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piperinthepond Super late on my #cimzia injection! 3h

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brielleroseboutique Happy brithday to me :/ just got 6 of my cimzia syringes in the mail today. Hope it kicks in fast. #ibdawareness #ibd #prednisone #cimzia #crohnsdisease #ulcerativecolitis # celiac #stillsmiling 7h
  •   jimcarroll74 Be sure to take syringes out to warm up.slightly, it takes some of the sting away injecting it when it isn't cold from fridge-good luck with it, have been using it for over a yr now 5h
  •   brielleroseboutique @jimcarroll74 will do! I had to do the same with my humira. Im nervous for the syringe instead of the pen! 5h

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marisaandbeans Time for my monthly shots! these nurses! #screwcrohns #cimzia #ccfa #crohns #infusioncenter #nursesrock 10h
  •   mandycita At least you have adorable shoes! Hang in there boo 9h
  •   jozzyaz Exactly my thoughts on the shoes...you look doing it @marisaandbeans! 6h
  •   cpieteri Shots shots shots shots shots shots... Everybody! 5h

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samantha81rae Ok, she looks like a total creep! "It's ok momma these are gonna hurt" lol thanks Sen I know they hurt! #cimzia time #shots and not the fun kind. 1d

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itsxserin Lunch at work, because the food here sucks anymore, or I'm not able to actually eat it.

Sometimes I feel like I'm subconciously trying to kill myself with food, hoping it'll send me to the hospital. Then will my crohns be bad enough that my GI will actually listen to me..?! #crohnie #crohnsdiease #evilsubconscious #depression #anxiety #chronicdisease #chronicpain #chronicillness #rockstarpunched #rockstar #goldfish #imsohungry #canteveneat #givingup #dontcareanymore #sosick #donewithallofthis #sosickofmybody #xanax #celexa #prednisone #cimzia #6mp #mercaptopurine #toomanymeds #stupidmedsdontevenwork
6d
  •   tonythebeatt Honestly you and your gi need to be best friends for anything to work. I would suggest switching gi's 5d

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  •   jimcarroll74 @itsxserin only reason I'm on the cimzia is my insurance will not for any reason approve the remicaide infusion, yet they spproveca 35grand camera pill, so who knows 6d
  •   jimcarroll74 @itsxserin the humira stopped working for me after about a year and the cimzia is the only thing right now that works for me, my body is weird when it comes to medication to begin with 6d
  •   itsxserin @jimcarroll74 same here. I have weird reactions with medications. Remicade stopped working for me after like 6 months. The humira helped keep me in remission after my temporary ostomy but my insurance kicked me off for three months so now it won't work. And cimzia just hasn't worked from the beginning. 5d
  •   jimcarroll74 @itsxserin yeah, I'm dreading when the cimzia quits working for me, Dr Katz was talking possibly more surgery, plus my crohns has moved to my throat, which me being me, I'm like the only patient in Ohio who has it , some days I'm like why me, but after seeing what my sister in law went thru beating stage 4 breast cAncer, I know whatever I'm going thru I can deal with 5d
  •   itsxserin @jimcarroll74 awe, I'm sorry about your sister in law, and to hear about your crohns :(
    My mom passed away from colon cancer. She was like the only one I could talk to all of this about and she would understand, and id understand what she was feeling. I wish she was still here right now so I could vent to her.
    I hope the cimzia doesn't stop working for you, or he knows what to do next. I wish he would just do surgery or something on me. I'm sck of waiting for medicine to "hopefully" start working. I'm so nauseous after I eat lately, I can't stand it. 5d
  •   jimcarroll74 @itsxserin I'm sorry to hear about your mom:( , could your nausea be from the 6mp your on? I'm just trying to remember from when i was on it, does ginger ale offer any relief? I know I saw a accupuncturist yrs ago who said to slice a lemon and smell it, lemon was a natural anti nausea scent....I'm just trying anything to help you out... 5d
  •   itsxserin @jimcarroll74 thanks.. I'm not really sure. I know it was making me nauseous when I took it, so I take it before bed. But now it happen after I eat too. I woke up ith the worst acid reflux this morning and it won't go away. 5d
  •   itsxserin @jimcarroll74 I need to hopefully get zofran. Lemonhads usually help for a bit too 5d

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itsxserin I wanna be fixed already. I'd like to feel "normal" again.
I wantto eat food without the pain/nausea/and million bathroom visits.

#crohnie #crohnsdisease
7d

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itsxserin This picture is the only thing making me smile at the moment.
This would be my face if @dc2teggy16 told me that we were going to just pick up and move somewhere out of Ohio tomorrow. (: About to vent like crazy.. I'm getting pissed with this disease and my new GI doctor. I'm on freaking Prednisone (in the process of weening off), 6mp, and cimzia for my Crohns. None of them are freaking working!
Tests showed that the inflammation is where my resection was, where my colon and small bowel were reconnected, and NOW its at the end of my colon. It was never there before....
I can't eat anything except saltine crackers without having pain and nausea and running to the bathroom. I asked him about having TPN for a month to let everything rest inside but apparently I'm not losing enough weight for it to be necessary and the inflammation isn't taking over my insides enough for him to be that worried... Apparently the extremely low iron is why I'm so exhausted and feel like I haven't slept in two weeks. I wake up and want to go back to bed within an hour. I'm all shakey. I hate it.
Yet my GI called and said my results looked okay, even though my hemoglobin/hematocrit/red blood count/iron were all really low.

Seriously!?
I'm so sick of looking for new doctors. Wtf.
I'm so done with everythingg
1w

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Unknown itsxserin
itsxserin Dude, looked at my blood results online and some of the results were pretty low (they were even in red); hemoglobin, hematocrit, red blood count, iron, protein, calcium... Uhm, why hasn't my GI called about it? Should I not be worried? The iron level should be in the 35-105 range and mine is at 8.. can't take pills for iron, can only get infusions. Either way he hasnt called. Are all the low levels from the stupid #mercaptopurine ( #6mp )? Shit isn't working anyways.

I hate this. My GI is supposedy one of the bes but I feel like he isn't actually doing his job, or a good job at all.. wtf is going on with my body!?
Just take my damn intestines out, they're useless. I'm sick of feeling so #exhausted and #inpain . I'm sick of not being able to eat. I can't take this anymore. I'm taking medications that aren't helping my symptoms now, yet creating worse symptoms and side effects. This is bullshit.

#imdone #crohnie #crohnsdisease #crohnshelp #chronicdisease #chronicpain #chronicillness #ibd #sosick #sosickofmybody #anxiety #depression #fixme #cimzia #bloodtest #labresults #xanax #potassium #celexa #prednisone #toomanymeds
2w
  •   enlightened89 As then he might want a blood transfusion 2w
  •   itsxserin I'll have to check and see if that was taken. My damn phone won't let me log on the site now so I have to wait till I can use a computer or something. What's an Hb level? 2w
  •   lexemma @itsxserin my dear....its the same on some days with me...but sometimes I can eat almost everything....it's so weird..I can't don't know what will cause pain and stuff :-( today.I had a hamburger :-D :-D and --> enjoyed for a while.. :-D :-D otherwise I am ok with saltines, potatoes, soups... 2w
  •   jimcarroll74 Knowing Dr Katz he has seen them, just tell him your just calling about your blood work levels and wondering what his plan was , he has to have something in the works for you 2w
  •   jimcarroll74 Hb levels are your hemoglobin levels 2w
  •   jimcarroll74 If your having that much pain from eating , you might want to ask him about tpn, just to give your intestines a break and give your body a chance to heal , it did wonders for me when ibcoukd not eat because of my crohns 1w
  •   itsxserin @jimcarroll74 that's what I keep thinking would help. He wants nothing to do with surgery it seems, but none of these meds are working.. I'll have to ask when I call him tomorow.. he called and left a message saying my blood work looked fine..??? And that I should take an iron pill but if I'm not able to tolerate them, to call his office right away. So I pretty much called him back right away and got an operator who said shed only be able to connect me with whatever fellow was on call tonight.. so I'm just gonna call his office tomorrow and tell him I can only get iron infusions and ask about tpn. I need to stop usng my insides for awhile I think 1w
  •   jimcarroll74 I think the tpn would definitely be beneficial for you, it helped me immensely when I was on it, yeah you have to get a central line put in , but if it gives your intestines and stomach a chance to heal, you will notice a big difference to, actually getting nutrition into your bloodstream , I'm hoping he calls you back tomorrow and you can discuss at least it as an option, all the symptoms your venting about, I went thru them all, you will get thru this, you have the fighter attitude which you need:) 1w

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d_marazetti Really not the best pic. But I did it! I bought a new BIKINI! #effyourbeautystandards and thank you @tessmunster for the inspiration to love myself always! 2w
  •   munecaxo3 If they make it in our size. .. We #wear it! !! 2w
  •   d_marazetti @munecaxo3 it's www.swimsuitsforall.com best website ever! 2w
  •   munecaxo3 I still do victorias secret but thank you. . I'll look. .. lol if it carries DD I'M GOOD. ... ;-)@d_marazetti 2w
  •   d_marazetti I am an F cup! 2w
  •   heathercaputo17 It looks fantastic! 2w
  •   munecaxo3 Lmfao damn alphabet just goes on and on. ... ;-* @d_marazetti 2w
  •   munecaxo3 How you been feeling? ??? 2w
  •   d_marazetti @munecaxo3 you know same ish different day...I have to give this #cimzia at least 3 more months before I give up on it...then I go to clinical trials...sounds awesome huh! Saw my doc yesterday and he gave me the great news of...drum roll please....they have No More Medications that I can try! I have literally tried everything and nothing has worked! I'm an anomaly lol...but I keep my c u in high and a smile on my face #nobodycanbringmedown 2w

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mssarahalexis Day after Cimzia slump. Just hanging around the house. 2w

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itsxserin So the pain when I've been going lately, and the mucous and the blood and the hard o go feeling; its because of the active crohns near my rectum..
Have to wait 6 more weeks so that I'm weened off the #prednisone and then I'll see my GI doctor again to see if I should stay on the #6mp and #cimzia or if we should change something... I feel like shit.
I'm so sick of this.
#crohnie #crohnsdisease #ibd #chronicpain #chronicdisease #chronicillness #inpain #fixme #justwanttofeelbetter #tryingtostaystrong #tryingtobehappy #imdone #mercaptopurine #anxiety #depression #fuckthisshit
2w
  •   jcerda1982 @itsxserin stay strong.@lexemma im still inbthe jospital sick 2w
  •   davebfit @itsxserin Prayers for you! I understand your pain :( 2w
  •   lexemma @jcerda1982 :-( ooh...what do the dovtors say?do they have some plan? 2w
  •   charbarsprstar I'm sorry, I hope you feel better soon! 2w
  •   jimcarroll74 Hang in there, you will get thru this 2w
  •   jimcarroll74 From personal experience I have been there, even got so sick that my body weightvwent down to about 120lbs from going so much, being 6ft 1 , I looked like a holocaust survivor, but I'm here today, you have to kick crohns butt, you can do this 2w
  •   starsedwards I'm sorry 2w

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piperinthepond Injection time. #crohns #cimzia 3w

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the_ian_ It's the 10th anniversary of my GI tract declaring independence from my body. Summer 2004 i went from guy with no problems and like a light switch fell ill and then to emergency surgery to more surgeries and finally a #jpouch. 2 years later I would learn it wasn't the cure they said it would be and a endoscopic wireless camera pill you swallow confirmed #crohns instead of #uc. These 2 shots a month are a miracle of science. It blocks my immune system from destroying my own guts. But it also blocks the same immune bullets that destroy actual bad things in you. I'm thankful for each new day I have. Someday I'll declare independence from my insecurities and fears from #crohns but it's a process and this post is part of that process by publicly sharing my reality. I am happy to see so many other people online share their stories too. #ibd #cimzia #crohnsdisease #nocolonstillrollin #ccfa 3w
  •   jasonmday Dude. Sincere things are so rare on the interwebz. Thank you for sharing this. I am proud of you. 3w
  •   the_ian_ @jasonmday thank you my friend, and you are right 3w
  •   paperanchors I know it's cheesy, but what make you vulnerable makes you beautiful. Good sharing, my friend! 3w
  •   aaronnorris Had no idea! 3w
  •   dirtyrunner1982 Incredible. Stay strong! 2w
  •   joechaps Thanks for sharing. I have had Crohns for 13yrs now and am trying to get on Humira. I live in SoCal also, thanks for being so honest and transparent. 2w
  •   the_ian_ @joechaps thanks man!. I have been on humira as well. It took some guts to post it but it's a little cathartic with the great online community of people like #ccfa. I have seen others post so openly and I have a story as well to tell but haven't had the opportunity. 2w
  •   the_ian_ @paperanchors thank you ️ it's not easy to share like that for me so openly, I just hope other #crohnies will see and be inspired in some way 3d

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  •   charbarsprstar We have matching abdominal scars around our belly buttons! Lol :) 3w
  •   itsxserin @innovative89 very nice. There's no need to fear it though. The concept of a stoma bag is hard to come to grips with but you get used to it. I can't believe that! I'm so sorry to hear :( are they doing anything to help? Is there anything they can do..? @charbarsprstar hahah, very nicee. They're cute (: 3w
  •   enlightened89 @itsxserin I'm on a load of psychiatric medication and immunosuppressants - aziathioprine which I think they sometimes use for chrons?! 3w
  •   itsxserin @innovative89 yeah, I've read thats used for crohns. I'm so sorry you're going through that, beautiful. 3w
  •   itsxserin @innovative89 its definitely hard to keep fighting when everything seems like it can't get much worse, but try your hardest. Something good will happen and it'll be so worth it. You're put on your journey for some reason, just have to wait to find out what it is! 3w
  •   enlightened89 I just feel like giving up atm, 1st diagnosed with bipolar then they found these antibodies. Being seeing a neurologist for a year. On a shit load of medication I don't wana be on :( 2 boyfriends left me. Career on hold. Off sick at the moment :( are u working currently? 3w
  •   itsxserin @innovative89 keep going, love! I'm on so many medications and half of them are literally doing nothing except giving m the bad side affects. I'm in pain constantly and its worse when I eat, so I'm usualy on a pain pill 24/7, and even then I'm in pain still. I have to start seeing a pain management doctor which I'll start on Monday. But I'm out of pain meds now so I'm hoping I can mke it through work this weekend.

    I've gotten a thee day suspension from work for going to the hospital too many times. Which I don't even think is legal.. so next time I have to call off cause of my crohns or go home in pain cause of it, I'm fired.. its hard to function at my job though; I'm a nursing assistant at a rehab nursing facility.

    As for school; since I'm on a steroid I can't get live vaccines, which I only need one and I would be okay but the program people are being dicks about it so I can't start this August like planned. This is the second or third time now that I was suppose to sstart but had to postpone because my crohns got in the way. So now I have to wat till fall of 2016, possibility for earlier, to start the nursing program.

    I don't mean for it to sound like I'm competing with you either, so please don't take it that way. I hate when people try to play the "one up" game with me to compare what's wrong with us. It pisses me off. I'm simply trying to tell you, that life can seem like complete shit, but there's gotta be something to keep you going. And if its not in front of you right now, you'll find it soon. 3w

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itsxserin Ready to take my #chubby #prednisone ass to work! Meh..
Fxckingbitch.

#crohnie
3w
  •   jimcarroll74 Hang in there, you will get thru this, after 25 yrs of dealing with it I have learned to roll with it, it will get better for you... 3w
  •   jimcarroll74 I didn't know if you needed a good Gi doctor but Dr Jeffery Katz is mine I like him 3w
  •   jimcarroll74 He is at uh downtown 3w
  •   itsxserin @jimcarroll74 that's who I'm seeing now! Dr. Powell referred him to me and I've been seeing him since about beginning of May 3w
  •   jimcarroll74 Been seeing him just over 3 years now myself 3w
  •   itsxserin @jimcarroll74 what are you taking for your crohn's if I may ask? Are you feeling better on it? 3w
  •   itsxserin @jimcarroll74 I'm on 6mp, prednisone and cimzia right now and none of them are working. I'm in constant pain and I can't eat anything without being in more pain. 3w
  •   jimcarroll74 I'm on cimzia, prednisone, Imuran right now for it, it controls the symptoms , but there are some days that are rougher than others...I was in the same boat as you after my diagnosis in 92, couldn't eat without pain, turns out in had narrowing and blockages in my small intestines from the crohns, had surgery and aside from flare ups and now the crohns is attacking my throat...you just can't stop fighting , never give up... 3w

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