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chelleford Today marks 9 years since being diagnosed with Paraganglioma. I don't have a cancer-free date to celebrate, so we celebrate the fact that I've made it 9 years with this disease. Here's to another 9 years. 11h

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12h spraypal
Normal Spray Pal CD Splatter Shield
spraypal Here's how breakfast went this morning. He's still not too sure about those shady crackers, so he's decided it's much more fun to feed them to the dog. #minispraypal 2.0 #preemieproblems 12h

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thetattooedtype A seriously sad and emotional update about our Dottie girl. {Link in profile.} #babygirlbogus #panhypopit #specialneeds #gtube #gofundme #dottieupdate #dorothyishome #atx #nicugrad #dellchildrens #dcmc 1d
  •   thathaligirl_84 Her sweet face hoping y'all find comfort in this time! She's the strongest little girl I know! 1d
  •   thetattooedtype @thathaligirl_84 thanks so much! She's pretty much a super hero in my book at this point. I'm hoping we will have even more answers within the next few months. It feels like getting these tests to begin with takes forever and I just want to know what we're looking at. Her pedi has been very open and upfront with me about her concerns, but me actually coming to terms and understanding what she's saying in my heart, are two different things 1d

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jendiggitydirt So I bought some 100cc syringes and was so excited because that's 40cc over our normal big syringe. It was too hard to push thick blends, though. BUT, nestled inside the plunger were these tips to allow you to administer right to the g-tube without using the long extension tube that normally hangs off and is a pain in the ass. Just in time, too, because Ollie has been refusing to use the tube and wants everything by mouth! Unfortunately, he's not getting enough into his mouth to meet his caloric needs. The compromise is to let me sneak in a little extra right to his button as long as I keep the extension tube away from him. Anyway, it's worth the cost of the big syringe just to get this handy tip you can pop into your 60cc syringes. I made sure to get their # in the photo for you #tubefeeding #feedingtube #blenderizeddiet #gtube 2d

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projectsloopy Anyone need formula??!? Tag anyone you know that needs Peptamen unflavored or Peptamen Prebio 1.5 Vanilla. #specialneeds #sn #tubie #gtube #jtube #feedingtube #peptamen 2d
  •   sassypants513 Do you guys by chance have any donated youth medical diapers? I applied for them but the Pharmacey is 2 hrs away so they are shipping them but I have no clue when they should be coming :( in the meantime I have to use size 6 huggies and they are just so small for my little guy 1d
  •   mskatekeen @sassypants513 what size & weight? 1d
  •   sassypants513 @mskatekeen he is 40lbs not sure if they come in s? 1d
  •   bellos_adventures Do you ever get Pediasure? Adam was just told today he needs Pediasure @projectsloopy 5h

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Normal Melanie Russcher
teamrusscher #inselly #teamrusscher #custom #tubie #gtube #fundraiser connection wrap, you choose print! $3 teamrusscher.etsy.com 2d

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optimisticwarriors Okay I felt like if I told my story maybe it would inspire someone else to share theirs! -
My story is VERY long as it may take more than one comment box! Please read it all! Thanks x
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So I was born like everyone else. Normal, 5 pound baby into the new world with a loving mother, father, and brother. A few weeks after I was born my mother thought I was sick. I kept getting worse. I was brought to the hospital and I had one pneumonia and #Torticollis . After having pneumonia I developed asthma. (Very bad asthma) I had to begin physical therapy for my tortocollis and I still slightly have it. 2 years later my mom had twin boys. 3 years after that she had a set of triplets (two girls & a boy) we had found out that the triplet boy had Cerebral Palsy and an eating disorder where he wouldn't eat at all. He starred physical therapy & got surgery to get a #gtube . He got a walker, ramp, wheel chair, ect. When I was 9, my mom had another baby. The month of my 9th birthday, my dad died. It was tragic and very saddening. A year later, I was diagnosed with #Hypothyroidism . I was 10 years old and didn't understand why I ate no junk food and gained so much weight! I didn't understand why I was tired or had such dry skin! I had started to tell some of my friends about my Thyroid Disease and they all said I was a liar. So, I started keeping the medical summaries to show them as proof. After a year of constant blood testing, symptoms, and having to keep changing pill dosages, finally i went to see an endocrinologist. She seemed very nice and re-diagnosed me with #HashimotosThyroiditis which is actually worse than the first one! This one is autoimmune, invisible (I look fine other than weight gain) and chronic. I had to get a blood test shortly after that and the results were bad! 🏻The dosage of meds upped again! I took a blood test a few weeks later and they turned up okay! In a week I have another appointment with my endo! And my brother got back surgery February 2nd so he can hopefully walk some day (with loads of physical therapy!) he is still currently in rehab and idk when he's getting out. He's 7 now and I'm 13. More in comments below
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  •   optimisticwarriors lately I've been really down and I guess depressed. Just a lot going on. Thanks for reading my story!!please kik me yours! :) 2d
  •   herazee Add me on fb? :) 2d

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rylierae27 🏻THE BAD NEWS🏻
🏻
Tomorrow I'll be getting cleaned out for some scopes on Monday along with the scopes I will be getting an Micky Button place into my small intestine to help me gain weight and all that un-fun stuff, if you someone you know who has a Micky Button or G tube please leave a comment below🏼 I'm kinda nervous but I know God's with me and he's gonna protect me! Anyone who knows my number or kik you're more than welcome to text me as I will be bored and married to the toilet, #ToiletLove. Thank you guys so much for the support, seriously It means so freaking much to me btw I'll post more funny pics or me with meh tube #FeedingTube #Crohns #MickyButton #GTube I'll post more pics of meh with meh tube when this hits 20 likes😕
2d

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certified_sco #teamchace is weekend ready 😎 04 || 18 || 15 tag and baby or kid thats fly like this.... 2d

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nissarae13 http://www.gofundme.com/4t7h6c. ... Even just sharing on your social media can help greatly. Both boys had muscle issues that make it difficult to walk long distances (even short ones), getting one push chair would be amazing for both of them to use when needed. #trisomyfamilies #trisomyawareness #trisomy #MT16 #MosaicTrisomy16 #autism #AutisticWonder #Aspergers #ASD #RussellSilverSyndrome #RSS #growthdisorder #DandyWalker #Polymicrogyria #CleftPalate #kidneydisease #feedingtubeawareness #feedingtube #gtube #tubiekid #tubielife #SuperNathan #TheBoyWhoLived #toomanyhealthissues #fundraiser #needhelp 3d

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hannahlilyrose ATTENTION TUBIES! I just created this awesome vent bag cover/holder! I was tired of people being able to see my vent bag and having my bag hang and pull on my tube when I'm connected so I decided to create a more fashionable and comfortable way to vent. I have a few varieties of stylish fabric so if you would like me to make you one of these, shoot me a DM and we can discuss what you'd like and pricing ️ I hope my nifty creation helps my fellow tubies! #tubie #gjtube #gtube #pegtube #feedingtube #tubecute #gastroparesis #spoonie #spooniestyle #spoonielife #HospitalGlam 3d

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