9,353 Posts

mita__xx My beautiful mum rocks her purple as her work uniform BUT today decided to wear it for awareness of Lupus. Thank you from the bottom of my heart all you do for me & Amora! #WeLoveYouBubu ━━━━━━━━━━━━━━━━━━━
#MayLupusAwarenessMonth#KnowLupus#NoLupus#FindACure#Lupus#LupusSucks#LupusFact#ChronicIllness#ChronicDisease#AutoImmuneAwareness#AutoImmuneDisease#LupusWarrior#InvisibleIllness#LupusAwarenessMonth#WorldOfLupus#LupusSufferer#FactOfLupus#DiscoidLupus#SLE#SpoonieStrong#SpooniesUnite#Canberra#ACT#Australia.
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jo_718 I just walked a good minute without my cane just now ... Doesn't seem exciting but for me it is ... First Time in months ... Still waiting approval for my walker with a seat or wheelchair.. Its gonna take getting used to the staring n jokes but hey I walked today go me woot woot . #walking #cane #rhuematoidarthritis #Lupus #chronicillness #chronicdisease 2h

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wh0atherr Bathroom half body selfie :P Ignore the paper towel trash mess in the background. I take this guy everywhere when I'm feeling good. :) #bathroomselfie #walker #MyastheniaGravis #chronicdisease #chronicillness #random 3h

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lupus_life How many of you have experienced this exact situation?This is why it is SO important to get to get information on your quality of life. Using that in combination with your lab results can help your doctors come up with a better treatment plan for you. If you'd like to participate in a survey that will help collect that info, go to bit.ly/lupus_life (link is also in bio). #SelfCareSaturday #Lupies #Spoonies #Management #LupusSucks #LupusWarriors #InvisibleIllness #ChronicDisease #Life #Hope #LupusCommunity #ButYouDontLookSick #LupusAwareness 11h
  •   laloca_lulu Too many times to count!!! >BIGSIGH< 11h
  •   msdanabug Going thru it now...time to find a new doc 11h
  •   kellierivers This has happened to me too!! Now it's your land are crazy but you look fine... 10h
  •   mickeynsync I was in the hospital couldn't move my legs and this happened to me. The doctor said I was crazy. 8h
  •   brim2sole Yes!!! And people look at you and say but you look fine!!! 7h
  •   mstracymoss So hate when this happens. 7h

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17h frkgraham
Hudson Merete Kristoffersen Graham
frkgraham 17h
  •   frkgraham @tfonovic aww, thank you so much! And the same to you! I love what you've been writing on your posts about being stronger than your diagnosis etc. so inspiring! Hope you're doing fine, take care, sweetie 15h
  •   frkgraham @sabriyah_star aw, that's so sweet of you! And don't feel any pressure about posting it. The most important thing is to take care of yourself. You can post it whenever you feel well enough, doesn't matter if it's in 2 weeks or 2 months. I hope you'll feel better soon, lovely! Take care of yourself 15h
  •   sabriyah_star It'll be soon! I finally graduated high school so my schedule has freed up a lot! I'll do my best! ♡ Every day is different. Some days are bad, some days are from hell. It's like roulette, you know? XD You take care of yourself, too ☆ 13h
  •   sadelheid 10h
  •   tfonovic @frkgraham thanks Merete that means SO much to me. You got this girl. If you ever need someone to listen, I will always be here. I can only imagine how rough it has been. Stay positive! You know what they say, what doesn't kill you only makes you stronger!! We will be there for each other! Any time any day!! Bless you!! If you don't mind I would love to repost your status? 8h
  •   tfonovic you are an angel!! 8h
  •   frkgraham @tfonovic yes of course, go ahead an repost all you want I'll reply more later (Eurovision song contest on TV, hahaha) 8h
  •   tfonovic Ha ha ha enjoy!! Xo 8h

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afrancesb #daytwentysix this photo won't make sense but it's how I feel at this very moment. A registrar doubled the dosage of one of my drugs and I feel completely out of it. I've taken myself back to bed to lie down because it's the only way I can feel a little better. I'll just lie here until it wears off ... Ahhhh 😶🐀 cat off #onehundreddayschronic #lupus #sle #chronicillness #chronicdisease #systemic #arthritis #fibromyalgia #pain #chronicpain #hermit #youdontlooksick #doyouwanttolookagain #invisibleillness #disabledattwentytwo #lupuswarrior #iwillwin #fuckyoubody #hardbattle #mightaswellbeatwar #depression #anxiety #spoonie 19h
  •   vix_30 hope you feel better soon x 17h

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kingsfankari WWW.GETMYID.COM My collection. One scan two seconds one life saved. @GetMyId provides an amazing, innovative, lifesaving alternative to medical alert bracelets. Not only can you wear these bracelets 24/7, heck, swim with these bracelets and they will hold strong. No engraving, no names on the bracelet, just a QR scan code a unique code and pin. You are given an online medical profile account which is amazing. Responders can access your online medical account by scanning the QR Box, calling the 800 number also on the bracelet or going online and entering the code and PIN number. Rather then just accessing the limited engraved information they will see your emergency contacts, ailments, allergies, current meds, physicians, insurance info, special instructions, etc. it also includes a spot for a picture for identification purposes. I have used this many times and it has saved my life. I highly recommend anyone with ailments or allergies to purchase one of these bracelets. Youth or adult sizes starting at $19.99. Go to getmyid.com You will love love love these bracelets!!!!! #medicalalertbeacelet #getmyid #allergies #family #epilepsy #neurologicaldisorder #diabetes #cancer #autoimmune #chronicpain #mentaldisorder #supportgroup #addiction #ChronicDisease #saveslives #Kaiser 20h

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cleanseyourlife NOT PREGNANT but I look like it! This is why I have to stay strict with my diet. It seems like Paleo/Whole30 is the way to go for my body right now. Adding in some sugar and gluten free grains is a no go The bloating is so uncomfortable. Back to Whole30 I go. I guess it's good my body forces me to otherwise I don't think I'd have the dedication! 23h
  •   theunimpossibles Beautiful! 22h
  •   jamielynnmcdonald I finished my first whole30 yesterday but am still having some stomach issues. So iate a fw paleo muffins today and a little cheese. Tomorrow I'm starting round two and I'm going to really focus on healing my gut. More broth, more fermented veggies and some supplements recommended I practical paleo. Hopefully it helps! 22h
  •   cleanseyourlife @jamielynnmcdonald good for you!!! My stomach issues did so much better on my second round than my first. I think it just takes time. Good luck! 14h
  •   nextgenoils Have you ever tried Moringa superfood? 14h
  •   sherirose85 This is me 100%. I've been cheating on Paleo and having some cheese lately and my stomach is hating me big time. Me and a bloated stomach go hand in hand 13h
  •   cleanseyourlife @sherirose85 ugh that stinks! Bloating is the WORST! 13h
  •   eating_for_eliza Gaaaaahhh this is me. Dairy, corn, and sugar. I just want nachos!!!! Just stumbled across your IG and can't wait to check out your blog to see how you deal with chemical sensitivities in your son - we are suspicious of similar problems with our youngest. 6h
  •   lotb_food My stomach does the same thing & no one believes me! I know the feeling: so not comfortable! 2h

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mita__xx •••••••••••••••••••••••••••••••••••••••••••••••••••••••
The big sis @miss__jay getting her purple on for #MayLupusAwarenessMonth. Only you know the realities of how deadly Lupus can be so I want to say thank you for ALWAYS supporting me & spreading the word about Lupus .
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#MySisterIsBetterThenYours#BigTaci#MissJay#Sister#Lupus#LupusSucks#ChronicIllness#ChronicDisease#AutoImmuneAwareness#AutoImmuneDisease#LupusWarrior#InvisibleIllness#LupusAwarenessMonth#WorldOfLupus#LupusStrong#AutoImmuneFighter#KnowLupus#SLE#FindACure#CureLupus
23h

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tri_nutrition_ MAGNESIUM: our RDA is between 310-420mg per day but experts are currently suggesting an RDA of 1,000mg for North Americans.
Magnesium is involved in so many metabolic functions in our bodies. When we are having a #Crohns flareup, we lose many important #electrolytes including #magnesium. It's important that we replenish magnesium. It helps us to relax all of our muscles... And in Crohns Disease, when our #intestines are #spasming and #cramping during a #flareup, replishing magnesium is very important in helping to alleviate these spasms and contractions. Magnesium also exerts an overall #calming effect on our bodies and can help relieve #anxiety associated with a flareup.
#CrohnsDisease #nutrition #leafygreens #pumpkinseeds #minerals #chrons #chronicdisease #inflammatoryboweldisease
1d
  •   just.anamaria So true! Don't forget coconut water! High in electrolytes, easy to digest. Seeds of any kind are pretty much shrapnel in my intestines, unless in a completely smooth butter form. 1d
  •   tri_nutrition_ Ooooo yes! You're absolutely right! thanks so much! Coconut water is an amazing source of electrolytes! raw seeds aren't good for me either... Nut butters and seeds are where it's at😀 @just.anamaria 1d

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  •   aliesha_arrington I'm sorry girl! I'm stuck in the hospital and have a hard time sleeping as well. I had my stomach cut into to repair a hernia and remove more intestines. Feel better love! 1d
  •   moonchild_8 Hope you are able to finally sleep soon! Im in your place just about once every night! Thank goodness for the natural stuff! It has been a blessing and probably saved my life. The pharmaceuticals were destroying my body😕 Sending lots of positive vibes your way 1d
  •   luckylife92 It helps me too! Hope you are doing well! 1d
  •   crazycrohnie I'm still awake and it's now 2.45am @luckylife92 @moonchild_8 @aliesha_arrington 1d
  •   luckylife92 I'm sorry :/ 1d
  •   aliesha_arrington Sorry love! I just took ambien so ok going to bed now. 23h

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ryanleefmp Announced $17M today with Hon Mike Nixon to support communities #MentalHealth and #ChronicDisease Management. #Yukon #Health 1d

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