5,042 Posts

fillethefashion My favorite picture to show off these lovely stunning pieces feom the NEW collection which you can get by following the link in my bio! Don't forget I will be donating 75% of my commission to PMMD to help children and young adults with Duchenne. #chloeandisabel #jewelry #fashion #style #styleguide #lookbook #beauty #chic #modern #boutique #ootd #necklaces #earrings #pendants #statementpiece #bracelets #rome #fromromewithlove #lace #boho #vintage #charity #duchenne #ppmd 2d

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duchenneconnect DuchenneConnect has just launched our first survey about #pain and #Duchenne and #Becker. Log into your account at www.duchenneconnect.org and answer this short survey. 2d

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harrisonsfund My fabulous friend Cath from @coalitionduchenne came along to the 2nd screening of our documentary in LA. Cath also had a documentary in the Festivals a couple of years ago called Dusty's Trail... check it out

#Harrisonsfund #Maketime #Dmd #Duchenne #La #SBIFF #Santabarbarafilmfestival #Thechallenge #Dustystrial #Raiseawareness
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cincykidsrad Axial contrast enhanced CT in a different patient with the same condition shows an enlarged heart with a dilated left ventricle and left atrium consistent with dilated cardiomyopathy. While CT was performed in this case, MRI is the best imaging test to assess ventricular volume and function.

We are featuring cardiac cases this week for Valentine's day. Check back each day this week for a new case!
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cincykidsrad We are featuring cardiac cases this week for Valentine's day.
CXR in a child shows an enlarged heart. The differential diagnosis for massively enlarged heart includes Ebstein anomaly (usually larger hearts than in this case), pericardial effusion, and dilated cardiomyopathy.
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harrisonsfund Could a person BE more jet lagged? #nofilter #okaymaybeone Contemplating moving into an airport ️ All for a mighty good cause. Back from LA, and getting my head in the game to fly to Glasgow for the PACE meeting with the SMC. Today we discuss Translana with advocates and regulators

#Harrisonsfund #Maketime #Translana #Selfie #Duchenne #Findacure #Makingmemories #Shockumentary #Raiseawareness #Duchennemusculardyatrophy
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ljhookersunnybankhills There’s only two days left if you want to join our movie night to raise funds for Duchenne Muscular Dystrophy, so be quick! You can find out all about how to book tickets for you and your friends here: bit.ly/23CvPj7 Also, if you just want to donate directly, you can do that right here: bit.ly/1UuBSjL Thankyou to everyone for your support! #ljh #ljhooker #ljhsbh #sunnybank #sunnybankhills #brisbane #bne #queensland #qld #zoolander #2lander #twoolander #zoolander2 #bluesteel #latigra #magnum #charity #duchenne #charitywork #thankyou #thanks #nobodydoesitbetter 2d

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caringforconnorcampaign Where does time fly?...Much to quick!!
Connor's little brother Kye is 3 years old today. It's a little bitter/sweet as very shortly after Connor started having many tests to confirm #duchenne. This little guy was also given a 50/50 chance of being effected too, thankfully all clear. He's not had the greatest first 3 years of life we would have liked him to have and often gets left out due to appointments. He's an amazing little brother and I'm sure one day he will be a great protector of his big bro too. Happy birthday handsome #bestlittlebro :) xx #help #helping #raiseawareness #support #cure #duchenne #duchennemusculardystrophy #love #connor #problems #people #world #caringforconnor #findacure #children #hero #nevergiveup #find #thanet #c4c #time #c #saveconnor #picoftheday #photooftheday #c4
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fillethefashion My favorite cuffs which you can purchase in my boutique just follow the link in my profile! Also your purchase will be helping kids and young adults with Duchenne since on February 21 I will be donating 75% of my commission to PPMD! #chloeandisabel #fashion #jewelry #style #styleguide #beauty #chic #modern #boutique #ootd #lookbook #cuffs #turquoise #amethyst #lookbook #boho #valentines #cupid #valentinesday #ppmd #charity #duchenne #bracelets 3d

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thewchl RECORD BREAKER!
Congratulations to Hornets forward #45 Kevin Konfara who broke the single-season record for most goals scored. The previous record was held by #24 Anthony Nelson (78 G in 2011-12). Konfara scored 9 goals this week putting him with 81 goals with two games remaining.

Konfara needs only two more points this season to surpass Nelson (92 PTS in 2011-12) for the single-season record of total points scored.

Konfara, a 15-year WCHL veteran also holds the career record for most points (674 PTS) and goals (562 G). ---
#hockey #PowerHockey #adaptive #disability #disabled #disabilities #arthrogryposis #adaptivesports #dearbornheights #dearborn #hockeytown #detroit #cerebralpalsy #osteogenesisimperfecta #mda #musculardystrophy #spinalmuscularatrophy #spinalcordinjury #duchenne #sports #wheelchairhockey #floorball #michigan #mi
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caringforconnorcampaign This is so true. If anyone ever wants to ask any questions please do, feel free in person or on social media, just ask. We are happy to talk about Connor, the campaign or #duchenne. We won't cry on your shoulder, it's kind of like our job now to talk and spread awareness of this vile and fatal disease xx #help #helping #raiseawareness #support #cure #duchenne #duchennemusculardystrophy #love #connor #problems #people #world #caringforconnor #findacure #children #hero #nevergiveup #find #thanet #c4c #time #c #saveconnor #picoftheday #photooftheday #c4 3d
  •   elinaarseth 🏼 3d
  •   secretlifeofaspecialneedsmom God bless! I am trying to do the same thing with my son. Walk by faith not by site! If you have faith in God trust me everything will change. My son has overcame a few of his many diagnosis, unfornately one is a lifelong neuromuscular disorder but I know with prayer it'll all get better and easier for him. I know your son can be completely healed all you need is faith, hope and love! 3d
  •   secretlifeofaspecialneedsmom Disagnosises* 3d

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thehallbrothers_ "Never give up, never surrender, and rise up against the odds." #musculardystrophy #thehallbrothers 3d

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fillethefashion Shop these beauties in my boutique through the link in my profile and 75% of my commission will be donated to PPMD on February 21. Help children and young adults with Duchenne while purchasing a beautiful gift for that special someone for Valentine's day! #chloeandisabel #fashion #jewelry #style #chic #earrings #beauty #styleguide #lookbook #valentines #cupid #valentinesday #ppmd #charity #duchenne 4d

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caringforconnorcampaign **Help Needed** Hi guys we are looking for 5 face painters this year to save children waiting too long and join us at our Caring for Connor family fun day on the 17th of July. Please tag, share or message if you can help or know someone who might be able too. Thank you xx #facepainter #help #helping #raiseawareness #support #cure #duchenne #duchennemusculardystrophy #love #connor #problems #people #world #caringforconnor #findacure #children #hero #nevergiveup #find #thanet #c4c #time #c #saveconnor #picoftheday #photooftheday #c4 4d

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