scoliosisstory This is so accurate! ️ you never really know how someone feels or what they are thinking, never just assume you know... People can hide a lot of hurt behind a smile.. ️ I hope you all are doing well, if you ever need me I'm here! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs 3d

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scoliosisstory "A true friend is someone who sees the pain in your eyes while everyone believes the smile on your face"
My best friend doesn't even need to see my face, somehow just by reading my text she can tell I'm not doing well... I don't know what I would do with out her! I definitely have the best of the best! ️ hope you all are well! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength #bestfriend
7d

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scoliosisstory Headed to take a 3 hour test for work/schooling ... My #shortneck hahaha... Anyways I hope you all have a good day! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 1w

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scoliosisstory Beautiful little Claire whom I've only followed for a short time but inspires me daily to keep going, was declared N.E.D (no evidence of disease) ️ as of yesterday... You did it girl! Way to show cancer who's boss! So proud of you! 🏼🏼😀 #cancer #childhoodcancer #proud #scoliosisstory #waytogo #inspiring 2w

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scoliosisstory Oh Miss Ella Barna, we all miss you dearly here on earth but I bet you're having fun up in heaven today... Today you would have turned 13 years old, but cancer stole that from you and I'm so sorry sweet girl! I never had the chance to talk to you personally but you always had such a sweet spirit.. I thought about you all day today, today I smiled for Ella... Happy Birthday beautiful girl! #Ella #smilesforella #happybirthday #cancer #cancersucks #childhoodcancer #weNEEDacure 2w

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scoliosisstory Random little video I made for my best friend! ️ I love her so much and I don't know what I would do without her... She's going through her own little battle right now and I wish I could make it all stop and go away.. But everything happens when it's supposed to, and how it's supposed to.. I know she's tough enough to tackle anything life has to throw at her! 🏼 and I can't thank her enough for inspiring me each day! ️ I love you! @no_fear_just_faith #bestfriend #medicaltwin #scoliosissister #loveher #strong #hope #inspiring #scoliosis 2w

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scoliosisstory One who listens
Doesn't judge
And somehow makes everything all right ️ I love my best friend with my whole heart, I really, honestly have no idea what I would do without her.. We have both been having a really hard time these last couple of weeks.. Somehow just telling her how I feel makes me feel all that much better... Thank you for letting me vent about life, I love you! @no_fear_just_faith #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #bestfriend #medicaltwins
2w

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scoliosisstory Having a rather awful pain day today... Headache, neck pain, sinus infection.. Can not wait for my Phone Date tonight with my best friend @no_fear_just_faith 👭 #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 2w

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scoliosisstory This is my momma and I a couple of years ago... I just wanted to say a HUGE happy Mother's Day to all the wonderful Moms out there! You deserve it! "I think there should be a whole new definition for mothers who raise chronically ill children or children with incurable diseases. Being a mother is hard in and of itself but add an illness to the mix and it is nearly impossible. I am speaking from the standpoint of an ill child who has been taken care of, watched over, and fought for.." ️ Go read my blog to read the rest of my Mother's Day blogpost!! Link is in my bio! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength #mothersday #supermom #illnessmomma 2w

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scoliosisstory This is What someone who hasn't slept in over 24hrs looks like.. 😴I've Been having an extremely hard time with my pain... My medicine hasn't been helping at all 🏻 I don't really know what to do at this point, were calling my Drs ️bto Ask what the best option is as far as what we should do and how to manage my pain.. Because not sleeping and excruciating pain with no relief just isn't cutting it for me.. I hope you all are doing well! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 3w
  •   tpdb_14 Gorgeous 3w
  •   rene_0000 Dm me I went though the same thing 3w
  •   kassandra_mae_ 3w
  •   sapereirajoana I know how it is. I could say that I hope you'll feel better but I have scoliosis, endometriosis stage 4, adenomyosis, asthma and other stuff... So, I just hope that you're making yourself the most comfortable that is possible and if you can, distract yourself by watching tv (series/movies), coloring, reading, playing games, knitting... that is just some ideas and what I do. Oh and take your meds! Sending love to you 3w
  •   scolio_man Plus é Trooop Bellle que La Lune 3w
  •   scoliosisstory @damezilla @tpdb_14 @kassandra_mae_ thank you so much! 2w
  •   scoliosisstory @no_fear_just_faith I LOVE YOU!! 2w
  •   scoliosisstory @sapereirajoana thank you so so much!!! You are one tough lady!! 2w

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scoliosisstory Love This! 🏼 I'll be honest I'm not always strong, I can't always see the brighter side of things, sometimes it's hard for me to see what good could possibly come out of the pain... I don't cry often, but that doesn't mean I'm not hurt.. I've been having a really really hard time with my pain lately... Nothing seems to be helping, I don't sleep very well and if I do it's because I took strong medicine... I hope you all are doing well! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 3w

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scoliosisstory {I know I wouldn't be who I am or where I am without her by my side, helping me fight through this particularly rough life. She helps me see the brighter side of the situation, she helps me get through the never ending pain just by simply talking to me. I never in my life thought that I would live a life full of so much pain. That I would be the one to have multiple surgeries, daily medications, and doctors appointments. But here I am, taking it one day at a time, with my very best friend in the entire world.} ️ Just a little part of a blog post I wrote a while ago.. If you would like to read the full post you can click the link in my bio.. medicallycomplexandhopeful.blogspot.com #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #bestfriend #medicaltwin #scoliosissister @no_fear_just_faith 3w

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scoliosisstory This picture basically sums up how I've been feeling lately! 🏼️ Sorry I've been a little inactive.. Just having massive headaches, neck pain, rod pain... I hope you all are doing okay! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 3w

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scoliosisstory Random Throwback.. Because I REALLY miss my best friend! We are both going through our own little "bump" in the road, and I just wish I could be there for her.. I love you so much, thank you for always, ALWAYS being there for me and talking to me when ever I need you.. I Love you with my whole ️! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 4w

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scoliosisstory Yes my eyes are closed.. {thanks mom for the awesome picture!} Anyways today I had the opportunity to meet the sweetest girl who is going through bracing and physical therapy for her scoliosis... I don't know if any of you have ever heard of #curvygirls but it is basically a support group for people with scoliosis, and this sweet girl has decided to start a chapter in my town.. So I met up with her and we shared our stories, and it was a really great opportunity to meet someone who lives near me and talk about scoliosis... She's super sweet, and really trying to make a difference which I think is so awesome! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 1mon

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scoliosisstory Today marks 3 years exactly since my very 1st surgery on my back.. Having this operation I was so scared and nervous, I didn't want to do it, it was probably the most painful out of all my surgeries.. I had no idea that I would have 3 more surgeries after this.. Plus living with everyday chronic pain. I've definitely grown up and learned so much.. Happy #surgeversary to me! My life not perfect, my body not healed, but I am blessed.. #scoliosis #scoliosissurgery #spinalfusion #severescoliosis #surgery #hospital 1mon

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scoliosisstory 17 pills a day, 14 of them being to manage my pain! I'm up to taking 17 pills everyday, it definitely is not ideal, I don't like doing it! But I'm glad I am able to, I'm fortunate enough to have the healthcare that I do.. To have insurance that pays for most of it.. It's a much bigger blessing than I thought it was.. Happy Thursday, I hope you all have a great day! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 1mon
  •   ___imani._ Wow i couldn't take that! When I was in hospital I had all my meds in liquid except my laxatives because they said it tastes distusting but I. Had to take 5 laxatives one in liquid twice a day it's not nice! I can't swallow them so once I had to chew it and I litteraly felt so sick! I hate tablets🏾 1mon
  •   lymphomaniacwarrior 🏻🏻🏻 1mon
  •   esti_sofer May I ask why you're taking 14 pills for pain ? And the rest that is 3 pills - what those 3 pills for ? 1mon
  •   scoliosisstory Some are for nerve pain, some are for headaches, some are for intense pain.. 2 are antibiotics, and 1 is for sleep.. @esti_sofer 1mon
  •   esti_sofer @scoliosisstory thanks for answering xo 1mon

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scoliosisstory No my hair isn't done and I don't have make up on haha.. Went to a Physiatrist today which is like a glorified physical therapist... She wants me to try some new medicine and more injections.. I didn't get the injections today but I will be getting them soon! Just Another step in the process... #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 1mon
  •   hmm.well.ok Be strong. 1mon
  •   chronically_scoliosis Probably getting trigger point injections July 2 😬 hoping it works. 1mon
  •   scoliosisstory Those aren't very pleasant haha! these injections im getting will paralyze the muscle in my neck.. @chronically_scoliosis 1mon
  •   scoliosisstory @kimchis.mom thank you! 1mon
  •   chronically_scoliosis Never had them before. Kind of dreading it. I don't do well with needles in places other than my arms. aw that sounds rough. Good luck and hope it really helps 1mon
  •   chronically_scoliosis Honestly im dreading the injections but i want the day to hurry up and get here because it could help and im so ready for something to finally help. 1mon
  •   randaquraan 1mon

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scoliosisstory For my very best friend in the whole world who Is going through a difficult time..: I love you with my whole Heart, and although I can't fix you I will be here for you every step of the way! #bestfriend #medicaltwin #loveyou #wecandothis #scoliosis #scoliosisstory 1mon

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scoliosisstory @kandeejohnson , heated blanket, and pain medicine! 🏻 Headache, neck pain, back pain, it's all just lovely.. I hit my head getting into my car yesterday and bent my neck weird.. Which is awesome.. Don't even know how that happened.. but it hurt! I have an appointment bright and early ️ tomorrow at 8am! ️ I hope you all are doing well! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 1mon

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