1,011 Posts

pippashappinessproject Throw back to my wedding day. Pre-diagnosis. This was such a perfect day!!! But, I remember being sick. Do you have those moments where you remember being sick but you still didn't have a diagnosis yet? I had symptoms for 10 - years and the last of those 5-years, it took 5-doctors before the 5th Dr. ran the correct tests that finally led to a conclusive diagnosis. My autoimmune diseases are severe and aggressive, I feel if I were treated sooner, I would have had a better chance at remission. #fashionlover #dogooder #fashion #styleoftheday  #fibromyalgia  #chronicillness #hope #inspiration #spoonie #autoimmunedisease #JRA #Invisibledisability #rawarrior  #payitforward #randomactsofkindness  #CFS #chemo #Methotrexate #orencia #cimzia #rheumatoidarthritis  #PippasHappinessProject #kindnessmatters  #begoodtopeople #mindfulliving 11h
  •   julieking95 I remember those days. But I always knew deep down that something was off, I really am beginning to think that I have been sick since I was a teenager 9h
  •   karenmiller97 @pippashappinessproject As I was typing "you don't look sick" I wondered if those were the right words to use. So glad you weren't offended. People tell me all the time that I don't look sick too...I don't get offended either...I'm thankful I don't look sick. I guess that's why they say we suffer in silence...lupus...sjogrens...antiphospholidid syndrome and they believe fibro as well...yet still I smile. 9h
  •   pippashappinessproject @karenmiller97 totally not offended!!!! I know people don't need to look sick to be sick. Also I don't feel the need to prove to people that I am sick. It's a waste of my energy. 9h
  •   twiginpink You looked beautiful! Symptoms on and off since I was 14. Diagnosis 22 years later. 8h
  •   emmaheath_mua I just turned 21 and have been sick since 15, mentally since a child. I'm still trying to get answers :/ but heres to the future guys! Never give up hope :) You look absolutely beautiful xx 8h
  •   pippashappinessproject @twiginpink @emmaheath_mua it's disturbing to realize how long it takes to get answers. 7h
  •   brandiwilliams9904 I love with an auto immune disease as well. It's not fun! Stay strong girl! 4h
  •   cathyptl Oh yes, My doctor kept doing tests & everything came back negative. I kept second guessing myself. I'd go though a bad patch & wonder what the heck was happening to me. Then things would ease off & I would question if it was just in my head, then I'd have another flare so bad it would wipe out any doubt I had. I knew something was seriously wrong. Finally after a few years of this my doctor finally sent me to a Rheumatologist, he knew right off, sent away my tests & had results right away. I often wonder if I had gotten treatment sooner things would be better today ..... 4h

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bekindforlyme Another #actsofkindness Repost from @pippashappinessproject Thank you!

@brynnkaitlin @faithlikefee @begoodtopeople Another care package ready to mail out. Fee, I don't think Brynn is well enough to decide who to mail it to. Will you make the decision? Pippa's Happiness Project sends care packages to people who are chronically ill, home bound or in the hospital receiving treatments. It's a small package filled with love to remind people that they are not alone. I may look healthy, yet I live with two diseases for which there is no cure. Besides my husband & my love of fashion this project keeps me going. It's my way of giving back. #fashionlover #dogooder #fashion #styleoftheday  #fibromyalgia  #chronicillness #hope #inspiration #spoonie #autoimmunedisease #JRA #Invisibledisability #rawarrior  #payitforward #randomactsofkindness  #CFS #chemo #Methotrexate #orencia #cimzia #rheumatoidarthritis  #PippasHappinessProject #kindnessmatters  #begoodtopeople #mindfulliving
#LymeDisease #bekindforlyme
19h

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pippashappinessproject I have a thing for stripes @twiginpink I tought of your stripe obsession as well. I love the bow tie in the back and the length of the blouse, not too long and not too short. The best part is, I picked it up on sale at H&M for $5.00!!!! Woo hoo
#fashionlover #dogooder #fashion #styleoftheday  #fibromyalgia  #chronicillness #hope #inspiration #spoonie #autoimmunedisease #JRA #Invisibledisability #rawarrior  #payitforward #WIW #ootd #randomactsofkindness  #CFS #chemo #Methotrexate #orencia #cimzia #rheumatoidarthritis  #PippasHappinessProject #kindnessmatters  #begoodtopeople #mindfulliving
2d

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pippashappinessproject @brynnkaitlin @faithlikefee @begoodtopeople Another care package ready to mail out. Fee, I don't think Brynn is well enough to decide who to mail it to. Will you make the decision? Pippa's Happiness Project sends care packages to people who are chronically ill, home bound or in the hospital receiving treatments. It's a small package filled with love to remind people that they are not alone. I may look healthy, yet I live with two diseases for which there is no cure. Besides my husband & my love of fashion this project keeps me going. It's my way of giving back. #fashionlover #dogooder #fashion #styleoftheday  #fibromyalgia  #chronicillness #hope #inspiration #spoonie #autoimmunedisease #JRA #Invisibledisability #rawarrior  #payitforward #randomactsofkindness  #CFS #chemo #Methotrexate #orencia #cimzia #rheumatoidarthritis  #PippasHappinessProject #kindnessmatters  #begoodtopeople #mindfulliving 3d

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lunettezz Let's see if this does anything for my migraines... 3d

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pippashappinessproject Perfect little Red Dress @bananarepublic I bought one in black last week. I loved it so much I went back and snapped up another one #littlereddress. It has an elastic waist, pockets, it's lined and it's very light weight fabric. Great for summer & during winter it could be paired with black leggings. The multi layered necklace is from @dillards#fashionlover #dogooder #fashion #styleoftheday  #fibromyalgia  #chronicillness #hope #inspiration #spoonie #autoimmunedisease #JRA #Invisibledisability #rawarrior  #payitforward #randomactsofkindness  #CFS #chemo #Methotrexate #orencia #cimzia #rheumatoidarthritis  #PippasHappinessProject #kindnessmatters  #begoodtopeople #mindfulliving #thehappinessplanner #spoonie fashion #streetstyle #WIW 3d
  •   jasamjak You go girl! 3d
  •   photos_by_cee Love it. Perfect for you 3d
  •   pippashappinessproject @photos_by_cee thank you! I think I will wear it to coloring group on Monday. I hope you are able to attend 3d
  •   photos_by_cee So it is Monday instead of Tuesday 3d
  •   pippashappinessproject @photos_by_cee yes, Monday 11AM Bookmans be there or be square lol 3d
  •   auntiecb Purrfect sexy dress, that's not skin tight. 2d
  •   auntiecb Pippa, what to do when you are bent in the knees and feet so you have to wear the big shoes for comfort, but you love fashion and are 62 years old on top of it. My friend Ms. Vicki is sad there are no clothes for her, she loves fashion like you do!! Any place you know of that has the gumption to make more upscale clothes for people who need a scooter to get around? 2d

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Mayfair Gii
giise_casla Otra vez.. #Bienvenida a mi.. #cimzia #ea seguimos en la #batalla #spondylitis #injection 4d

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a.s.warrior I have gone through many stages since I was diagnosed with A.S. in 2013. My life changed drastically and I had to adjust many things such as my career, hobbies, and school. I had to depend on others for much more then I'd ever like to. I lost my independence. I felt completely helpless and lost without all of my aspirations to keep me going. For atleast 6 months, I was limited to what I could do. Things like taking a shower or making myself food were difficult tasks. It took 3 types of chemo and 9 months before my rheumatologist could find the correct medication to control the disease. Now, almost 2 years later, its finally somewhat under control. I still deal with an emense amount of spinal pain and autoimmune issues on a daily basis but I am now able to function and have a normal life with certain limitations of course. I feel blessed and grateful to have gotten to this point and to overcome such difficult times and pray that things stay on track for a very long time. I choose to always be grateful and thank the Lord for each new day. Happiness is my new priority because life is much too short for anything else. ...
#ankylosingspondylitis
#autoimmunedisease
#cimzia
#biologics
#chemo
#spoonie
#godisgood
#grateful
#happiness
4d
  •   jdizzle954 Proud of you girl! It's amazing to see the transformation. It unfortunate that it came from this, but you have become a strong amazing woman and I'm floored by all of your accomplishments. You look and sound phenomenal! Keep up the amazing work, and never stop fighting. You are an inspiration 4d
  •   a.s.warrior @jdizzle954 thank you so much!! ♡ 4d
  •   kasielove 4d
  •   michleez 4d

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nanabanana1013 Pretty sure Cimzia has been kicking my ass. I started it just over 2 weeks ago. About a week after I started having some flu like symptoms. I'm 2 days out of my latest loading dose and symptoms are back. Flushed and hot cheeks, low grade fever, woozy, and very tired. The highest my temp gets is 99.7 which is what it's at now so not really a fever but enough to make me hot. My injection sites also have a significant size of discoloration that I read is uncommon but should go away. I wasn't expecting to be hit hard with side effects since I was already on a biologic. This stinks #spoonie #crohnsdisease #spoonieproblems #sideeffects #crohns #ibd #inflammatoryboweldisease #invisibleillness #girlswithtattoos #autoimmunedisease #crohnie #tiredandcranky #cimzia #biologics 4d

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Normal ups & downs living with RA
miss.eee UPDATE: Swelling in my fingers have gone down but still plagued by a cold. It's been hanging around for a week and i just can't shake it It's making me feel super fatigued and I've been doing the bare minimum all week.
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Because I feel like crap im only just now getting around to my specialist update from Monday. There is not much to say. My 12 month Cimzia assessment was ok so onwards and upwards. My bloods were not the best, with a marked increase in inflammation markers in my body with my CRP levels elevated. Wonder if that could be related to my eating habits and the extra crap I've been eating lately? Although a physical assessment by my Rheumatologist indicated no active signs of RA. Happy days .
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I also had a whinge about my back. Ive had pain in my lower back since what feels like forever. Some days are manageable, some days are bareable and some days I don't know how I make it out of bed. He assures me it is not RA related and prescribed mega NSAID's to manage the pain. Being a little peeved with this response and taking one on Monday night my life has been back to normal until today. So another tablet it is and explore treatments for back pain with my box of tissues and a cup of tea. Rockin' Friday night
#paleo #aip #whole30 #autoimmunedisease #spoonie #chronicillness #invisibleillness #lowcarb #chronicpain #antiinflammatory #cimzia #injection #biologic #backpain #organic #cleaneating #realfood #eatwell #healingwithfood #grainfree #rheumatoidarthritis #butyoudontlooksick #itsnotadiet #medicine #nutrition #cleaneating #lowcarb #protien #glutenfree
5d

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Normal Lovisa Nilsson
loviisaan Det har blivit ett par stycken nu på snart ett år #cimzia #injection 6d

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lunettezz Ok, one more energy drink, then off for a swim! Gotta get rid of all the extra calories I've been having lately 6d

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lunettezz Last night's #meloxicam stayed in the box!!!! First night without painkillers in about 3 years!!!!! 6d

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  •   jen_walker4 Looks familiar - I'm on that too! 6d
  •   alisynrg @jen_walker4 is it working better for you than remicade? 4d
  •   jen_walker4 Hard to say...I don't really think so 😕 how about for you? 4d
  •   alisynrg Yes I do the Cimzia and I also take 6MP (daily pill) and it keeps me really healthy and normal as long as I take it like I'm supposed to. My Dr is a fan of the dual therapy because remicade and Humera failed for me 4d

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