5,588 Posts

peacelovelighthappiness I will admit, mornings are very rough being ill. I can usually find joy in every day, no matter how bad the day. I found out a good friend unepextedly died on Saturday night. I've been feeling so upset about everything lately. #PMS + #cancer + #fibromylgia #flareup + #BPD and all I can really say is I have cried a lot, slept even more. I am so beyond sick, not sure if it's the #FMS #flare or the cancer. PS great news: no lymphoma, all that positive thinking and prayers from everyone must have helped. Every doctor I saw thought I had it and it's just a swollen lymph node. So as far as I know, I only hace thyroid cancer. Surgery will be soon, and I will refuse the radioactive iodine and handle it #holistically from there. Anyway. The point of this post, is I have been so devastated over the loss of my friend that I called a great friend that reminds me of him that I haven't seen in a while. We are going to get together soon and I feel so much better. #Appreciate people while you still can! @_spiritualgirl_ #happy #fuckcancer #holistic #healingnaturally #choice #life #spirituality #eckarttolle #positivethinking #positivity #beproactive 5h

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  •   dislokatie You'll have to spread them out more. Take breaks when you can and don't feel guilty about it! You can only do as much as your body allows you. Be kind to yourself! 12h
  •   hyacinth_likethaflower What are the spoons used for?? I've never heard of that or maybe the terminology is just new to me @lifewithcrohns 12h
  •   mamataytay71 @hyacinth_likethaflower you should look up the spoon story that explains life with chronic illnesses and having to start each day with a certain amount of spoons that represent your illness and the things you have to do in a given day. It's pretty interesting. 11h
  •   hyacinth_likethaflower @mamataytay71 will do. I have crohns...have had it 14 years thought that it was some sort of treatment but I love to learn so I will definitely look that up. Thank you. 11h
  •   natalieyacoo You'll rock your classes, just one day at a time :) 11h

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  •   mamataytay71 I feel for you honey. I have a 15 year old daughter with crohn's and I hate to see her pain and weight loss and worrying about what she is on. God bless you 11h
  •   natalieyacoo You are seriously the sweetest person I've ever meet! 11h

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alexisnightmare_official Just got done with physical therapy. I didn't go to school today because of pain. Physical therapy was hard and hurt, but at the end of the day I tried to do it. Not looking forward to going to school tomorrow... #crps #chronicpain #chronicillness #rsd #rare #nervedisorder #pain #pots #paralysis #pt #physicaltherapy #invisibleillness #invisibledisease #treatment #hurts #hypermobil #fullbody #flareup #spoonie #alexisnightmare #alexisburningfight 16h

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  •   sudemalik_ Hey love, sry if I have already asked you but could u maybe have a look at my acc and if u like it maybe even leave a follow pls, thx 1d
  •   cristine_pauline I had surgery for mine.... Turned out my septum was causing my migraines. Do you have a deviated septum? 1d
  •   cmeandance I know right?! Sheesh. I don't have one right now, but when I get one, it's like an unwanted visitor who refuses to leave. 1d
  •   emie_xoxo_ So sorry babe! This is funny though 1d
  •   chicky_2209 so sorry! Hope your meds kick in soon... 1d
  •   missluceyinthesky Im not sure about my septum @cristine_pauline this is only the firsr med ive tried with my neurologist. He's being really wonderful. Even fits me in next day when I ring up in lots if pain. He is a headache specialist so he is looking at all angles. Thanks for the idea though I can ask him about that next time. 1d
  •   missluceyinthesky Thanks @cmeandance @emie_xoxo_ @chicky_2209 migraines really suck but hopefully tomorrow will be better. 1d
  •   chicky_2209 I hope so too! 1d

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caughtapurplebutterfly My face felt like it was burning off and I started to notice my malar rash. Now I have a fever.... and this is all because a dumb doctor put me on a medication that makes my birth control not work (which he didnt tell me that would happend and my lupus is triggerd by my period) ugh... #lupus #spoonie #malarrash #butterflyrash #flareup #chronicillness 1d

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lelebransfield Bad flare up x100 =unbelievable pain. Only place I can get anyway comfortable is on the floor. Got so upset by this picture yesterday as my brother decided to snapchat it. I think it's kinda cute now with my puppy trying to make me feel better too or else try get snuggles. Here's hoping tomorrow is a pain free day. #CRPS #spoonie_support #flareup #teenagebrother #puppylove 2d

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sarlit1991 Felt like a zombie everyday this week, but tomorrow is a new day and I'm determined to feel better and push through this #hms #spoonie #flareup #determined 2d

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ironicallyweezie When it all gets too much, bed is the best place to be. Flaring majorly and wishing the aches would just go away. Can't believe Monday has come around again... #flareup #cfsme #chronicfatigue #nightworld 2d

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dinkyspoon85 I think I'm getting all stressed out about my big operation and today I've just slept so much on and off and my ankles really hurt to walk on now that's a new symptom. M.E you do surprise me. Hopefully feel up to doing my beauty video tomoro, keep watching as my channel is about allsorts from a chronically ill girl trying to be somewhat normal...but then again normals boring
#chronicallyill #achingjoints #spoonie #flareup #myalgicencephalomyelitis #mecfs #poorlyspoon #fatigue #chronicpain #operation #vlogger #youdontlooksick #youtuber #blogger
2d
  •   witchyknits4ewe Good luck- you are fabulous and you're going to do great!!! Stay strong!!! 2d
  •   dinkyspoon85 @witchyknits4ewe bless you hun my nerves are definitely setting in. Must think positively xxx 2d
  •   witchyknits4ewe Yes!!! I know it's scary but you have a lot of people sending you positive thoughts and vibes!! Hang in there!! 2d

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endowarrior27 this is how I feel about pain. I'm not really getting better, I was just in less pain. It's like a Rollercoaster of different pain levels. Uk? #hyde #thats70sshow #endometriosis #endosister #endostrong #chronicpain #painmedicine #hashtags #support #bestrong #IC #ICfighter #icwarrior #pain #spoonie #flareup 2d

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lunettezz Sooooo tired today, my Sunday in bed just flew by... 2d

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arthritis_fighter I have been in remission with my Crohn's for over a year & in that time I have been dismissive about how bad I was. I have battled since I was 17 years old and have had some really horrendous times with it. The past year has been a God send as I have coped so well and not had any flares. Last night I was out with my hubby for dinner and then cinema. Soon as I ate my dinner I felt really unwell & my stomach was so bloated & still is. I managed to go to cinema even although I was in a great deal of pain and discomfort. Drinking plenty of water today and resting. #crohns #arthritis #rheumatoidarthritis #pain #flareup #chronicillness #chronicpain 2d

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2d 31i55a
Normal Elissa Renee
31i55a Had a #bad #flareup since Wednesday, that resulted being in a #wheelchair for when i go out. And being in #crutches for when im around the house. #rsd #injury #injuredfoot #swollen #swollenfoot #swollenankle #purplefoot #purpletoes #purple #verypainful allergic to painkillers #oldinjury #leftfoot 2d
  •   sportsmen217 Hi hows the ankle now ? How do you hurt it ? @31i55a 2d
  •   31i55a I had a hurdle accident back in may 2002. That should've been casted but never did. It took 3 years to heal, but i didn't heal properly. Dec 2006, i dropped a shampoo bottle on my toe of the same foot, that reinjuried, the old injury. I was diagnosed with RSD and fibramalgia. Im allergic to painkillers. Im injured for life.. I go in and out of crutches/wheelchair. I am unable to work and drive. I cant run or jump. Im always tired and sore. @sportsmen217 the ankle is always fat just now its really fat. And very painful. Which is why i cant walk on it. I already have bruises on my hands from the crutches. Pulled my back a few times. What i live with, i don't wish it on my enimies. 2d
  •   31i55a im also allergic to alcohol, and a lot of medical creams too. 2d
  •   michigandaddy Ouch.. Good luck 2d
  •   ags_nails Hope you feel better soon 2d

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