4,122 Posts

chroniceverything You might be a spoonie if....you've ever uttered the phrase "4th nap" lol. Some flares are too bad to make it to the couch. #chronicillness #spoonie #bouttotakemy5thnap #justalittlefatigue #lupus #dysautonomia #POTS #autoimmunedisease #gastroparesis #flareup #naps #naptime 33min
  •   crps.warrior PLEASE wake up for meds! I'm not sure if you ever go into a "coma" (sleep for 8-12 hours, like your body gives out) but waking from one of those is awful! Missed meds..pain HIGH...hurts to breath...Does that happen to you? @chroniceverything 24min
  •   chroniceverything @crps.warrior I go into what I call "mini-coma's" that are completely unlike my usual sleep patterns. I can't fight the sleep and I'll be out for as long as 14-15 hours sometimes and I can't be woken. I usually sleep very lightly but during these episodes I don't respond to any kind if stimulation until my body wakes up on its own. I usually feel worse waking up than when I fell asleep, higher pain levels, worsening symptoms etc... it's so hard when you can't be woken up to take your meds even. 14min

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myrtav518 Not my best todayhit cardio and shoulders. Back on my meds to control my #lupus #flareup that's causing my hair to fallout and am feeling a bit fatigue and stressed. #keepingstrong #fightinghard 8h
  •   downbygrayroad @myrtav518 very sorry, I'm in a bad flare too! Was on hrt and I think that's what caused it?! Anyway, severe rash, hair loss and super thin! 8h
  •   only1ofme_143 You're my inspiration !!!! If you didn't say it I wouldn't of known !!! 8h
  •   gymlyfemontana Stay strong 8h
  •   toyamay1 Right on keep up the good fight!!! 8h
  •   brooklynbreed Love u Sis. 7h
  •   jeanne224 Hello Myrta was going on? 3h
  •   myrtav518 @downbygrayroad aww. Thank you. Sending you a warm hug. I am sorry to hear of your flare. This is lupus... up one day down another. I pray you bring your flare under control soon. God bless you thank you all for all the love and support we will continue to fight a good fightGod bless you all, love you bro 1h
  •   villana1216 You continue to inspire me. God bless you 1h

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wibbly_wobbly_timey_wimey50 Watching Gotham, stuck in bed flaring...#lupussucks #flareup #gotham 11h

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twinmela #ChronicGirlz question/topic.. Have you ever had a #crush on someone on here but was to nervous to let them know or didn't think they would "talk" to you because they seen the #hospital & or #flareup pics on your page & got turned off or scared. S.N. I have a crush on here & he liked a couple of my pics yesterday morning which was a great way to start the day lol! But I know he knows about what I go through so I don't know if that kinda automatically put me in the friend zone or the normal idk if I'm his type #ChronicGirlz what are y'all opinions?? #Comment I need all honesty! 16h
  •   bluelikeivy Yea lol I've thought that before. It's hard for some people to understand what we go thru so crushes/relationships can be hard, but good people should look pass your illnesses16h
  •   _j_o_s_s__ I always hide it but I feel like eventually I would have to tell them but they won't love me anymore. I'm working on not being ashamed of it. .ugh 13h
  •   91hippie I'm engaged to my crush Sooo he better not bail out lol I have Rhematoid and psoriatic arthritis. It has stopped me from working. I feel guilt for sitting at home then I remember I only get one body and I have to take care of it 9h

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twinmela So I had a very rough night. My #Arthritis decided it wanted to #flareup really bad from the waist down & make me wake up crying So more than likely I will be catching up on my sleep today. 17h

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saries12wbt Truly running out of options! So desperate for my 5 month running atopic eczema dermatitis flare up to end and get it back under control. So trying Chinese herbs now.
#eczema #dermatitis #herbs #chinese #flareup #skin #skinhealth #desperate #itchy
1d
  •   runlola_run @_queen_of_hartes_ any suggestions? 1d
  •   _queen_of_hartes_ All I can suggest is go to the doctors and get steroid cream or fatty ointment (it contains no steroids) and paraffin cream that is 100% paraffin. We have tried everything and these honestly are the only things that have worked @saries12wbt 1d
  •   jslcrafts @_queen_of_hartes_ yeah I've had since I was a baby...ever since having my 2nd child its been out of controls. Hormones mixed with stress is doing it to me. I've gone through tubes of the cream once every 3 days (it's everywhere). Even used @moogooskincare range with no luck. So trying this. And to be honest so good so far. The redness certainly has decreased with only 2 doses 1d
  •   flumpy_flumps Eczema sucks!! My son had it since he was a month old...He's almost 17 now. We tried endless creams and steriods, but the one that done the best job was 'Eucerin' 21h
  •   pregnantfitmama Tea tree? Let's us know how the herbs work. Nothing is worse then your babe uncomfortable. Hoping for some relief for your fam!! 15h

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Normal J-P Espiritu
jespiritu_ Pls buy our single "alive in you" ft. @_andersen_ on da drums and @tiaandeysel on da official cover.

LINK IS IN MY BIO!

#flareup #elevationyouthau
2d

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thingus995 Love this thing. #flareup #kamado #burgermode 2d

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__lovemeharder Singing in the car yesterday. Excuse the face, having a flare with my skin.... It's starting to settle down though I think. #MCTD #MixedConnectiveTissueDisease #sing #singing #fun #bored #flare #flareup #fatface #steroids #onelasttime #ariana #arianagrande #love #lovethissong 2d

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bluelikeivy Not having a great day...it's hard to explain to others how I feel so maybe this will put it into perspective #spoonie #rheumatoidarthritis #flareup #chronicfatigue #fibro 2d

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joelittle86 Bacon wrapped steak over a campfire. Having a fun weekend with Jacks. #flareup #bacongrease 3d

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ulcerativecolitis_17 Hospitalized after colonoscopy the other day. Hopefully to be out by tuesday! #ulcerativecolitis #staypostive #staystrong #prednisone #flareup #fighter #ucsucks #hospital #colonprobz #colitisawareness #colitis 3d

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