scoliosisstory Love This! 🏼 I'll be honest I'm not always strong, I can't always see the brighter side of things, sometimes it's hard for me to see what good could possibly come out of the pain... I don't cry often, but that doesn't mean I'm not hurt.. I've been having a really really hard time with my pain lately... Nothing seems to be helping, I don't sleep very well and if I do it's because I took strong medicine... I hope you all are doing well! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 5h

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scoliosisstory {I know I wouldn't be who I am or where I am without her by my side, helping me fight through this particularly rough life. She helps me see the brighter side of the situation, she helps me get through the never ending pain just by simply talking to me. I never in my life thought that I would live a life full of so much pain. That I would be the one to have multiple surgeries, daily medications, and doctors appointments. But here I am, taking it one day at a time, with my very best friend in the entire world.} ️ Just a little part of a blog post I wrote a while ago.. If you would like to read the full post you can click the link in my bio.. medicallycomplexandhopeful.blogspot.com #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #bestfriend #medicaltwin #scoliosissister @no_fear_just_faith 2d

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scoliosisstory This picture basically sums up how I've been feeling lately! 🏼️ Sorry I've been a little inactive.. Just having massive headaches, neck pain, rod pain... I hope you all are doing okay! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 2d

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scoliosisstory Random Throwback.. Because I REALLY miss my best friend! We are both going through our own little "bump" in the road, and I just wish I could be there for her.. I love you so much, thank you for always, ALWAYS being there for me and talking to me when ever I need you.. I Love you with my whole ️! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 7d
  •   lauryntm99 hey! check out my blog, link in bio :) 5d

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scoliosisstory Yes my eyes are closed.. {thanks mom for the awesome picture!} Anyways today I had the opportunity to meet the sweetest girl who is going through bracing and physical therapy for her scoliosis... I don't know if any of you have ever heard of #curvygirls but it is basically a support group for people with scoliosis, and this sweet girl has decided to start a chapter in my town.. So I met up with her and we shared our stories, and it was a really great opportunity to meet someone who lives near me and talk about scoliosis... She's super sweet, and really trying to make a difference which I think is so awesome! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 1w

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scoliosisstory Today marks 3 years exactly since my very 1st surgery on my back.. Having this operation I was so scared and nervous, I didn't want to do it, it was probably the most painful out of all my surgeries.. I had no idea that I would have 3 more surgeries after this.. Plus living with everyday chronic pain. I've definitely grown up and learned so much.. Happy #surgeversary to me! My life not perfect, my body not healed, but I am blessed.. #scoliosis #scoliosissurgery #spinalfusion #severescoliosis #surgery #hospital 2w

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scoliosisstory 17 pills a day, 14 of them being to manage my pain! I'm up to taking 17 pills everyday, it definitely is not ideal, I don't like doing it! But I'm glad I am able to, I'm fortunate enough to have the healthcare that I do.. To have insurance that pays for most of it.. It's a much bigger blessing than I thought it was.. Happy Thursday, I hope you all have a great day! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 3w
  •   ___imani._ Wow i couldn't take that! When I was in hospital I had all my meds in liquid except my laxatives because they said it tastes distusting but I. Had to take 5 laxatives one in liquid twice a day it's not nice! I can't swallow them so once I had to chew it and I litteraly felt so sick! I hate tablets🏾 3w
  •   lymphomaniacwarrior 🏻🏻🏻 3w
  •   esti_sofer May I ask why you're taking 14 pills for pain ? And the rest that is 3 pills - what those 3 pills for ? 2w
  •   scoliosisstory Some are for nerve pain, some are for headaches, some are for intense pain.. 2 are antibiotics, and 1 is for sleep.. @esti_sofer 2w
  •   esti_sofer @scoliosisstory thanks for answering xo 1w

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scoliosisstory No my hair isn't done and I don't have make up on haha.. Went to a Physiatrist today which is like a glorified physical therapist... She wants me to try some new medicine and more injections.. I didn't get the injections today but I will be getting them soon! Just Another step in the process... #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 3w

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scoliosisstory For my very best friend in the whole world who Is going through a difficult time..: I love you with my whole Heart, and although I can't fix you I will be here for you every step of the way! #bestfriend #medicaltwin #loveyou #wecandothis #scoliosis #scoliosisstory 3w

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scoliosisstory @kandeejohnson , heated blanket, and pain medicine! 🏻 Headache, neck pain, back pain, it's all just lovely.. I hit my head getting into my car yesterday and bent my neck weird.. Which is awesome.. Don't even know how that happened.. but it hurt! I have an appointment bright and early ️ tomorrow at 8am! ️ I hope you all are doing well! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 3w

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scoliosisstory Never give up.. Better things are ahead! ️ {Medical Update} my CT scan didn't show anything new, we didn't expect it to its just a better picture for the surgeon to have to look at.. The only thing they saw was a sinus infection, it seems like I get sinus/ear infections a lot! So they're starting me on another antibiotic to try to kill this infection! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 4w
  •   nnqa92__ Yup..never give up..God will not give a test to his servants if he knows his servants cannot bear thats tests..maybe we are in difference religions,but i guess we still in a same opinion..i hope u will always have strength to face all challenges. 4w
  •   _rrla_ Romans 12:12 3w

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scoliosisstory Stars can't shine without darkness.. ️ It's hard being wide awake in pain, while everyone peacefully sleeps .. It's hard going through the same process every night.. But it is possible.. Somehow I get through this every night, somehow I wake up everyday and do what needs to be done.. ️ I hope you all are doing okay, if you ever need me I'm always here! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 4w

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scoliosisstory Had a CT scan today, so my doctors can see more clearly what they need to do! I get the results in the morning, I'll update you guys about what he says! couldn't do any of this without my #medicaltwin and all of you!! Thanks for your support!! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength #ctscan 4w

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scoliosisstory Every now and then it's nice to have someone tell me it's all going to work out, that it is all going to be okay, that I can do hard things! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 4w
  •   gailyyynityyy If only i could, i would.. Just to make you smile 4w
  •   chnar Pretty! 2w

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scoliosisstory I LOVE THIS!! I am constantly fighting with my body, wanting to do things that I physically can not.. It kills me when I miss a day of doing school I constantly think about what I should be doing, but in reality I can't change my situation or my pain, when my body needs a break, it needs a break.. ️ THANK YOU! All so much for constantly leaving me nice comments, and helping through this hard time!! I love ya! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 4w

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scoliosisstory What's going to get through the most is your attitude about your situation.. Am I completely exhausted? Yes. Do I sleep at night? Nope, not really. But all of this will make sense some day.. I've got about 7 hrs of good sleep in the last 2 days.. I'm tired, I'm hurt, but I'm not giving up yet.. My headache is just seemingly getting worse, hopefully we can get this figured out.. Spent most of my day in bed because of the pain.. Tomorrow is a new day! ️ I hope you all are doing well #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 4w

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scoliosisstory Sick and Tired of feeling sick and tired... Through this medical "journey" I've been on. I've come to realize that your attitude has a big impact on the situation youre in.. You may have every "right" to feel sad and hopeless because you're going through a hard time, but feeling sad, or mad, or hateful because You are hurting isn't going to change your situation one bit, if anything it is going to make you more miserable... Don't get me wrong everybody breaks down, it is human to have a break down and good cry every once in a while but don't dwell on how horrible everything is.. When I start to feel down about everything I try to look at how blessed I am.. I wouldn't change my life for anything.. It hurts, it aches, and it gets hard, but I know everything happens for a reason.. If I didn't go through everything I did I would've never met my best friend in the whole world.. ️ So the reason I have the life I do? Who knows!! But I wouldn't change it, I'm where I need to be for whatever reason! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength 4w

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scoliosisstory A little painting I did of a scoliotic spine! my headache still hasn't given up on giving me a hard time hopefully, eventually it will end! ️ Thank you all for your endless love and support, it means a lot to me!! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #art #painting 4w

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scoliosisstory "I can only imagine what you're going through because I have never been through anything like this.. You are going through an extremely hard time in your life, with a long road ahead of you.. But I just want to encourage you to keep going, keep trying, because you have a long life ahead of you and when I look at you I see so much potential.. I know it's hard but For some reason you were dealt this hand in life.. You may not know the reason for years to come.. But God never gives us anything we can't handle, and he knows your strong enough to do this.. Heck you're stronger than me, and lots of other people to have gone through so much and still be going through a lot.. I really care about you, so keep me updated on everything that happens and what your Drs figure out!" -My physical therapist..
I could never fully express my gratitude for my physical therapist who has not only been my physical therapist, but my friend.. I Had my last appointment this morning until after I have surgery.. He truly is amazing! #scoliosis #severescoliosis #scoliosisstory #chronicpain #complexchiarimalformation #klippelfeilsyndrome #kfs #hope #strength
1mon

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scoliosisstory He is not here, For he has risen A little late but I hope you all had a wonderful Easter, there are so many reasons for me to be grateful this season... I may have been in pain all day long, but I got to spend time with my family! ️ My life not perfect, my body not healed, but I am blessed! #helives #hehasrisen #blessed #jesuschrist #family #scoliosisstory 1mon

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