5,696 Posts

im_arlo This is a grassroots effort to gain accelerated FDA approval for a drug that slows down Duchenne MD. Duchenne Muscular Dystrophy is a childhood disease that affects 1 in 3500 male births is the #1 genetic killer of children and is always 100% fatal. This drug needs to be approved. see TheRaceToYes.org for more info. spread the word... #theracetoyes #Eteplersin #makeduchennehistory #duchenne #duchennemusculardystrophy 17h

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victormleon Que tu gran día sea de mucha gente. Regala Esperanza.
#Duchenne #DuchenneParentProject #PulserasSolidarias #Esperanza
21h

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caringforconnorcampaign Lots of Walk for Connor certificates in and ready for the children joining us on the 5th of June. They'll need to get this to get their free icecream at West Bay Cafe after xx #certificates #walk #icecream #help #helping #raiseawareness #support #cure #duchenne #duchennemusculardystrophy #love #connor #problems #people #world #caringforconnor #findacure #children #hero #nevergiveup #find #thanet #c4c #time #c #saveconnor #picoftheday #photooftheday #c4 24h

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mieko_perez The look Joey makes when another doctor visits our home and says...This is a much healthier vibrant looking Duchenne patient *pause*. So, let me guess you want to know what I'm doing #duchennemusculardystrophy #autism #healthychoices #qualityoflife #cureduchenne #duchenne #duchennemd #healthyliving #science #sciencerocks #defyingtheodds #defyingautism #defyinglifeexpectancy 1d

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shorterbrothers The tickets have arrived!!
On Monday the Shorter Family will be on their way to Disney Land!!!
Thank you everyone who has helped to make this trip of a lifetime possible and for your ongoing support for this wonderful and very deserving family it's beyond amazing.
#ShorterBrothers #HopeStrengthSupport #Disneyland #Happiness #Familytime #thankyou #duchenneheroes #DMD #love #MaxWillHudson #OurHeroes #duchennemusculardystrophy #duchenne #Letsmakeadifference #SaveOurSons #Smile #SaveOurBoys #tripofalifetime #BeatDMD #LiveLife
1d

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milesformatty Summer's on its way and the @milesformatty Co-Founders are getting ready for this year's Softball Charity Event! Stay tuned for further details regarding our August 2016 tournament! #MilesforMatty #ShatterYourLimits #ConquerTheList #Softball #Fundraiser #Summer2016 #Buffalo #Nonprofit #Duchenne #MuscularDystrophy #Awareness #BucketLists #OneBuffalo #OneCommunity #Strength #Passion #Persistence #EndDuchenne 2d

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telethonitalia Michele ha 32 anni e la distrofia muscolare di #duchenne. Ha smesso di camminare a soli 11 anni, ma questo non gli ha impedito di raggiungere un grande traguardo come la laurea. La nostra ricerca dona speranza a tante persone come lui che nonostante la malattia non rinunciano ai propri sogni. #eccoperchè è importante destinare a Telethon il tuo 5x1000. #Metticilafirma, scopri come cliccando sulla bio!
#telethon #5x1000 #5permille #firma #traguardi #storie #ricerca #neuromusculardisease #vita #malattiegenetiche
2d

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caringforconnorcampaign Few little hiccups on holiday last week including a lost wheelchair at the airport for a while. We had a great time, the smiles and laughter from the boys was lovely and they always become so close while away. Just a few photos of the hundreds taken ;) xx #makingmemories #hoilday #help #helping #raiseawareness #support #cure #duchenne #duchennemusculardystrophy #love #connor #problems #people #world #caringforconnor #findacure #children #hero #nevergiveup #find #thanet #c4c #time #c #saveconnor #picoftheday #photooftheday #c4 3d

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