7,317 Posts

dommieee It's my mum's birthday today and she has been away for the weekend with dad. I've done way to much this weekend already cleaning, buying presents for mum from everyone, taking my brothers out and I'm cooking roast for dinner tonight. Battery is seriously running low I'm stupidly tired and I can't focus on anything and revolving pains seriously isn't helping 1h

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kimberlyguilds Sorry I just realized I have not put up a post since Monday. Which as not happen since I started IG account. I have had several fibromyalgia flare ups over the past 3 weeks. Combined that with severe allergies this week and you get one miserable girl. 😑 😴
#sickness #fibromyalgia #flareup #pain #tenderspots #nervepain #aches #shootingpain #stabbingpain #allergies #asthma #rest #medicines #StayingPositive #Stayhopeful #Prayer #Faith
8h

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lifewithcrohns Yes I'm scared... I came home yesterday. The past 6 months have been a crazy roller coaster can't believe how fast my health went downhill after so many years on remission. Deciding to do my surgery was very frightening. I wasn't sure if I wanted to live another day in pain and wait for a miracle or take matters into my own hands. Surgery should always be your last option but afraid I was only left with that. At that point of pain and suffering, It seemed like it was my only option to better days. I truly believed I can manage and heal myself but I have to keep reminding myself it was out of my control. Recovery has been real tough and painful wish I can sleep through it all and wake up all better. But I've had the most amazing support from family and friends who stood by before during and after my surgery. They keep reminding me to fight through I have best friends who stood by my parents side through 5 hours of surgery and comforted them the whole time. I'm honored and blessed to have them in my life and you know who you are I really don't know what I would do without them including all the prayers, support, and number of visits from love ones... Thank you all so much! ️ You remind me to keep pushing through. God has surely blessed me with an amazing support system. I'm still trying to wrap my head around the fact that I no longer have a butthole it's kinda crazy but really hoping I made the right decision. Maybe buttholes and colons are overrated? Lol #spoonie #crohnie #crohnnie #crohnsdisease #ulcerativecolitis #IBDpetpeeves #chronicpain #chronicillness #silentdisease #autoimmunedisease #flareup #IBDdisease #IBDproblems #invisibledisease #invisibleillness #crohnsproblems #UCproblems #spreadingawareness #spreadingtheawareness #curecrohns #cureIBD #colectomy #ostomy #ileostomy 8h
  •   lifewithcrohns So good to know I'm not alone! Maybe I should name my ileostomy too after all it did save our lives! Did you get your colon and rectum completely removed as well? Well I agree then that they're overrated at least we won't need to use the toilet the same way again @andreeuhhhrose_xo 8h
  •   andreeuhhhrose_xo Yep! My colon, rectum, and 45cm of my small intestine! I can't even describe how amazing it is to sleep through the night, I used to get up 8-10 times during the night! 8h
  •   lifewithcrohns Thank you so much my love blessed to know you myself! Your support means a lot to me! I am home now recovering but you're welcome to come over anytime @natalieyacoo 8h
  •   lifewithcrohns Same here actually! I already had a loop ileostomy so they just kept my ostomy and managed to cut around. I'm not sure if I've felt the benefits of this surgery yet I'm experiencing a lot of pain from the surgical sites. But I agree it sure is a relief not to get up and go multiple times. How's your recovery going? How many incisions do you have? @andreeuhhhrose_xo 8h
  •   natalieyacoo Yay!! 8h
  •   andreeuhhhrose_xo My surgery had some complications so it ended up being almost 16 hours. And I'm super sore from surgery but I'm up and getting around, off all narcotic pain meds. Still slower than I thought, but everyone reminds me my surgery was wayyyy longer than anyone thought too. I have 4 little incisions and a drain in my abdomen. Hopefully I'll get the drain out Wednesday. 7h
  •   belleelegancebyjenny I love u Chrissy bae boo ! 6h
  •   aimee_laura_ 2h

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arthritis_fighter Just watched THAT episode of Greys Anatomy S11. I cried from start to finish despite knowing what was going to happen because of the outrage it caused and I now know why!
Chasing Cars was our first dance at our wedding so very emotional to listen to without adding to the scene of Derek dying. I'm blaming this flare up for me being such an emotional state!
#greysanatomy #greys #season11 #sky #catchingup #chasingcars #snowpatrol #wedding #emotional #arthritis #chronicpain #chronicillness #flareup #spoonie #spoonielife #spoonieproblems
9h
  •   sarah.jess91 Is it really bad? I'm still refusing to watch it 8h
  •   arthritis_fighter @sarah.jess91 I thought I would be okay because I knew what was coming but I so wasn't. It's worth watching tho, well written & full episode is Derek's. Heart breaking stuff right enough 1h

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X-Pro II isaac gottfried
panthertaco Flesh on the grill #flareup 10h

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Normal ghadghood 8teen
ghadah.h97 This is how i look during one of my flare ups #eczema #flareup #instadaily 10h

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doof.12 A day well spent, outside in the fresh air with the doggies
At one point Magnum decided she was too hot from running round after the ball so she jumped into the birdbath to cool down she does make me laugh!
I got hit with some awful nausea this afternoon which was unpleasant to say the least. I really hate symptoms that completely incapacitate you and I'm afraid that when it comes to feeling sick I'm a right wuss and cannot cope at all I'm seeing my GP this next week so I'll mention it to her and see if there is something I can take to help relieve it because it's been happening more frequently recently (and I ain't pregnant I promise!)😛 #selfie #countryside #countrylife #ponytail #blondie #longhair
13h
  •   doof.12 @reevebetweenthelines thank you! It was lovely to just sit out and chill poor you, have you managed some fluid and salt? I hate that sickness you get with low bp this was different somehow but I've had the low bp all week thanks to my migraine messing my body about! Hope you're ok poppet 12h
  •   reevebetweenthelines @doof.12 I've just finished another water with NUUN, so hopefully that will help. So sorry about the migraine, they are the worst! I'm lucky, I rarely get them, but when I do my world stops. I'm not one of those "play-through-the-pain" people lol. Hope the nausea passes for you soon. It's hard to do anything with a bad tummy. Hugs and love to you sweetie!! 12h
  •   frkgraham Gorgeous!! 10h
  •   sam_paynie You're so upbeat even In your pain and that's something truly special. You're so inspiring! 5h
  •   missalliboo If You don't mind me asking what exactly is this disease that you are suffering from!! 4h
  •   missalliboo @doof.12 4h
  •   doof.12 @sam_paynie thank you Sam! /@missalliboo I have Postural Orthostatic Tachycardia Syndrome (a type of dysautonomia), Ehlers Danlos Syndrome (an inherited connective tissue disorder) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. They all contribute to me feeling quite poorly but I'm taking time off from uni to focus on my health and try and improve my situation so that I can finish my degree next year 1h
  •   missalliboo @doof.12 So Sorry to hear that I am going to do some research on it I completely understand I have been dealing with the Crohns Disease for over 21+ years now I have had 8 major abdominal surgeries and countless day surgeries and Have exhausted every option to help me deal with my daily struggles! Literally I can go from feeling alright to so sick in a matter of 15 minutes or even less! I have had two colostomies and two take downs and have a port in my arm because as you know our veins don't rejuvenate unfortunately I get fistulas and access abdominally and perianal! Then just recently I started having seizures due to dehydration Anyhow if you would not mind sending me a website that explains in laments terms what exactly you go through and is it a genetic auto immune disease like CROHNS Disease? What ever it is Keep being a Warrior🏽🏽 and If you ever want to speak to me I am here for moral support! Don't you hate it when people look at us and automatically assume that wears healthy?! Pure ignorance SMH! Keep Up Your Spirits and You seem like you do! Take care of your health first and take one day at a time when one hour at a time! Keeping you in my prayers🏽Allison 14min

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freespiritedveganz feeling okay today so gunna head out on a hike today with my mommy!! made some bug spray from some spearmint leaves and some other herbs around! hoping it works well! #hike #nature #herbal #vegan #bugspray #hclf #adventure #ibs #ibd #flareup 17h

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dommieee My phone decided to take pictures all by its self this afternoon!
Today I was supposed to be taking my brothers to the zoo with my boyfriend but when I woke up I knew there was no way I would even get around a third of the zoo! We ended up taking them go karting and to laser skirmish, I sat and watched but they had fun. I'm thinking about getting a walker for days like today where I'm in to much pain to walk and because I can never walk too far on my own. Does anyone else have one? I feel like twenty is far to young to have a walker, feeling like an old lady today!
17h

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Normal Layla Carolina Angeliic Autry
tiny_earthbaby Mkay. Nope. Nooopppeeeee. Not doing this. Menstruation can actually just kiss my ass and fuck off. There's a reason I purposely don't do it. Fuck no. Nope. Fibro flare ups are bull fucking shit when they're preventable. Fuck this.
#pissed #fibro #flareup #spoonie #nope
18h

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freespiritedveganz thankfully i can still have tea! pepermint tea to start the day and somewhat soothe my stomach! #pepermint #tea #vegan #breakfast #flareup #ibd #ibs #spoonies 19h

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charr_96 Onesie afternoon watching The Theory of Everything ️ having a major flare and my whole body is aching beyond belief but it's dads birthday #onesie #cosy #spots #fluffy #thetheoryofeverything #fibromyalgia #fibro #flareup #flareupssuck #chronicpain #chronicfatigue #ineedsleep #chronicillness #spoonie #butyoudontlooksick 19h

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doof.12 Breakfast/lunch/brunch still feeling somewhat 'off' since the migraine attack earlier in the week. I've had a headache every day since last Saturday and painkillers aren't doing anything for it!
My other aches and pains felt much better after my bath last night so that helped me fall asleep more easily shame I woke up at 4am though!
Taking today easy and enjoying the sunny weather in the garden with the mutts #paleo #paleodiet #breakfast #lunch #brunch #nom #cleaneating #healthyisthenewskinny
23h

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tri_nutrition_ MAGNESIUM: our RDA is between 310-420mg per day but experts are currently suggesting an RDA of 1,000mg for North Americans.
Magnesium is involved in so many metabolic functions in our bodies. When we are having a #Crohns flareup, we lose many important #electrolytes including #magnesium. It's important that we replenish magnesium. It helps us to relax all of our muscles... And in Crohns Disease, when our #intestines are #spasming and #cramping during a #flareup, replishing magnesium is very important in helping to alleviate these spasms and contractions. Magnesium also exerts an overall #calming effect on our bodies and can help relieve #anxiety associated with a flareup.
#CrohnsDisease #nutrition #leafygreens #pumpkinseeds #minerals #chrons #chronicdisease #inflammatoryboweldisease
1d
  •   just.anamaria So true! Don't forget coconut water! High in electrolytes, easy to digest. Seeds of any kind are pretty much shrapnel in my intestines, unless in a completely smooth butter form. 1d
  •   tri_nutrition_ Ooooo yes! You're absolutely right! thanks so much! Coconut water is an amazing source of electrolytes! raw seeds aren't good for me either... Nut butters and seeds are where it's at😀 @just.anamaria 1d

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fashionlandmagazine After an amazing trip last week I'm currently feeling the effects of the push it took on my weak body! I needed and wanted to go and live the life I want and love! So I did! Balance is everything with someone with a chronic illness that IS their life! Few days rest and I will be back feeling better hopefully.....it was worth every second! Already planning another trip 😎 #staypositive #illness #fight #sickgirl #life #hospital #flareup #me #chronicillness #chronicfatigue #autoimmune #disease #fibro #girl #irish #spoonie #blog #blogger #instablog #quote #balance #live #inspo 1d
  •   anjoolas I have psoriatic arthritis ..I hear ya 🏻 1d

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