501 Posts

  •   pwhitsel Hope you get some relief, hon. 5h
  •   renewablemommytothree Fingers crossed Hun!! Wishing it was shot day for me too :(:( 5h
  •   allirenee84 I find out today what the new Dr is putting me on....hope you get some relief! 4h

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jackieka02 Fall is coming ! ♡ Beautiful morning for a run. I made it up the entire hill without stopping. Such a challenge and I wanted to die but I will never let myself give up - it was awesome! It's also #cimzia week (god I hate that stuff) and it makes me feel crappy and blah the whole week but I will never let it stop me. It could be way worse. I'll never question why God gave me Crohn's- I look at it and say challenge accepted! It doesn't matter if I die tomorrow, 10, 20, or 30 years from now. I'm going to take everyday and live it to the fullest :-) #crohnie #chronicallyfabulous #crohnsdisease #running #fitness #nature #fall #autumn #myfavoriteseason #livelife #countryroad #strong 1d

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amelie798 I was diagnosed with #crohns several years ago and have failed to achieve remission. After 21+ abscesses and several exams under anesthesia this year my Dr has told me that my only hope is to go back on #cimzia which I had success with in the past but had to discontinue due to my copay. Each box costs me (after insurance) $600 and I'm on four boxes a month! I'm not eligible for assistance directly from the drug company. I would not normally ask for help from anyone but $2400 a month is beyond my reach financially. While such a high dollar amount every month seems like a far fetched goal my Dr and family have asked me to give #gofundme a try. So let's see what the internet can do! 3d
  •   amelie798 Link in my bio :) 3d
  •   tkjohansson Holy crap! I'm glad that I live in Sweden... I get Humira, which cost about $1700 per month. But in Sweden you'll never need to pay more than $300 for medicine per year. Everything over that, the goverment pays...When I'm sick I usually spend two weeks in a hospitalbed, for which I pay $10 per day - all medicine, food, x-rays and everything else included. 3d
  •   tkjohansson 3d
  •   amelie798 Wow that's awesome! @tkjohansson What's crazy is my insurance pays 90%... it's just such an expensive medication! So glad they found something that works for you AND that they make it affordable :) 3d
  •   tkjohansson We got pretty high taxes but as a chronical sick person that's better than paying for it all... All medical treatment is pretty much free here in Sweden. I reach the max limit quick and then the gov pays for it all. But anyway, I have finally found a good treatment after six years with the wrong medicine that gave my constant pain in joints and muscles. Which was extremly depressing because I missed a lot of time with my kids. But now I'm fighting my way back! The worst thing with crohns-medication is that it often kills your immune system, which is totally hopeless when you get a cold or something... Damn disease!!! 3d
  •   tkjohansson Sry about my crappy English. I blame the school years. Or perhaps my lack of interest in the school years... Haha 3d

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samantha_rae81 That time of the month but I am thankful for Cimzia and my sweet daughter who hooks my #booboos up with #hellokitty #bandaids she's such a sweetie! #rheumatoidarthritiswarrior #cimzia #rheumatoidarthritissucks 7d

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  •   littlered12993 Fun I remember those days tell I got switched to Remicade 1w
  •   justjavonne @littlered12993 I used to be on Remicade before but once you stop you can't get back on so that's why I'm on Cimzia. 1w
  •   littlered12993 Oh I'm sorry yeah I has on Cimzia and humira but they didn't work I hate that it seems like I catch everything being on Remicade :( 1w
  •   deannnac I hope it's okay to ask this, Is this as painful as humira? I'm starting on it soon @justjavonne 1w
  •   justjavonne @littlered12993 it's been a long time since I've been on Remicade I don't remember. @deannnac I've never been on humira before. 1w
  •   fighting4life129 Good luck!!! I hate that shit it hurts and it didn't help me I'm on the newest possible medicine that people never heard of I failed everything remicade worked for six years and after that I tried everything and I'm not kidding even chemo and that didn't work so good luck I hope it works for you bc obviously every case is different I've also have had all these problems for twenty years so if you need to talk or anything let me know love another pained belly lol 1w
  •   deannnac I hope it works for you @justjavonne stay well! 1w

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s_marie_ju Tonight's cocktail #crohns #cimzia #injections 1w

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rachelanne_rants That time of the month when I get to shoot myself up with 400mgs of immunity killing chemicals that make life tolerable #sickkidselfies #cimzia #reallife #professionalpatient #professionalpatientproblems #chrones #chronies #mylife #sickkid #notthefunneedles 2w

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itsxserin More new useless meds. Time to update the med sheet. So much easier than have to say each one a million times to several doctors/nurses.
Yay for organization and colorfulness<3

#crohnie #crohnsdisease #toomanymeds #organized #feelsgood #chronicdisease #chronicpain #chronicillness #ibd #depression #anxiety #nausea #inpain #sosick #xanax #ambien #xartemisrx #painmanagement #ambien #abiilify #cimzia #6mp #mercaptopurine #phenergan #compazine #entocort #levsin #givingup #cantdothis #givingup #imdone
3w
  •   brielleroseboutique So sorry:( i see your on cimzia does ot help? I have been on it a few months now im on prednisone nausea meds and pain meds. And my blood work isnt showing improvement @itsxserin 3w
  •   itsxserin @brielleroseboutique I've been on it since like march I believe. Nothing has seemed to improve. If anything I've gotten much worse. I don't like bing on it and my doctor started me on 6mp with it three months ago. Still worse. Now he started me on entocort as well, still not feeling anything get better. Going to do the pill capsule cam on the 2nd. 3w
  •   itsxserin @brielleroseboutique see if you can change meds over 3w
  •   brielleroseboutique Oh man! I was super alergic to ebtocort. I have tried all of the crohns meds besides remicade and have either not responded or o have been allergic they cant try remicade because i have a huge chance of being allergic and i have antibodies or something that wont work with it. We are giving cimzia 4 more months. Then if no change ill be meeting with a surgeon. I am to thw point where ik finally ok if i nees surgery i iust want to feel half way normal. @itsxserin 3w
  •   itsxserin @brielleroseboutique that sucks! Yeah it seems like medications only work for a few months with me and then it stops. Remicade worked for about four months and then I was just over metabolizing it. I had surgery and an ostomy for four months with tpn every night during those four months. I have to say, after feeling this shitty for a year and a half, id rather go to the ostomy and/or tpn again. I want to be eveen semi normal again 3w
  •   brielleroseboutique Thats exaxtly what happens to me! Humira worked great for 4 months then i spiraled down hill really fast! @itsxserin i haven't had any surgeries for my crohns yet. But anything to not have pain every day every time i eat or drink. @itsxserin 3w
  •   itsxserin @brielleroseboutique I'm in the same exact boat as you, darling. I'l be praying and fingers crossed for you<3 3w
  •   brielleroseboutique Oh man i will keep you in my prayers as well. I don't wish it on anyone but its nice to know I'm not alone! @itsxserin 3w

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brielleroseboutique It was a long night last night... crohns you took me down once again. Ready for this new injection to stsrt working a miracle in my insides. I know its possible! Back on more prednisone for now. #ibd #ibdawarness #crohns #ulcerstivecolitis #crohnsdisease #injections #cimzia #prednizone #zofran #morphine
Brielle is being an amazing toddler ans helping mama rest today.
Pain pain go away! !
3w

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theeladygrace #crohns #ibd #ibdawareness #cimzia #autoimmunedisease My 2nd round of cimzia treatment :) 4w

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miss.eee So this post might be a bit confronting for some but I've had a while to get used to it - my new normal. Tonight's two injections didn't go so well. It was 85% mind over matter and 15% technique resulting in 2 red welts, one whiched looked like the size of a cherry under the skin and both stung like a bitch 😕😕 #cimzia #rheumatoidarthritis #arthritis #RA #chronicillness #spoonie #spoonielife #autoimmune #TNF #newnormal 4w

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itsxserin First time being pain free for about a month, besides the three days in the hospital.
Oh, thank you Pain Management doctor<3
#crohnie #crohnsdisease #chronicdisease #chronicpain #chronicillness #ibd #painmanagement #xartemisrx #depression #anxiety #xanax #celexa #abilify #ambien #6mp #mercaptopurine #cimzia #compazine #nausea #toomanymeds
GI appointment tomorrow. He better start changing shit and actually trying other wise this will be my last appointment with him.
1mon
  •   jimcarroll74 @itsxserin glad to hear your feeling better...:) 4w
  •   itsxserin @jimcarroll74 I was, and then I just threw up. Got really light head, dizzy and nauseous. Now I'm still nauseous and my stomach hurts 4w
  •   jimcarroll74 @itsxserin so sorry to hear that:( do you think it's just a side affect or from.not having any food to take with it? 4w
  •   jimcarroll74 @itsxserin you can't seem to catch a break, ibwas hoping this was going to give you at least some temporary relief... 4w
  •   itsxserin @jimcarroll74 well thank you for caring, I appreciate it. I was hoping I'd start doing well too, but that lasted an hour. I have no idea why my body just acted that way 4w
  •   jess_thrive Have you heard of the Thrive Experience? It could be the answer to the problems you're having. 4w

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schnubbi2010 meine #Akte gefüllt in 15 Monaten und meine vorerst letzte #Spritze 1mon

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