8,532 Posts

findingoutfibro July has been so rough, I'm happy to say goodbye soon. But heatwave part II is coming, nooooo!!!! Do. Not. Want.
Every time I get a few minutes off of my neck/shoulder/arm pain, it comes back with a huge vengeance for no reason. Very #frustrating, to put it mildly. Being in this much pain all the time and never getting more than a few minutes off is killing me, hence why I'm holding my neck at a weird angle. Can't straighten my back or neck without ending up on the ground writhing in pain and screaming curse words loud enough for the neighborhood to enjoy. #Owwwwww. I've even considered the emergency room.... But can't handle all the lights, noise, and trauma associated with hospitals. So staying home it is. #toughitout #atwarwithmybody #thosearedesignerbagsundermyeyes #sickkidlife #betough #warpaint
#chronicpain #chronicillness #painflare #flareup #hateheat #dysautonomia #hurryupfall #thisflarewillnotend #invisibleillness #invisibledisability #smileslie #justsurviving #selfcarewhatsthat #smilingtohidethepain #distractiontherapy #sickofbeingsick
3h
  •   ridiculousspider I'm sorry you are in such continuous pain. The heat is sucking so bad here too. You are so pretty. 2h
  •   chefmom4923 My beautiful spoonie friend I'm so sorry you too hurt as bad as I do. 58min

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spooniesophia These two are doing their best to make me smile 5h

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gaychristianstonerwithaids Finally #beatdown my #most #major #block. The #passengerside of #myCalKingBed had been #overrun with #newspapers, #mail and #clothing,#etc. the #laststraw was last night, when a #mouse #atethrough #3differentsnacks in my #shoulderbag. I've been battling mice off and on for years, and this #flareup is not as bad as it once was, but there are a few #veryactivemice that #needgone. 19h

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bellewilling Saw this huge smoke on our way home. Hope everyone there is safe. #hugefire #wraggfire #flareup 22h

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ravens_reps What I did today in between doctors appointments 🏽. I got some amazing news! I am now only on one steroid so by next week let's cross our fingers to be steroid free and get rid of the extra bloat that came along with being on two steroids since April. I think it's safe to say I am back in remission but very early stages and never been so happy . #ulcerativecolitis #uc #chrons #autoimmunedisease #invisibleillness #flareup #remmision #remicade #remicadeinfusion #chemo #girlswholift #girlswithmuscles #freshmanicure #tiffinyblue #bmw #bmwx3 #health #wellness #paleodiet #paleolifestyle 22h

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tevbembly glittercrust 23h

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larileew The #spoonie life The struggle is real. 🏻 #endometriosis #flareup #celiac #PCOS #interstitialcystitis 24h

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itsnotmeyousuck Hanging out in bed with my main squeeze. Flareups are a time i tend to eat poorly so we are working on having healthy snacks on hand for me.
Today's menu is sugar snap peas and cauliflower with humus. #flareup #spoonieproblems #lifeasaspoonie #spoonie #autoimmunediseasessuck #autoimmune #autoimmunedisorder #invisibleillness #arthritis #seronegativearthritis #weightloss #healthychoices #mybeautifulmess #thatsdarling #sugarsnappeas
24h

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doof.12 Things like this make me really happy: this is my new make up brush holder aka candle holder from Ikea! It's a perfect depth for the brushes and so pretty in my bedroom(I also have another one for pens when I finally get back to studying )
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I was so overwhelmed by all the love and comments on my last post (and on @nowucme17's post which was so kind of her!) so I just wanted to do a general wee thank you shoutout to all you wonderful human beings because you are so fantabulous I'm still feeling quite awful, I don't know if the scope has actually flared my normal issues or what but I'm far from comfy! Taking today easy but feeling productive because I've managed to sort through my make up #makeupaddict #realtechniques #lovelovelove #ikea
1d

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