534 Posts

piperinthepond Injection day! #cimzia #crohns 2d

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sergiocruz1996 That time of the month again. #crohns #cimzia #crohnie 3d

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itsxserin My #crohnie siblings! I have unopened boxes of #cimzia and #humira . If you live near mentor, ohio, I would love to give them to a fellow #spoonie to take. Id hate to see these go to waste. Let me know!!
#crohnsdisease #ibd #ibdawareness #chronicpain #chronicillness #chronicdisease
4d
  •   jimcarroll74 @itsxserin don't u have to keep taking them? If you don't I will take the cimzia if you don't need them anymore... 4d
  •   itsxserin @I'm not sure we are going to do for treatment. You can have them though. I don't care 4d
  •   couponingpa i been saving money to afford the humira. i have been desperate for more than a year since none goverment insurance covers. lucky you 2d
  •   couponingpa @itsxserin i hope you still have it so i can buy it from you for a good price. my psoriasis will get better with it 2d
  •   itsxserin @couponingpa I still have them 2d

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dsturbed Tomorrow is the big day....adding Humira to my treatment profile. I'm extremely nervous that I have to inject myself with 4 of these pens tomorrow but keeping hope that this will finally be the key to remission. Any advice from anyone already on Humira? Injections can only be in my legs cause I have a medical mesh over my abs which I can't inject into (doctor and surgeon orders). How long should I keep them out of the fridge for before injecting? Any tricks to lessen the injection pain? I was on cimzia before so I'm no stranger to the severe pain that comes along with these injections as well as the really bad side effects. Any advice would be greatly appreciated! Thank you :) #crohnie #crohnies #crohnsdisease #autoimmune #invisableillness #ibd #Azathioprine #tecta #findacure #painmanagement #ccfc #Cyrotoxic #chronicpain #iambroken #humira #adalimumab #cimzia #TNFInhibitor #RepostedPic 4d
  •   itsawatsonthing I never had a problem with it. You can ice areas. You can do thighs and side hips. Also taking Tylenol and benadryl before csn help. I also have 4 pens in my fridge. Youu can only use them if the have stayed cold. Can't be out longer then alloted time or you have to get new ones. @itsxserin I'm sure you know too. But just letting you know. You got this stay strong. 4d
  •   ambbow Deep breaths between them help. I know they suck. I'm sorry :/ 4d
  •   cerinab95 I hope Humira works for you! Ive been on it about 3 years. It worked great for the first year doing one shot biweekly. Then I had a bad flare and increased it to every week and have been doing that about a year then again this year two bad flares so i just started doing two every week about 3 weeks ago. No idea if its working anymore but I hope it helps you. I give it in my stomach. Its where I started and im too scared to move to the tigh. A lot of people say it hurts less with the thigh. I usually pinch around on my stomach to try to find a place that hurts less and then put ice on the area I want to inject myself. Maybe you can do the same with the thigh? Good luck! It stings for at most a minute haha 4d
  •   cerinab95 Oh, I also leave my shots out for about an hour because they hurt worse when its cold. 4d
  •   itsxserin You too @itsawatsonthing ! And it does sting a bit, but if you keep them out for about an hour, it'll still be good and work just as well. But it will keep the stinging from being as bad, @dsturbed ! 4d
  •   elleryslife I Love this! if you have a second come see what I'm trying to do to help kids with a rare disease called PCD 4d
  •   ucbabefighter Keep it out of fridge for 30 min, inject in the thigh and if necessary do it at night so you can sleep off the "hangover" feeling that comes with it for some. Also, don't trip if you feel a little funny after the 4 shots, your body will get used to it after you get down to your maintenance dose. 4d
  •   dsturbed Thank you so much everyone. ...you're all so amazing! I'm in Canada so it's a bit far for the pens but the offer alone means the world to me! @ucbabefighter @itsawatsonthing @itsxserin @cerinab95 @ambbow @closarge @mammaslovesbabygxo 4d

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cheyxobella Its that time again -_- #cimzia this better work 5d

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Hudson Lovisa Nilsson
loviisaan Sprutomgång 2 gick på 5 minuter 1 tur jag har en bra "sjuksyster" @cliddeman #cimzia #injection #selfinjection #rheumatic 1w
  •   kokshaxan Heja dej! Du är min hjälte!!!3d

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  •   sourgrapesss Good luck beautiful! Sending good vibes 1w
  •   wizer79 Good luck Beka! 1w
  •   erin_mercedes I hope you're feeling alright now. I've got you in my thoughts. Happy thoughts, healing, positive thoughts!! 1w

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d_marazetti Trying to stay positive however I am scared at the reality of 8 to 16 weeks with no meds...fingers crossed #psoriaticarthritis #PsA #spooniewarrior #chronicpain 2w
  •   ginavonc I just did 5 months. It sucks but you can do it!!! I'm cheering you! Why are they having you take a "break" from your meds? I invested in a really good heating pad. And thank God I did because that (and an occasional Oxy ) was the only thing to help get me through it. Sending you love and well wishes! Xoxo #hugs 2w
  •   d_marazetti @ginavonc I was on #cimzia so I have to be 10wks off that, already 2wks down. I will start #arava I think it is...it's like #mtx but easier on the stomach I guess...if I have psoriasis pop up I will start the #brodalumab study in 8wks. If not I wait 16wks for #xeljanz 2w
  •   jllands Mind if I ask why no more cimzia? I also had to stop it. Now on Stelara and Otezla myself. Best of luck! 2w
  •   d_marazetti I have to purge my system of TNF blockers as the new meds work differently. Oh @jllands I sure hope that combo works for you! The Brodalumab works on inhibiting inflammatory impulses and the Xeljanz inhibits a JAK enzyme... 2w
  •   jllands Gotcha! Was it not working well for you? I had luck with it for my arthritis but I started developing worsening psoriasis which was not worth it. I was off of it about 2 months before switching; may return to tnf blockers later but I'm praying this combo will work :) 2w
  •   ginavonc @d_marazetti Sounds like you have a good plan in place. I'll keep my fingers crossed for you too girl!! 2w
  •   d_marazetti @jllands the only thing that worked for a little bit was Humira but after 18mos it just stopped...then we did Simponi, Remicade and then the Cimzia...they don't work well enough for the side effects. Thanks @ginavonc I'm hopeful just worried... 2w
  •   jllands Aww it's always scary starting a new therapy. I hope these work well for you! 2w

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Rise Lovisa Nilsson
loviisaan Nu gäller det... #cimzia #injection 2w

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revbhoy67 #100happydays Day 78: New meds. The last month was pretty awful and shitty (pun intended). Here's to it working. #Cimzia #SubQ #crohns #crohnsdisease #happyrev14 2w

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stephanies.spoonie.story Does anyone else ever feel guilty about the amount of packaging waste your medication shipments create? It takes all of this to ship a tiny box of two injections!!! 3w
  •   stephanies.spoonie.story @susie_x_sue oh my gosh I can't even imagine all of the packaging that comes in! I wish they had better packaging practices to minimize waste. 3w
  •   blossomingspoon Unfortunately it had to be done. That packaging secures the safety of your medication through transportation. I work in a pharmacy and have received tons of broken items due to improper packaging... It seems like a waste, wish they could figure out a better way lol. Don't feel bad, try and recycle or reuse what you can lol. All my amazon boxes I receive I duck tape them and use them around the house, and don't get me started on the bubble wrap lol 3w
  •   stephanies.spoonie.story @blossomingspoon yikes. That's no good. They also just switched the packaging. The box used to be much smaller with less ice packs and a different cooler. I just wish they had smaller more efficient materials! I try to reuse and recycle as much as I can too! I have an entire freezer full of ice packs...lol. I always tell my friends and family never to buy them because I have plenty to go around! 3w
  •   blossomingspoon That's a good thing lol. I have like four different types of ice packs in my freezer, my son will hear me say ouch and run to go get me one immediately lol 3w
  •   stephanies.spoonie.story @blossomingspoon aw that's too sweet!!! The ice packs do come in handy...but I don't need 100 of them! Lol 3w
  •   blossomingspoon Lol right 3w
  •   tap_emg_clr_ox I take cimzia as well for my crohns. And I think that every time. @stephanies.spoonie.story 6d
  •   stephanies.spoonie.story @tap_emg_clr_ox yeah I wish they could cut down on the materials used! 6d

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Normal sugarpits
crystalmkpink Done for tonight. My hands are aching..damn RA! Going to do my #cimzia injection and head to bed. 3w

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jthorn676 3 years ago today my diagnosis was confirmed. My reasoning and explanation for my exploratory surgery and long hospital stay were finally explained to me. I remember the tears i had stream down my face and the fear i felt as my doctor confirmed that i not only had crohns disease but i had an aggressive form. No cure and no reasoning behind while i got it. It seems a little ironic that this post came up on my news feed as my husband just got done sticking two needles in my legs for my medication and i sit in bed with so excruciating abdominal pain. Thankful for my extremely supportive husband! 4w

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the_ian_ 2 years of #antiTNF injections for #crohns. never had the time to properly dispose them at the facility until now. not sure how I feel about these. but it's working. fellow #ibd patients that see this, you are not alone. that was my fear. // #hope #crohnsproblems #jpouch #laughatcrohns #inflammation #livewell #authenticity #ccfa @ccfa 4w

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jeanellehooks Trying a new #RA med today. #Cimzia #hateneedles #freakingout 4w
  •   priscilla7905 What is it 4w
  •   jeanellehooks @priscilla7905 it's another type of RA med similar to Enbrel or Humira. But I'm used to the auto inject pen bc I can't see the needle but this one I can :( 4w

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ashleysloan7 Remicade Infusion Day! Now instead of a random fact about my disease, Ankylosing Spondylitis (AS- to raise awareness which is the only reason I share these things on here hah ), I'll share a fact from @spondylitis about biologics, which is the class of drug that Remicade is. Remicade is the only IV drug for AS, the rest are more frequent shots { Sidenote: Not looking to change my drug but who's on #Cimzia ? Thoughts?! } 4w
  •   ashleysloan7 FACT: The Biologics: TNF Inhibitors
    The Tumor-Necrosis-Factor alpha (TNF-a) blockers are biologic medications that have shown great promise in treating ankylosing spondylitis. They have been shown to be highly effective in treating not only the arthritis of the joints but the spinal arthritis associated with ankylosing spondylitis and related diseases.
    The most serious known side effect of the TNF blockers is an increased frequency of infections, especially tuberculosis. Thus, a TB test is usually required before starting any of the TNF therapies. A very rare possible complication is increased frequency of cancer, especially of the blood (leukemia) or of the lymphatic system (lymphoma).
    It should be noted that each TNF-a Inhibitor / Biologic medications works in a slightly different manner. Thus, if one does not have a positive effect, another one might.
    #ENBREL (Etanercept)
    #REMICADE (Infliximab)
    #HUMIRA (Adalimumab)
    #SIMPONI (Golimumab)
    #CIMZIA (Certolizumab pegol) 4w
  •   victoria_obseussed #kickAS my Insur quit covering my med at the beginning of the year so I've been on the flare roller coaster and trying to decide if I try a biologic. I don't know anything about Cimzia. Stick with Remicade since it is working. 4w
  •   mitchellncompany I couldn't help but notice your name is my name, my first daughter Sloane and you live in Fort Collins which is my second daughters name . @ashleysloan7 4w
  •   feealicious Fighting too! 2w
  •   preciousrose73_aswarrior You are so beautiful Doll! 1w
  •   tap_emg_clr_ox I'm on cimzia. Been on it for about 4 yrs. I continue to battle the diseases up and downs. I'm never in full remission. But my dr. Told me the next biologics would effect my brain and I'd have to have Neuro scans mthly. Do I decided to deal with cimzia. @ashleysloan7 6d

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