8,940 Posts

32min kerigiaco
X-Pro II Keri G
kerigiaco I used to #craft day and night but since this #crohns #flareup i cant so much without getting so tired and in uncomfortable pain. So ive been working on this a half hr a night. So far i got this. Everything on grey is removable so we can change it thru the years. Love it so far #backtoschool #backtoschoolsign #firstdayofschool #paper #papercraft #papercrafter #papercrafts #cricut @officialcricut 32min

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51min muppet2509
Normal Muppet
  •   blushflower Did you cut your hair?! 6min
  •   muppet2509 @blushflower yes I shaved both sides in June. It's already grown super tons. Need it trimmed again lol. 1min

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1h dlea89
Willow
dlea89 Give me all of the sleep #bed #sleep #cfs #crash #flareup #pots 1h

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chronic_khaleesi My pjs are extremely appropriate today ( they say ouch everywhere and I ouch everywhere !! ) my lovely friends got them for me lol. I literally cannot move blink or speak properly today endo is still kicking my ass ( period now ) I have a stye in my eye ( is that the correct word !? ) my throats killing me and my nerves all over my body feel like they are on fire not a v positive post but the only thing positive about my day is .... I have double stuffed Oreos ... How are you all ? #flareup#badday#strugglingspoonie#icsis#endometriosis#endometriosisawareness#endowarrior#endosister#interstitialcystitis#fibromyalgia#chronicfatiguesyndrome#ME#cfs#spooniestrong#fibrowarrior#invisibleillness#invisibledisability#chronicpain#chronicillness#chronicallyill#pjday#oreos#spooniesister#spoonielife#depression#anxiety#fightlikeagirl#butyoudontlooksick 5h
  •   chronicallyfearless Hope you feel more relief soon! sending spoons and gentle hugs x 5h
  •   kevinklix Dem pjs doe 5h
  •   chronic_khaleesi @chronicallyfearless thank you so much huni xx 5h
  •   jennyleigh426 I heard a bunch of stuff that sounds similar to my life... blah, blah, unfun stuffs, and then whoa! Double stuff oreos?!? You got it going for you today girl! Man, sometimes I cheat and make it quadruple stuffed... hehe! They go with almond milk, coffee, iced coffee, coffee and Baileys, just Baileys.... 😈 Hope you feel better soon darlin! 5h
  •   lydialaver13 Those PJ's please! We all need those lol!! Sorry your having a shitty time of it at the moment, hang in there If we do it together we can make it right? Thinking of you lots, wishing I too had double stuff oreos and sending lots and lots of love xxxxx 3h

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magickalrebel Pushed myself these last few weeks and I am going to push myself this week too. #itsmymonday #chronicpain #chronicfatigue mychart sent me an email stating my results from the preliminary blood work came through for my rheumatologist appointment, nothing was out of the normal range. What does this mean? No clue. Maybe wait till the rest of the work is analyzed and go back for my follow up. #searchingforanswers #flareup #juststaymotivated 8h

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jaimekfit RA problems 8h

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clkuba And it's back, started a flare again after a year and a bit in remission, so hoping it's only a little phase, cause I've not been great with remembering my medication 😐 fucking hate uc, can't win. #IBD #ulcerativecolitis #colitis #autoimmunedisease #incurable #flareup #feelshit #healthiswealth 15h
  •   clemyhascrohns Ah shit! At least it's not crept up on you in such a horrible way as last time! Hope things get better asap for you x 14h
  •   clkuba Oh I know it's horrible, thought I'd nailed it on the head after my last flare. I can feel my anxiety creeping up again tho already. I see my nurse on Friday for my 6 month check up luckily, just don't wanna be put back on steroids if it gets worse thank you, hope your doing well, haven't spoken in a while x @clemyhascrohns 13h
  •   kpt_95 Love you 13h
  •   rhiannonmay__ Stay strong girly, hopefully it will pass very soon x 12h

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Sierra Courtney Payne
poopingbeauty My Crohns is active and I can't start any meds because I have to wait 6 week's after the transplant to have a colonoscopy so they can decide what to put me on. I called the infectious disease doctor yesterday and they don't take my insurance so they can't do the transplant. I'm so frustrated and exhausted.... #crohns #crohnsdisease #ibd #ibdawareness #flare #flareup #colonoscopy #transplant #meds #severe #pain #paynesinpain 16h

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kerigiaco Funny story!
Every so often we pop into the second hand store by our house to see if they have anything i can upcycle. Today nothing caught my eye. As we were saying bye to the owner, @johnnyaceg noticed this lighter. We knew we had to get it, being as i have #crohnsdisease and am in a #flareup. We try to make jokes and look at the positive on #crohns so its not always bad. Well while paying for this #toilet the guy said 'i see that grin. Youre up to no good' i giggled, then Proceed to tell him i had Crohns and would be keeping it for myself. I asked him if he was familiar with Crohns and #ibd. His response was 'am i familiar? I have it!' So we got to talking and exchanged stories. It just goes to show you how common and prevalent Crohns and #colitis is. Anyways 2 good things came out of this visit. I got a fun lighter and met someone else who is going through the same thing with #invisibleillness as i am. Always remember #yourenotalone #everyoneisfightingabattle and #makelightofbadsituations
#spoonie #crohnswarrior #crohnswontstopme
1d

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til_death_darling Really sucks to be this age and still getting random horrible breakouts anyone have any advice or product tips for sensitive skin flare ups? My chin always seems to be the problem area!
#ThankGodForMakeup #AdultAcne #CoverUp #BreakOuts #BadSkinDay #BeautyAdvice #SkinCare #FlareUp #Spots #SilverHair #PastelHair #Rockabilly #GreyHair #GrannyHair #RedLips
1d
  •   redlips_and_tats My chin is my problem area too. Only thing that's helped my skin is 6-8 months on antibiotics. I'm not taking them anymore and the chin invaders are slowly popping up again 1d
  •   til_death_darling @redlips_and_tats It's just so annoying, it makes you feel like your skin is really dirty. My face will be clear for ages and then I'll have a week straight where I just look diseased, haha. I use simple and Clinique bits which seems to help keep it really clear most of the time but then a random breakout will come from nowhere! xxx 23h

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doof.12 How I intend to spend today...bed, netflix, doggies, blankets and chocolate because my body is rebelling something terrible at the moment.

Ok, got a silly wee question to ask you lovely lot and I'd really appreciate any suggestions you have because I just cannot think of anything decent!
Graduation gift ideas for Ed? It needs to be meaningful obviously but I'm just failing at thinking of anything original! So aye, any ideas would be more than welcome, thanks guys!
#lurchersofinstagram #lurcher #sleepy #puppy #dog #girlsbestfriend #cutiepie
2d

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jaelynnt this selfie is sponsored by a flare up, little sleep, and an impending 10 hour shift. #selfie #whatissleep #idontknow #butidoknowwhatitisnt #me #sotired #flareup #fibro #fibrofighter #POTsie #migraineur #imissmybed 2d

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razordollcosplay Having a mild exacerbation right now. Weakness in my left hand and a Wiggly ring finger. #multiplesclerosis #multiplesclerosisfighter #ms #exacerbation #flareup #autoimmune #awareness #nevergiveup #neversurrender 2d
  •   la.raj I Completely understand this symptom. <3 8h

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doof.12 Sorry for my absence folks, been pretty damn ill and consequently I'm a little behind the times with this but better late than never! One of my good friends, @rainbow_girl_x, has created the tag #rainbowICawarenesscampaign to get people talking about her condition, Interstitial Cystitis (IC), in order to raise some #ICawareness in the run up to September, which happens to be #ICawarenessmonth. She's doing a fantastic job - many people have already taken part and whilst I do not suffer from this condition, I thought I'd do what I could to help her campaign and so for the next week I shall be doing a few awareness posts to draw people's attention to that of the incurable, chronic and invisible illness that is known as Interstitial Cystitis.
*Tomorrow's post will discuss what IC is and the symptoms it causes. Today's post is more of a heads up that I'm taking part in this #IC #interstitialcystitis
#awareness
2d

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