AS 21min
  •   mirabella.pittiesd Totally smart move. Haven't even left the house & my hip jolted out of place. This is going to be a long day 19min

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plexusbikinibody JLShaeffer says:

I started taking #plexusslim and #plexus Products 7 mths ago and I love them. I have had #fibromyalgia , #cfs , Chronic #migraines , #ibs , #depression /#anxiety , High #bloodpressure and #highcholesterol , #backpain and #kneepain for most of my life. I have gone to many, many #doctors and tried every kind of #medicine there is. When I first started taking Plexus Slim, I was on 12 different prescription medications plus over the counter meds. Within the first month I came off of 10 prescription medicines and feel the best I have felt in years. I have my life back again and I'm able to do things I haven't done in years. More #energy and #NoMorePain! It's a miracle in a bottle. Plexus Slim was designed for #Diabetics to lower and maintain #insulin levels and A1C and the only side effect is #WeightLoss. Can you believe that??? They have found that these products are helping with High Blood Pressure/#Cholesterol, #Lupus pain, MS Pain, and all other #Chronicpain. The products are all #natural, so they are safe to take with any medications. The doctors are promoting it now and some Insurance Co. are paying for it. I am just one testimony of the product but there are thousands more. Please check it out! http://bit.ly/plexusbikinibody

#fibromyalgia #fibromyalgiaawareness #chronicpain #pain #painfree #lupus
2h

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mstinasworld It's Tuesday! 22 pounds gone and I'm still hiding this thing in my scrub pants like a Colombian Drug Lord smuggling cocaine across the U.S. Border! Goes to show you that you can't target certain parts of your body! Chemo update I get a port placed today so I can stop getting IV sticks. One upside of chemo...no lupus flares! WINNING! Now on to work! Let's save some lives shall we. #lupie #lupus #lupusfighter #autoimmunedisease #chronicillness #chronicallyliving #rn #rnlife #nurse #nurselife #thickgirls #bbw #bigbootygirlsrockwithit 2h

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northshoresloth I made a cowl! it's so pretty and soft. I love it.
Apologies for the pale face. I feel like crap right now. Can barely get out of bed and when I do I am so breathless and cold and my blood pressure goes through the floor. It's been like this for nearly three weeks. Sorry for whinging. It's nothing compared to what some of our other spoonies are going through. Hugs and love to everyone
#cowl #crochet #gastroparesis #jejunostomy #jtube #sle #lupus #enteralfeeding #orthostatichypotension #pots #dysautonomia #chronicillness #invisibleillness #butyoudontlooksick
2h
  •   shaymcbam It is beautiful just like you darling. I hope you can stand to get out of bed soon without the awful symptoms xo love love 24min

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pa_pain_ambassador Who eats half a turkey sandwich in the middle of the night? Someone who's blood sugar needs food apparently! I'm grateful I can still eat , knowing many who can't with #gastroparesis but digestion is a whole different animal. #insulindependent #histersister #Lupus #RA #toomanytohashtag #wishIcouldeatmore #Iwanticecream 3h

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caughtapurplebutterfly Feeling alot better, though I have to wear alot of makeup my skin is starting to get better from my flare up! ^.^ ive been super busy making cosplays so prepare yourself for many new cosplay pictures!! #lupuswarrior #lupus #sle #spoonie #chronicillness #autoimmunedisease 3h

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jesanilimousine Hey how are you! It's already June in 2015 and I've been on a new journey since the start of the year. This journey has allowed me to make over 130 actual friends, feed more than 420 homeless and hungry individuals, I also stand and supported Crohn's disease. Life is happening now* for me so my movements are purposely for the uplifting and healing of others. I also learned how to ask for help where it's needed. My movement has me very connected to individuals who have been diagnosed with Lupus. And I'm currently raising at lease $500 to help find the Cure for this auto immune disease. People are suffering. And WE get to change that. I ask that you stand with me. As I already stand for the Cure for Lupus. I ask for your donation of at least $1.00 to save a life . Together we can stop the struggles, end the pain and help people live. Thank you.
gofundme.com/CureLupus4All Respectfully,
Jequan Henry
P.s I woke up this morning and said "I'm going to do something I've never done before that's going to positively touch and gracefully change the life of others." gofundme.com/CureLupus4All
4h

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  •   tea_spoonie93 I'm having the same issue! Antibiotics won't clear it n I get cystitis every single month hope you get some snswers! 3h
  •   tea_spoonie93 Answers* 3h
  •   azcbd "my25" gets you 25% off our site. 15min

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lindalupie When I initially became #sick, there were many people who supported me. But when I became #ill -- and stayed ill for a long time -- I suddenly found myself very much #alone. The devastating #loneliness crushed me as much as my #illness did.

For over a year, I was too sick to maintain communications, incapable of reaching out or even give updates. But I had to wonder what everyone else's reasons were for not finding out what was going on with me? I was near literally death, not for a day, or a week, but for months. MONTHS!
My illness went beyond bringing flowers; it demanded real care in terms of pushing my wheelchair or feeding me bedside. So what happened to the friends, co-workers, relatives with whom I spent many days and may years with? Maybe it was too much. Maybe they cared too much. Maybe they felt #helpless. Maybe they didn't know what to say. Maybe it made them uncomfortable. Maybe they just didn't care enough. Maybe they were too busy with their life. Maybe . . . maybe . . . I just don't know.
#Recovery takes a long time. For me, I will never be well. As long as I am, I will always be sick. Even now, there are many who do not know what to say to me. Some don't say anything at all. I honestly don't know what I would want to hear. I know that with the people who are able to break through, it's rarely what they say but how they say what they say and how they listen to me. They ask me questions, listen with genuine concern and respond in ways that makes me feel heard. It doesn't take much I think, in the end, it's just #love and #empathy. More on my blog, website in profile, www.lupieliving.com #lupus #fibromyalgia #neuropathy #hypothyroid #thyroidcancer #raynauds #IBS #FGID #invisibleillness #chronicillness #autoimmunedisease #emilymcdowell
6h
  •   afitfashionista So well said. I agree with every word. 5h
  •   fearless785xy Looks so good 5h
  •   txgirlwaworld Illness has a way of revealing who truly cares. I truly believe it's because those who have never experienced chronic illness don't "get it". There are those rare people who love you enough to try to understand and meet you where you're at, but the majority seem to fade into the background. 5h
  •   healingyogi So true. Most people just don't know what to do or say, so they avoid you. At least we have our IG friends who empathize and show support. 5h

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takkini Серпуховский район, по дороге в #Поленово раскинулись шикарные #люпиновыеполя. Можно еще назвать - волчье поле. Звучит грубо, но когда-то из люпинов готовили отвар, который якобы мог обернуть человека в волка #люпины #lupus #солнце #тепло #краски #природа #photo #sun #nature #доброеутро #art #beautiful #instagood #photooftheday #color #exposure #composition #moment #travel #дон #россия #russianalma #wu_russia #mytravelgram #mtgang 6h
  •   _kt_9 OMG! Потрясающая красотища! 5h
  •   _dodger80_ Похоже на лавандовое поле в Тоскане) 4h
  •   mixedbatman Hello there! Please download Journey-A Positive Social network from the app store. We have created an app that can change the world by allowing those with disabilities and more connect with one another on their own social media app and tell their journey. 4h
  •   takkini @_dodger80_ все у нас слизали, в России травы и цветуёчков на всех хватит 3h
  •   bayubettencourt Wowww... So beautiful!!! 3h

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cortezliza I've been under the influence of some strong emotions lately, I tend to wander in my doodles. Reality can sometimes be too much to bare. One thing is for sure humans are very fearful. I think it's the one thing that stops us the most from discovering are full potential. I know myself well enough to know that i can't do it alone. #helplord #healmyparents #trust #lupus #family #fear #anxiety #depression #fearnotforiamwithyou #monkey #scetchycharacters 7h

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99coconutz My heart and soul. #2010 before I got sick. I was so unhappy at the time. Marriage and stress took a toll on my body. Now, I'm not where I want to be yet. #mylife #myson #oneproudmama #ilovehimmorethanlife #mylilfamily #thisisallineed #fitmom #gym #gymlife #health #gettingbacktobasic #lupus #livingwithlupus 7h

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thislupuslife There are days and months in this life that my grandmother's #ring would slip off if I were reckless enough to wear it. The larger part of my days involve joint and #rheumatoidarthritis #inflammation enough that the ring fits. Alas with the fickle #Perth weather there are also times like now when the only reason it is on my finger is because it cannot come off. While costume #jewellery is easily interchangeable, #heirlooms and #oneofakind symbols of #love are not. Not a task I envy for the one who wants to 'put a ring on it'#swelling #Lupus #sle #SystemicLupusErythematosus #Arthritis #rheumatism 8h
  •   imaniomusic @thislupuslife I understand exactly what you are talking about. The mornings can be the worse for me when it comes to swelling, nearer menstrual cycles and whenever I notice my intake in daily sodium and fatty foods has increased. During those times I notice my RA gets worse and fibromyalgia flares appear along with many other symptoms of lupus. I've recently learned that CBD which is a natural healing component of hemp and can be extracted in its pure form to help fight against inflammation. Researchers have found that CBD's genetic makeup fights all symptoms of lupus because CBD is a natural anti inflammatory. I've been using CBD oil from Kannaway to help fight my lupus for about 8 weeks now while not taking any other medication (it is risky to stop taking your medicine without a doctor's consent) but I've found relief with this all natural product. And what I'm most excited about is that my hair is gorgeous again! No bald spots! I hate to jinx myself but I can't sit back after finding a great thing and not share it with someone else. Hope you find relief. kannaway.com/3449732 #livingwithlupus #lupus #healthyliving #love #life #prosperity #kannaway 41min

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