6,063 Posts

recoveringveggiehead Again. They won't help me! Absolutely exhausted and livid. I can't keep doing this.. #gp #gastroparesis #chronicillness #spoonie #anorexia #anorexiarecovery #recovery #realcovery #chronicnausea #flareup 4h
  •   chronically.amazing I hate hospitals because they do not listen. Don't let those nurses/doctors run over you. Tell them what you need & make sure you get proper treatment. Good luck to you. Sending prayers 3h
  •   healthzygirl love your posts 3h
  •   victoriagrovich I'm so sorry. Stay strong 44min

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recoveringveggiehead TRIGGER WARNING

Okay. My gp didn't allow me to keep it down. I don't know what to do.
Side note: this pain med is heavy. #vomiting #gp #gastroparesis #chronicillness #spoonie #anorexia #anorexiarecovery #recovery #realcovery #chronicnausea #mealplan #flareup #medication #bipolardisorder
1d

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frombabybottlestobarbells 64 days ... 1536 hours ... Did you know that I suffer from Ulcerative Colitis?

Living with chronic illness is exhausting, terrifying and sometimes isolating .. Today marks 64 days since my last #Flareup and I'm soo proud to say I'm down to taking only one medication a day !! I'm doing so good and I'm so thankful to finally be me to say that
It's not been easy!
My diet is great
I'm drinking my Shakeology
I'm sleeping great
I've got a great exercise routine
I'm positive & these all seem to be truly helping !

My disease is stable and under control
WAHOO !! #alone #chronicillness #digestivehealthissues #digestion #medications #medicine #dailystruggle #ulcerativecollitis #collitis #ibd #inflammation
1d

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itsbrittny Hey #spoonies, I want to know how your #invisibleillness has effected your mental health. Would any of you be interested in blogging about it for @openoureyesorg? Particularly #endosisters this month for #Endometriosis Awareness Month. Let's end the #butyoudontlooksick by talking/educating others. If you are open to share your story, email me: brittny@openoureyes.org. 1d

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my.chronic.diary #HomeMade Lemon Sugar Scrub. So quick and easy! 🍋🍋🍋 --------------------------------------------- You'll need 1/2 fresh lemon
1/2 cup of granulated sugar
1 tbls of olive oil -------------------------------------------------
Juice the lemon, add to the olive oil and mix. Whisk into that the sugar, you can add more or less depending on your preferred consistency... It's that easy! --------------------------------------------------Exfoliating will increase blood flow and circulation, especially important with those suffering #hypermobilitySyndrome #eds3 and #fibromyalgia The lemon is an awesome summer scent too ️️️so refreshing 🍋🍋🍋 Give it a try! xx
1d

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live4summer Shots! Shots! Shot-shot-sh-shots! Everybody!! It's Simponi day, which means I just gave myself two needles, all by myself, like a big girl. If these work properly, I'll feel 100% again in a month! Which is just in time for me to go get my stinking gallbladder removed. What a month! #Simponi #UC #ulcerativecolitis #sicklady #sick #ibd #ihopeitactuallymakesmebetter #wishmeluck #positiveoutcomesonly #needles #shots #notthealcohol #flareup #flareproblems #colitisproblems #guineapig #drugtester #stayingpositive #tummytroubles #ouch #️ 1d
  •   salmona89 I'm on Simponi too :D since Decembre.. but I did one agressif flair-up in February. Now i'm on Simponi and Clipper (corticosteroids) too, and I'm doing/feeling supergreat :D I wish you the best and a lot of strength. Never forget you're (we're) a superwoman!! 21h

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Normal Nicholas Santos In Los Angeles
mrcustom One of my favorite parts of knife making is playing with fire, I mean heat treating....up until I lose an eyebrow.... February 4, 2015 1d

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  •   whats_vtec Bangkok is your cheapest option but often times if you need something done medically bad enough they will perform surgery at the expense of being in debt to a point that questionable only filing for bankruptcy will fix. 1d
  •   katers1963 XO so so so sorry for your situation hugs and positive energy to you xo 17h

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my.chronic.diary This past week I've been using #NSpa face products, love them so far! They smell really fresh and remove all traces of makeup, these came in a set £10 for the lot, including a Muslim face cloth! Great value for money, I got mine from Asda of all places! =================================Definitely worth trying and it's so important to be kind to yourself, especially when suffering with #chronicillness 2d

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conqueringeds So it's going to be one of those days kids...#flareup #purpleleg #bloodpooling #pots #posturalorthostatictachycardiasyndrome #spoonie #stress cant wait until my job is over! Writing three proposals, end of month closing the books, tax season, training my replacements, taking a tool a me! #help! I got this! #warrior #itsthefinalcountdown #dowork #snowday I need my #juice and clearly some #medication! #igdaily #followme #myjourney 2d

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picturesofpatches Perfect breakfast. Very well cooked spring onions, smoked ham and scrambled eggs :) not too much fibre not toooo unhealthy and very yummy! #crohnsgirl #crohnsfighter #spoonie #SpoonieIssues #diet #yum #flareup 2d

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my.chronic.diary Here's my gift guide for #MothersDay this year, I'd love all of these please!! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Fresh Pearl Initial Bracelet, this is so pretty! £25 available at Not On The Highstreet.com ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ I love this cute CatWalk Cup & Saucer by Ulster Weavers.com at £12 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Yankee Candle have the most amazing scented gifts and their burners and candles last for ages! This is £7.99 at the moment from Temptation Gifts ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Finally, the one I love the most! Favourite Lyrics Print £15 Also from - Not On The Highstreet.com 2d

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Normal Laurennn___ :)
mizzlozy Very much alive right now. Stupid Gut. Fuck you intestinal Inflammation, ulceration and strictures. You do me no good.
#Crohnsdisease #Flareup #Arealfighter
2d

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natalie_chavarria Everyone is beautiful when they have makeup on. But take off the makeup. Take off the fake smiles. Take off the clothes and show your true self to the World. This is my True Self..........
Severe Pain. Discomfort. Sleepy. Sick. Horrible Flare. Severe Migraine. Sore Throat. Joint Pain. And muscle spasms or jerks that are taking control of my body.
If I could change one thing in my Life it would be "how much I've allowed this illness to take over my Joy". This is not Joy! Sorry if I scare most of you but it was time for you all to see what my life is Truly all about......it's been a long time. #iamnotAfraidoftheTruth #sisterhoodoftheTravelingflare
2d
  •   karenlaw44 @natalie_chavarria I have the same concerns because I have just spend a fortune putting my oldest through University and am left with debt. My youngest will be going in the next year, so I hear the concerns. In Canada, the LTD disability is difficult to get and had insurance through work and thankful that my MD worked hard on my forms and clinical notes. In Canada we have to pay into the pension plan, employment insurance, and income tax which is quite high in Canada. The only deductions when on disability is the income tax because I am not working, the others do not apply but will affect my Canada pension plan down the road but am investigating into my nurses pension that I was contributing to as I think there is insurance on that and they will contribute. I am very fortunate that I worked where I did because my other jobs I would be out of luck so God has provided for me. The bottom line is the plan pays 70% of my gross pay but because I am not paying into the other deduction, my pay monthly pay ends up being the same as what I made when I worked. Hope this helps. I hope you are feeling better. 1d
  •   miriampinon Have you tried doTerra oils?? 1d
  •   natalie_chavarria @miriampinon I use Young Living Oils😀 24h
  •   natalie_chavarria @julesinky78 Thank you so much dear. I'm slowly getting my body back. Lol 24h
  •   natalie_chavarria @karenlaw44 No that totally confused me but thank you anyway 24h
  •   natalie_chavarria @beardreyer Yep. A miracle drug!!!!! Thanks dear. Hope you Guys feel better soon too. I know it's so hard for you 24h
  •   karenlaw44 @natalie_chavarria Sorry I know Canada is different but basically it is the same take home pay but because I had long term disability insurance with my job I was able to apply and was approved. I was on a short term disability for about 9 months prior which was also a benefit from work. If you have the same, it's worth looking into because if you come to a place in your life that you just can't do it anymore, at least you have an idea. I know for me, I couldn't risk the lives of others because I drove long distances and I had extreme waves of fatigue that I would have to pull over and sleep for 20-30 minutes. There were a few times that I almost went off the road. I would also drive around the corner of my office when I was having an extreme day and sleep for 20 minutes in my car and then cry when I would call my husband because I felt like death. In Canada(southern Ontario) we have damp, cold winters that affect my pain and in the summer it is extremely hot and humid which is hard. This went on for about 3 years and got worse and worse. It was just not possible anymore. I fought it for probably a year longer than I should of. Hope that is helpful. Take care 24h
  •   natalie_chavarria @karenlaw44 Well you sound a lot like me. I drive for work for sales and sleep on the side of the road ALOT! With semi trucks wizzing by me. It's so dangerous. Now my work has been cut in half. The pain of sitting in a car for 15-18 hours is just too overwhelming and my sales has dropped. But we don't have work disability. I don't think so. This is an oil field company and it isn't run like a corporate office. Unfortunately I make way too much money. I don't think I could get even close to what I make. Ughhhh and then how does the health insurance work? My work pays for it. If I'm not working. How do I keep my doctors. Sooooo many questions. Thanks for helping love!!!! Il figure it out 13h

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babygirleelee #Pain #Fibromyalgia Jus been a bad couple of weeks for a baby girl. And our wild weather and having to adjust back to a different climate has been hard.. #Flareup #flipagram ♫ Music: Piano Sonato No. 14 in C sharp minor, Op. 27, No. 2, "Moonlight": I. Adagio Sostennuto - Robert Finn made with @flipagram . 2d

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  •   kristan_89 Get some rest and feel better auntie! I love you! 2d

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borderlinespoonie I have tonsillitis & I feel so awful I get tonsillitis so bad. The pain just makes me cry & I just wish I was dead right now. This illness is playing havoc with my M.E, I feel like the walking dead Fuck you Tonsillitis & Fuck you too M.E!!!!!!!! 2d

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