832 Posts

margaretaccursia You have to make your least favorite day somewhat fun! #vsco #vscocam #cimzia #crohns #afterlight #snapchat 3h

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Valencia .ø°*•.•*°P«R»I«Y»A°*•.•*°ø.
forgetmenot_priya What's the likelihood of finally finding a rX that works and then realizing you may possibly be allergic to it. 😕 I saw an allergist today because I broke out in a awful rash from my last dose of Cimzia. Good news I'm not allergic to any any environmental allergens... Bad news, there's a possibility that dormant parasites may have awakened because my immune system has been shut down due to Cimzia. Five tubes of blood was taken from me this morning... And a skin graft will be taken on Wednesday... I hope they figure out what's going on inside of me. Never can I have something work in my favor. . Trying to keep positive... #Cimzia #RA #Rheumatoid #Arthritis #rheumatoidarthritis #rasucks #AutoImmuneDisease #StayStrong #ChronicIllnessDisease #dormant #invisibleIllness #NotSoInvisible #spoonie 1d

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imperfectlyimmune You can so see where I gave myself my shots. #crohnsfighter #crohns #crohnsdiseaseproblems #crohnsdisease #cimzia 3d

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stephanies.spoonie.story Injection day!!! it amazes me that a vial this small holds less than a centimeter of medicine that keeps my immune system from killing me. That's truly remarkable. 3d
  •   stephanies.spoonie.story @sweetpossum wow, that's so wonderful! I'm glad that Humira works for you 3d
  •   stephanies.spoonie.story @yunezza_ I get one injection every two weeks, but some people take it more frequently. I have not experienced any side effects at all with Cimzia. However, all biologics lower your immune system so you just have to be a little more careful about staying away from sick people and washing your hands. I was on Enbrel over a year ago and I caught a little head cold which spiraled into bronchitis and pneumonia. I was in and out of the hospital and urgent care for over a month and it took four different antibiotics and hundreds of mgs of steroids for me to start getting better. 3d
  •   yunezza_ @stephanies.spoonie.story I'm so sorry to hear that. That was horrible. I started taking methotrexate last week bc I have a bad flare up. It's my first time so idk which medications are good. I'm too scared to take any injectables bc I'm trying to have a baby and idk if it's gonna stay in my system for a long time. I tried prednisone too and it helped a lot with my psoriatic arthritis, but I didn't like the side effects. 2d
  •   stephanies.spoonie.story @yunezza_ you can't have a baby if you're on Methotrexate...so I don't know if you need to talk to your doctor or what. 2d
  •   yunezza_ @stephanies.spoonie.story my doctor said that I can, but I need to be off of the medication for six months to do it. 2d
  •   stephanies.spoonie.story @yunezza_ oh okay I thought you might not be aware. 2d
  •   yunezza_ @stephanies.spoonie.story can you still got pregnant with the medication that you're taking? 2d
  •   stephanies.spoonie.story @yunezza_ yes you can, but I'm not sure of any potential risks or cautions. You would have to speak with your doctor about it. 2d

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imperfectlyimmune When you feel well enough to go swimming and still smile. My cimzia seems to be kicking in. I may actually even be able to eat dinner. :) #crohnsfighter #crohns #crohnsdisease #cimzia 4d

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jenn09leigh Rheumatologist appointment for the win! We'll continue to taper my prednisone (though he doesn't predict I will tolerate past 5mg🏼) we're continuing Cimzia injections & Dulexis. He agreed that if my hemoglobin isn't above 9 next week that it won't be safe enough for me to hike in Colorado. Hemoglobin carries oxygen in the blood & at higher altitudes there is less oxygen in the air. Overall a great visit. We're praying my hemoglobin stays up! Im off to nap because this chick is exhausted! #ankylosingspondylitis #ulcerativecolitis #IBDfamily #IBDwarrior #spoonie #rheumy #cimzia 6d
  •   minkakeel Yay! That is great!! 6d
  •   nataliehonodel Praying you will be able to hike in the greatest state ever! Colorado is the best! 6d
  •   jenn09leigh @nataliehonodel @minkakeel thanks!!!! I'm thrilled! UHM YES! Agreed- Colorado ROCKS! It's my fave! 6d
  •   jeremy_michaelz Colorado is home for us!! I love it here. Although, it's hot as hell here this time of year. Pack light. Haha! I've lived here my whole life, so I cannot attest to the altitude thing, but I've heard from a few friends that moved here that it's an adjustment. Haha! I hope you can make it out. So much to do here if you like the outdoors. Pray for good news @jenn09leigh 6d
  •   schmellbell Yay for getting off prednisone!! 6d
  •   jenn09leigh @schmellbell HUGE yay!!!!! Are you on it too??? It's the worst! I swear no matter how careful I am with what I eat I always gain! 6d
  •   schmellbell @jenn09leigh I'm off it for now. I was on it from age 12 to 20. Ugh. Moonface allll the time. I feel ya, you could eat air on it and still gain weight. So nice once you can be free of it! 6d
  •   thedivinegoldilocks Ohh...prednisone is sucks. @schmellbell I'm off it for now too...I agree with you...moonface,weight:((and you right "so nice once you can be free of it "!!! 5d

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theperksofbeingamixedgirl Currently am laying in bed trying to wait out my next dose of pain meds. Today I've had 3 doses of Norco, 2 doses of Benadryl(allergic to codeine in Norco), 2 doses of Compazine(suppository), 1 dose of Flexeril and my Cimzia. Today I've done nothing but try to not go to the ER and through the tears I made it through another hard day. I'm currently still running water through my tube and drinking very cold Gatorade(made it with the powder). Tomorrow I'm going to order some tubing supplies, call and make some Dr. appointments and call docs and give them my new insurance cards. The sick lyfe. Until then I'm going to keep pushing through. Playing on my phone and listening to music to pass time. Thanks for the prayers; keep them coming please! I appreciate it a lot. Tomorrow I know I'm going to feel wiped out from my #cimzia but I still have to go to the pharmacy anyways & call a billion people. Such is life. Can't wait for my surgery. I'll see yall on tumblr in a bit
Tumblr: Zealizabeth
Ask.fm: curlycrohnie
1w

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theperksofbeingamixedgirl I lasted two months without any treatment and gave up. I can't continue popping pain pills like tic tacs and crying every day in pain so Cimzia, we meet again. Don't give a damn about what any doctor says although I know my Rheumatologist is probably grinning reading this and laughing his evil laugh because he's been against the local GI telling me to go med free since the start. Oh well here's a big frick you to going treatment free #inflammation #crohnsdisease #jra #rheum #crohns #chronicillness #chronicillness #autoimmune #cimzia #spoonie #chronicpain 1w

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  •   tri_nutrition_ wow! No auto-injector! You're my hero! That does take a lot to do on your own. Way to go 1w
  •   joey_ginzo Yea they didnt give me the auto injector but im going to ask them for it when i go back to the docs @rr 1w
  •   tri_nutrition_ it's a little better... But hard to hold it for 10sec count cheering u on for when u try it. If u can do this, you'll have no prob with the autoinjector 😎 1w
  •   joey_ginzo Thank you for the positive words! I soon will share my story and when i do i hope i inspire others too! @tri_nutrition_ 1w
  •   tri_nutrition_ Absolutely you will and already are! Tag us in it so we can share it 1w
  •   joey_ginzo Ok thank you again! fight on! @tri_nutrition_ 1w

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Normal Summer "Sigma" Edwards

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bionicsuperwoman It's that time again #cimzia Saturday. Every 2wks I inject my body with this medication that surpresses my immune system, but at the same time helps me function. #rheumatoidarthritis is a serious #illness though an #invisibleillness it's damaging and in some cases fatal. Just bc you can't tell from the outside someone is sick doesn't mean that they are healthy. NEVER JUDGE A BOOK BY ITS COVER #chronicgirlz #chronicillness #raissues #rawarriors #spoonies #arthritis #rheumatoidarthritis 1w

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miss.eee The last month has been interesting, testing the boundaries still with what food my body will accept by adding a few indulgent foods and ingredients without inflammation and thrown into the mix more physical activity. I’ve never really been in a place where fitness and exercise could play a role in my life but each week I’m pushing to see how that might play out. Walking, running and hiking - 1km, 2km, 5km, 7km and 8km. Might not be much but RA had severely inhibited my ability to even walk at times.

I don’t mean to sit pretty on my perch as I realise that I could be knocked off at any time and I do acknowledge just how hard it is to manage day to day sometimes but my Rheumatologist appointment earlier this week couldn’t have been better. Implementing a change of diet and lifestyle has been the best thing for me, it’s worked for me, just wish I would have done it sooner, known about other options and gone out on a limb. As a result my medication was reduced again but only because I pushed. My bloods were excellent, assessment of my joints was good and if I behave myself I’ll be moving to 6 monthly appointments. If I behave myself doc? Don’t you mean if my immune system behaves itself?? Even if I do have a cold at the moment, my immune system is strong enough to supress any flares. Feeling happy and content #spoonie #rheumatoidarthritis #invisibleillness #chronicillness #chronicpain #lifestyle #selfie #blueeyes #blonde #paleo #lowcarb #grainfree #lowfodmap #whole30 #cimzia #nutrition #autoimmunedisease #medicine #smile #aip #arthritis #organic #foodchoices #realfood #antiinflammatory #guthealth #vegetarian #cleaneating #glutenfree #wellness
2w
  •   lucielucylove Good for you 2w
  •   liquid__amber @miss.eee you go you bad ass 2w
  •   verylysy @miss.eee from personal experience, be careful, don't push to hard. I can't even tell you how many times after the fact I was ticked off at myself for overdoing. I am glad you are doing great keep it up 2w
  •   miss.eee @verylysy I'm not pushing too hard. It's been a long road to get to this point and im on a hiatus at the moment until my body recovers from this cold. 2w
  •   tarah_lumumba i like :) 1w

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tammylee777777 This isn't for everyone to understand. For my #crohns people who get #cimzia . Here's a look into our world. Keep on keeping on. #crohns #crohnslife #soldiers #strength @crohns_and_colitis @crohnsgirly @our_life_with_crohns 2w

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imperfectlyimmune 2nd loading dose. Tis that time. Because it's about a bit more than just diet. #crohnsfighter #crohns #crohnsdisease #autoimmune #cimzia 2w

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miss.eee Argh! Was looking like the start to a great day but things have turned upside down. Not looking forward to walking the distance for my blood appointment at lunch. This post sums up the day. Bloods at lunch, i want to spew, which i haven't experienced for a while and sticking to my anti-inflammatory diet. 《Sigh》...... and i just realised it's injection night. What a day it's turned out to be.
#spoonie #ra #rheumatoidarthritis #invisibleillness #chronicillness #chronicpain #paleo #lowcarb #aip #grainfree #autoimmunedisease #whole30 #eatclean #wholefood #cimzia #antiinflammatory #goodfood #protein #nourish #simplefood #organic #lifestyle #healthyeating #healingthroughnutrition #rawarrior #lowfodmap
3w

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thechickenchicka I've been on this treatment for almost two years now so it's nothing new, but because of some issues that have come up, I'll be starting the introduction process all over again. Oh boy. I'll be three times more of a walking pin cushion for the next month than I usually am.
I did the math out and I've injected myself 56 times so far, which means nothing to most people but numerology is a big part of my life and 56 just so happens to be my number. You know what that means to me? It means there's always something to be happy about. So, I'll keep my dog close, and be thankful for this life changing treatment. (I know many people struggle with hidden illnesses like me, I'd love to hear stories and comments about how others deal with the ups and downs of treatment and recovery.)
#crohnsdisease #psoriasis #crohnsdiseaseawareness #psoriasisproblems #chronicillnesswarrior #gastrointestinalproblems #cimzia #cimziainjections #starterkit #numerology #56 #puppylove #supportdog #shetlandsheepdog #toyshelty
4w
  •   procatlady Best of luck to you with your treatment, wishing you the best! You're so strong and beautiful! 4w
  •   kristenldwyer So from what you wrote I'm assuming Cimzia has helped you? I was diagnosed with crohns when I was 17 and have since then tried Low Dose Naltrexone, Chinese medicine and acupuncture, and now at 19 years old I am giving up on the natural remedies. I will be starting Cimzia and am relieved when I hear people are successful with it. Stay strong!2w

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