596 Posts

henriksenhenriette Masser af granatæble, chia, mandler, friskpresset appelsin på skyr. Nomnomnom
#healthynutrition #nutrition #lovefood #fitfood #fitliving #fitmom #kronisksyg #morbusbechterew #ankylosing #spondylitis #superfood
4d

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  •   tybjket like 4d
  •   mrotsarbed I am so glad you found a doctor you like! I pray this works for you! 4d
  •   katiebeth1986 @MROTSARBED Thanks! I'm pretty sure I'll go through with it. I'll call my nephrologist tomorrow and see if I can get in before the new year and go from there. The surgeon's biggest concern is my kidneys. He said the surgery should be smooth. He recommends the older, posterior approach because of my other health conditions and it has less complications. It requires a longer recovery time but it is a much sturdier procedure. My sister in law recommended that as well. She is a surgical RN who worked in orthopedics and her husband is also an orthopedic surgeon who said the same thing. This doctor was very nice and he seemed genuine and answered all my questions. He seemed like he really cares. Not to mention the office runs so smoothly! I was so impressed by how efficient the office was lol 4d

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henriksenhenriette I love walking! It makes me feel awsome. It cleares my mind. 11 km in my legs.
#walking #fitliving #lovemylife #babylove #walkthedog #ankylosing #spondylitis #makeithappen #Dobby #the #dog
6d

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Normal PSrboljub

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samthebrown My new #medicalert #necklace from www.wishingwillowmetalarts.com - THANK YOU Jennifer! I love it!!!! #ankylosing #spondylitis #spoonie #rheumatoid #arthritis @wishingwillowmetalarts 2w

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samthebrown For all my #spoonie friends - check out @wishingwillowmetalarts for prettier, more interesting #medicalert options. The necklace is mine, and shipped to me today. Jennifer was a delight to work with and sent me pictures of options as she went, since she was designing her first #medicalalert #necklace. #ankylosing #spondylitis #rheumatoid #arthritis #cfs #me #chronicillness #livingchronically #autoimmune #spoonie #bydls #lupus 2w
  •   peternbiddle Pretty! 2w
  •   loren_hall I need a huge favor please! Please check out the link on my bio... It's for a good cause and involves those that have Autism, Down Syndrome, ADHD, and more.. Please help us create awareness and spread the word about this! 2w
  •   preciousrose73_aswarrior Nice! I love it! Thank you 2w
  •   journeyappstore3 Please check out our page and help us spread the word :) 2w
  •   samthebrown @loren_hall I checked it out and signed up to beta test. Pleas pm me if there is anything I can do. I have a good sized network of folks, and used to test software. I've also kicked this disease's butt for 30+ years. I'd be happy to play with it and do what I can. 2w
  •   samthebrown @peternbiddle thank you! I liked the cuff bracelet for guys too. Thought it was a neat option. :-) 2w

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  •   fit_models Nice. Check out our profile, if you want to be featured use the hashtag #fitmodels! 2w

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duffitness So go back 5 mornings to Monday.
Both hamstrings were knots and my left sciatic nerve was pinched, my left ankle in pain from the Ankylosing Spondylitis, the middle of my back in knots from the muscles clinching to keep my posture from failing and looking like a hunchback.
All I wanted to do was take pain killers and shots to alleviate the pain. But I remember that life. I remember the result from those choices.
So I showed up at my customers gym to do PiYo with her to help keep her on schedule. The workout sucked for me. I couldn't even hold a plank or do a warrior 1 without pain shooting down my legs. But I pushed through it. I knew if I just did what I could and get through it I would feel better.
Again repeat this Tuesday, Wednesday, Thursday feeling a little better and in less pain each and every day.
Now, Friday morning and after a short night sleep I am walking up to my friends condo gym once again and I look on my phone for what workout is for today. "Oh nooo it's Drench, the most difficult PiYo workout there is." Those little voices begin to talk in my head. You know those that tell you all the time to not do something. Telling you "you can't do that". Well I said to myself "BS Chris you've done this for 3 years now, you know to just follow the program and you'll get the results. Just press play, breath and do your best." Well that's what I did and that's what everyone of my customers, coaches on my team and those of you who have reached out to me for help with your health and fitness. Just do it!!! Because this morning I NAILED PiYo Drench and better than I have in the past. The pain from Ankylosing Spondylitis is fully receded and I feel younger stronger and ready to take on the day.
Follow the schedule and don't listen to the negative voices in your head. Trust and follow the Beachbody program and you'll get the results.
If you want the results you've got to do the work. There are no short cuts to living a healthy and fit lifestyle.
#noexcuses #beachbody #weightloss #fitness #ankylosing #spondylitis #justdoit #piyo #results #gym
2w

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katiebeth1986 guess I won't be putting my fentanyl patches on my chest anymore. The bigger square is from the tegaderm I had on covering the patch so I could shower. I only had it on for half an hour and didn't go to bed with the tegaderm on. The smaller rectangle shape with the two weird welts in the middle is where the patch was. I woke up in the middle of the night to my chest being very itchy. I had to move the patch to my arm were I don't get any reaction from the fentanyl patch. Next week when I get my refills, I have to wear two patches since my dr upped my dose from 25mcg/hr to 37mcg/hr so that's one 25mcg patch and one 12mcg patch at the same time. Joy. I'll be sticking to my arms.
#allergy #allergicreaction #adhesive #adhesiveallergy #tegaderm #fentanyl #fentanylpatch #wtf #avascularnecrosis #avn #hipreplacement #hippain #ankylosingspondylitis #ankylosing #spondylitis #autoimmunedisorder #rheumatoidarthritis #CKD #painmanagement #painmeds #nofilter #hives #benadryl #spoonie #chronicpain #spoonieproblems #spoonies #spoontheory #painsomnia #chronicillness
2w

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Normal Katie Pavlik-Lanza
katiebeth1986 I need a new pain management doctor. I've had it with me current pain management doctor after this past appointment. Plus I need to find a new one for health insurance reasons. My PCM recommended a pain management doctor but he isn't taking new patients right now. My PCM is going to try to get me in to see him, since they are friends and this doctor treats my PCM's wife. However, I'd like to have a couple of names as a backup incase my PCM can't get me in to see this doctor.
So if any of my fellow Spoonies could recommend a pain management doctor in Northern NJ or New York City, that would be great! I'm also willing to travel further for a really fantastic doctor. Thank you.
#textgram #spoonie #chronicpain #spoonieproblems #lifeofaspoonie #spoonies #spoonielife #spoontheory #painmanagement #doctors #northjersey #newyorkcity #nj #nyc #chronicillness #avascularnecrosis #avn #hipreplacement #rheumatoidarthritis #ankylosingspondylitis #ankylosing #spondylitis #autoimmunedisorder #nofilter #surgery #painmanagementdoctor #rheumatology #orthopedics #orthopedicsurgeon
3w

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jaydo22 To anybody that doesn't know, about a year and a half to two years ago I was diagnosed with Ankylosing Spondylitis, basically a type of arthritis where the vertebrae in my spine fuse together, and cause extreme pain, I can't even put into words how much pain it has caused me in the past… lets just say it was that painful, took me about an hour to sit up to get out of bed, and about 30 minutes to to walk about 15 meters…
Luckily, I haven't had a great lot of pain in the last year, but one day, my condition is going to catch up to me and I'm not looking forward to it… because it means I will have to give up my love for riding motorcycles as I will not be able to even move my spine without pain…
So to all people that tell me I should stop riding coz of my crashes I've had, can go fuck themselves, because I'm making the most of my love for riding while I can physically do it! Because one day, I won't be able to ride!

Like my favorite quote goes, 'It's not what cards you're dealt in life,
It's how you play them'

#Ankylosing #spondilitis
3w

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