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ehlersdanlosuk "EDS-HT is still a rather painful part of my life. But I'm not some one who can let it get in the way all the time.

In August 2014 I had an operation on my hip to fix the socket, remove a lump which had formed and also have a diamond cut into my tendon to stop it painfully snapping against the bone. After I had the operation it made such a positive impact on my mobility and walking that I decided my goal was to be a normal and active teenager again like I had once been at 12 years old when I was just very flexible if a somewhat sore little gymnast.

My auntie who I have lived with for almost 2 years now is a fitness instructor and Personal Trainer and she was the one to suggest I considered a career in fitness. She had asked me before back in 2014 but I was to nervous due to my EDS and POTS. I would look at her and think "I'm no way capable of doing that, I'll probably snap a bone or sublux and dislocate?!" She would then tell me that anything was possible as long as i just believed and because I trust her with my whole heart I did just that.

I started doing her fitness and Dance Aerobics classes, walking her little Westies in the park and taking part in Effective Self Protection classes. Our trainer also told me to believe in myself and like my auntie I trust him too.Then in December 2015 both my auntie and I decided i was strong enough to sign up for the Zumba Instructor course and on the 15th January 2016 I stood in the lobby of the Southbank Club in London ready to start what I knew would be a pretty awesome adventure.

After almost 6 hours I was in pain from top to bottom and my legs were almost collapsing but I was just relieved that I had managed to make it though the class without injury.Then the instructor told me I had passed and it was like floating on a cloud, but I haven't stopped at Zumba..... I go Snowboarding, I returned to gymnastics and I am currently studying for my Level 2 Exercise to Music Instructor qualification in March 2016.
12h

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strengthflexibilityhealtheds Exciting announcements coming! Have you signed up for our newsletter? If not, go to: www.strengthflexibilityhealtheds.com or www.wellapalooza.com & subscribe! Our 1st newsletter is coming out in the next day, followed by email announcements and a newsletter 2x a month. There were some website issues yesterday, but they seemed to be figured out. If you have problems, please let me know! @Wellapalooza @hypermobileyogi @just5_minutes @edswellness #InvisibleStrength #Just5Minutes #Stronger2Gether #Fitfam #Fitmom #spoonie #ehlersdanlos #hbloggers #HealthEd #MedEd #healthcoach #genetics #chronicpain #Gratitude #hope #medicalzebra #fighter #LiveLifeHappy #LiveEDSStrong #Motivation #MCAS #Namaste #TheSweatLife #Nutrition #yogaeverydamnday #hypermobile #doublejointed #LiveEveryDayBetter 20h

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aroberts724 My workouts are done in my bare feet, because for me since I have laxity it helps me pinpoint if my feet are in the right position. May be weird but it works for me. What works for you shoes or no shoes? (Not working out so this is not my proper form I'd usually use)

#savedbyfitness #fitnessinspiration #accountability #ificanyoucan #getitdone #goal #goaldigger #fitmomlife #accountability #noexcuses #justdoit #onlinecoaching #fitness #iwantresults #support #inspiration #support #polar #onaquest #fitness #momswholift #shelifts #healthyeats #cleaneating #ihavelaxity #laxity #hypermobile #hypermobilitysucks #laxitysucks #iwillconquerit
23h

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jacs_journey I knew my doctor was going to be scheduling surgery today. I wasn't planning on getting a cast. Cast life sucks! I'm not allowed to do anything but lay in bed with it elevated until surgery on Tuesday. I'm angry and depressed. He put the cast on because he knows I'm an idiot and I won't stay off of it otherwise. I hate not being able to workout or go to the gym...so I'm just gonna lay in bed and be depressed for the next 4 days. #FML #killmenow #uncomfortableinmyownskin #depression #recovery #relapse #bulimia #bulimiarecovery #exercisebulimia #PTSD #ADHD #adultswitheds #EDS #ehlersdanlossyndrome #hypermobile #jointhypermobilitysyndrome #spoonie #notenoughspoons #imanidiot #isuckatlife #iquitlife #learninghowtocope #mybodyhatesme 1d
  •   lifeofleana Sorry to hear that at least it's a pretty shade of purple 24h
  •   jacs_journey @lifeofleana purple and lime green are my favorite colors. They're cutting this cast off on Tuesday, for surgery, then putting another one on after the stitches come out. So the next one is going to be green. 23h
  •   lifeofleana I hope the surgery goes okay🏻 the green cast should brighten up your day a little bit 23h

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gpfighter1234 Hey everyone
I'm so sorry I haven't been on Instagram in a while, I've just been so exhausted recently.
•••••••••••••••••••••••••••••••••
I've had quite a few appointments this week. On Monday I had an appointment with my home health care nurse, Tuesday was physio and yesterday was at the hospital with my therapist.
All the appointments went very well🏻
On Monday I just had to get my pressure on my CPAP machine turned up. Physio went wonderful as always. I'm honestly so thankful for everything my physiotherapist does for me & at my appointment yesterday we have started CBT for my pain🏻
Anyways, I hope you all are doing well!!
2d

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cara.pgh.yoga THANK YOU WILL @pittsburghchiropractic most days I keep the people OUT of the pain but sometimes I'm the one deep IN the pain. Not only did you see me immediately you used several methods to get me out of acute phase. #electricalmusclestimulation #activereleasetechnique #massage #chiropractic #kinesiologytape #rocktape PLUS you refreshed me on the necessary exercises to strengthen this #hypermobile chick. Hell yes!! Grateful for you, yet another fantastic IG connection! !!! Thanks for reaching out a while back. 2d

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miss_soyabean Just got back from a 5.5K # run in the #freezing cold round #teddington, so a #selfie is justified! Wearing @newbalance skin, @ronhill top, @sweatybetty tights, @nike #running socks and @asicseurope GT2000 v4 stability #trainers. Proving that #exercise, #training and a #healthy active lifestyle is the best way to manage #eds #hypermobility. Having #hypermobile joints doesnt mean you shouldn't move them!! And yes, I have an #eastenders esque #London map in my hallway!
#fitness #cardio #girlswhotrain #girlswhorun #parkrun #betterforit #wellness #philosophy #fitfam #fitspiration #strongnotskinny #fitspo #instapic #fitnessjourney #strong #runner #motivation
2d

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edswellness Exciting announcements coming! Have you signed up for our newsletter? If not, go to: www.strengthflexibilityhealtheds.com or www.wellapalooza.com & subscribe! Our 1st newsletter is coming out in the next day, followed by email announcements and a newsletter 2x a month. @Wellapalooza @OurStoriesOfStrength @strengthflexibilityhealtheds #Stronger2Gether #InvisibleStrength #Just5Minutes #spoonie #ehlersdanlos #hbloggers #HealthEd #MedEd #healthcare #genetics #chronicpain #connectivetissuedisorder #hope #medicalzebra #fighter #LiveEDSStrong #LivingwithEDS #Motivation #MCAS #HEDS #CEDS #VEDS #followtheclues #hypermobile #doublejointed #collagen 2d

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graciegallows Ehlers Danlos, POTS, Chiari, Chronic Migraine, Degenerative Disc, Ulcerative Colitis- they're all disorders/illnesses I battle that are considered invisible, but they're really not. Both these pictures are of me taken with no filter. The difference is the one on the left is taken during a flare up. This is the side you don't see. People with invisible illnesses don't fake being sick, they fake being well. As hard as sharing this image is for me, I can only hope it will help bring further awareness. 3d

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j.heyneker Wishing I was in #gdynia #poland with @modemagdalena but I'm not. I'm in Standsted Arrivals waiting in a massive queue. #travel #hypermobile 3d

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