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Video Jo Southall
purlbeadsjo Gymnastics stats:
1hr25mins
Average HR 114bpm
Max HR 151bpm

Just 4 dislocations this session. Left shoulder, right ankle and both wrists.
1h

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littlenanamonkey Saw the physiotherapist again today, my core is much stronger, have more exercises to add in, including trying to learn to keep my elbows the right way round!! Pretty much going to be doing these exercises for life but at least it should give me killer muscles lol outside of that is just bleurgh depression sucks ass! #me #myface #pale #blueeyed #ginger #gingergirls #hms #hypermobilitysyndrome #jointhypermobility #hypermobility #hypermobile #EDS #EDSHT #spoonie #spoonieproblems #chronicpain #mylife #personal 4h

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Normal Vanessa @ ITLT Blog
itsthelittlethingsblog So today while visiting the Rheumatologist for L i discovered the things I can do which are fine to me are apparently not normal! Seems my joints are as hypermobile as the girls.
#eds #hypermobile
11h

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aliceisgettingbetter After years of confusion and painful dislocations, last year I got diagnosed with Ehlers-Danlos Syndrome. It was such a relief to know why I was different and what I could expect in the future. But even doctors ask what it is sometimes so i thought I'd share this to spread awareness.
#eds #ehlersdanlossyndrome #geneticdisorder #dislocations #diagnosed #awareness #edsawareness #edfam #anafam #edsoldier #anasoldier #hypermobile
17h

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strengthflexibilityhealtheds It's almost done! The #OurStoriesOfStrength - #LivingWithEDS anthology! But ... We need help! We are wanting to include a few more stories, poems or photo essays from kids & teens living with #EhlersDanlosSyndrome and who have found ways to persevere. I've seen, read and heard so many "stories of strength" and would love to include them! Need help or want questions to help you? Email us! submissions@ourstoriesofstrength.com or just comment below. You can read more about this project & other titles that we are accepting submissions for, by going to: www.ourstoriesofstrength.com. You can find us on FB too! I'm tagging a few I know who have great stories to share. @jesse_zeitler @tizza_claire_x #LiveEDSStrong #Just5Minutes #Stronger2gether #strength #strong #ChronicIllness #ChronicPain #chronicfatigue #EDSstrong #EDSWarrior #fighter #ehlersdanlos #EDS #HMS #Disability #Hypermobile #flexible #Justkeepmoving #persevere #Fibro #FibroStrong #POTS #invisibleillness #instagood #hope #faith #believe 1d
  •   strengthflexibilityhealtheds @drbri1111 - got it! Will email you. ;) 1d
  •   strengthflexibilityhealtheds @drbri1111 - so thought you sent an email. Clearly didn't pay attention. 1d
  •   drbri1111 @strengthflexibilityhealtheds not yet but will do soon, this is awesome!! : ) Let's chat! 23h
  •   drbri1111 @beccaerin7 : ) 23h
  •   strengthflexibilityhealtheds @drbri1111 - would love to, but just so you know... It's a short turn-around (latest by this Fridayc April 3rd), because we are actually getting ready to put book together to publish by May 1st. It's been a project for about 6months now and we hit our target goal of submissions, but are still waiting on a few, would like to include more kids & teens stories and I also feel strongly about making sure I reach-out to everyone who has been part of my journey in many ways. And so much of my own journey is about "meeting" people via IG, etc. and of course, people I've met through the EDNF helpline and just through life. Everyone I've met, including you, is why I had this idea of the first place and then brought it up to Mysti, because she had already written a book on EDS. We have announced that the next titles in the series are about POTS and Fibro, but there will be another book on EDS after this one and various other chronic illnesses. So, if it's too short notice, I understand. We can just take your story and anyone else's for the 2nd EDS edition. We also have accepted photo essays, artwork, poems .. Anything that shares a person's story and how he/she has found strength, hope and ability to persevere. We do have questions we can email also and some people have been just answering them and then sending it in. Either Mysti or I will edit it into story form or keep as just like a q&a session for the book. We send the edited back version for approval and once approved, we send a publishing contract, which needs to be signed and each person who submits gets to choose either $25 or 2 copies of the book. I would love to talk more about it with you, but I do understand that it's a quick turnaround. We can always talk about the next one or other titles coming up. ;) 23h
  •   mystiedsauthor @jacquelinevankuilenburg YOU are amazing! 2h

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bracken1989 Chilling out before work. Love a selfie sick looks like me #selfie #sick #sickselfie #sicklookslikeme #eds #EhlersDanlosSyndrome #hypermobile #heds #ibs 1d

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chronic_health This was definitely me yesterday. 2d

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chronically_abbie Tea helps everything๏ธ|| I'm not doing good at all everything seems to be having one huge flare,my chondrunitis is terrible atm and I'm really struggling to breath without serve pain,I'm also experiencing hot flushes so I put on a night gown to cool me off,I'm going down the doctors Tuesday morning for a splint for my thumb and wrist as they are constantly dislocating and it's super painful I'm hoping I feel abit more better by Friday as I'm going to see olly murs and going for a meal with my older sister brother and his girlfriend! #fibromyalgia#chronicpain#chronicpainsyndrome#scoliosis#hypermobilty#hypermobile#sleepapnea#sleepparalysis#disloacted#dislocation#IBS#POTS#chondritis 2d

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ecofluffymama Love my ring splint. Has been a life saver by supporting my worst finger and stopping it bending back on itself which was very painful. Need to buy a couple more when money allows. #hypermobile 2d
  •   ruthjaymce My sister uses a ring splint too and loves it x 2d
  •   ecofluffymama I need to, my finger bends back so much and it's agony. I need splints on another two fingers, really. The others aren't as bendy atm so hoping they stay that way. My knees do this, too. @ruthjaymce does she use silver ones? Wish I could get them cheaper! Xx 2d
  •   ruthjaymce I think she does but not 100% I know she gets them from the States x 2d

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chronic_health Before strictly ballroom last weekend. Been paying for that one night out this whole week. Boo. 3d

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alopeciadiaries We all have hurdles to over come in life, and no matter how tough things are we must keep reminding ourselves we are not alone!... From having this Instagram page I know that I am not alone with alopecia and nether are you!... Right now I am struggling with other serious health conditions and unfortunately I am feeling alone with elhers danlos syndrome and psychogenic non epileptic seizure as they aren't well known at all! No matter what the stiffly is that you face we should always know we aren't alone! #alopecia #elhersdanlossyndrome #EDS #dislocations #pain #chronicillness #rarediseases #pnes #nonepilepticseizures #seizure #fit #hypermobile #hypermobility 4d

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swkayl Been a rocky road with this little beauty! We never knew when she would walk, or even how, so this makes me the proudest person in the world right now #notslimmingworld #baby #toddler #walking #hypermobile 4d

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becca_nails Bit of a weird picture but i always thought this was normal well it was for me but since my knee subluxation twice ive been put up for physio and insoles (which ive gotta have ) sound like an old codger!!! Also being looked into is #hypermobile #hypermobility #eds
Anyone who suffers how to you live your life day to day?!? Xxx
4d

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