lizzamay @msleahbug helped me with the laundry! 1mon

» LOG IN to write comment.

lizzamay A foreign concept. 3mon

» LOG IN to write comment.

lizzamay I'm not gonna talk about the additional babkas waiting on the counter for their turn. Let's just take a moment to appreciate this one first. #babka #jewish #nom 4mon
  •   krea22 Now I've gotta try one!! I hope TJ's has some left 4mon
  •   msleahbug @krea22 I don't mess around - I called ahead to make sure they were in stock. Ha, the guy initially thought I said "vodka." I hope you find it! 4mon

» LOG IN to write comment.

lizzamay A little sampling of what's up around our house... 4mon

» LOG IN to write comment.

lizzamay Been posting the buggy pics mostly on @msleahbug more there! 4mon
  •   mamashamamasha Melting 4mon
  •   brinleygrace She is adorable! Brinley is 4 but, the size of a 2 year old. Was she a preemie? Brinley was a month early and has a heart condition. 2mon
  •   lizzamay @brinleygrace, sorry it took so long to respond! I'm usually logged in as @msleahbug yes, she was two months early, and spent her first seven months in ICU. She also has heart issues but they were not the primary diagnosis. How is Brinley doing? She's adorable! 2mon
  •   brinleygrace Brinley , Goes back in the beginning of February for her heart ultrasound and her blood work. Hopefully, it closed. If not she will likely have surgery this spring or early summer. She has been walking for 14 months. She seems to learn something new every single day. 2mon
  •   lizzamay @brinleygrace that's great! Does she have a VSD? Leah has a VSD and a small ASD. She was in heart failure at the end of last year so they repaired the VSD in the cath lab in October. It still has a leak but it's a lot better. They're waiting out the ASD. 2mon
  •   brinleygrace She has a PDA. It is in a bad spot. So, a little blood gets into her lungs. They wanted her to gain a little weight. The big issues are if she gets sick, she can't have cough meds or a breathing treatment over what a 2 month old can get. It is easier to get fluid on her lungs. We had tonsils and adenoids out a year ago and it was awful. She had to have oxygen for 24 hours. She screamed in pain for 2 weeks even with pain meds. For her repair they want to go up through her leg. Any advice. I am so nervous. 2mon
  •   lizzamay @brinleygrace I'm so sorry, I just saw this now. If they want to go up through the leg, that is less terrifying than open heart surgery, at least. Leah's doctors were motivated to try to help her avoid OHS - thankfully the cath procedure worked. Most VSDs are fixed with OHS and not catheterization. PDA is usually fixed in the cath lab, right? So hopefully that will be successful!!! When do they anticipate doing the repair? Leah had a cold foot for a bit afterward but it wasn't enough to warrant further intervention in the hospital and they put her on half a baby aspirin for a little while just in case she was forming a clot. Overall it was a giant relief to avoid OHS. 2mon
  •   brinleygrace Glad to hear she is doing well :) 2mon

» LOG IN to write comment.

lizzamay Look at this big girl! Photo courtesy of Auntie Z. 5mon

» LOG IN to write comment.

lizzamay Just in case ya didn't know... I post most of Leah's pictures on her account: @msleahbug 5mon

» LOG IN to write comment.

lizzamay The nurse practitioner is in! Take II 5mon
  •   emmagrahn OMG She's so so so cute and adorable ! I have a sister, Elin, with DS. She's 28 and her life is very good. Greatings from Sweden! 5mon
  •   lizzamay @emmagrahn thank you! I am glad to hear that your sister has a good life!!! Hello from California. 5mon
  •   alra8yah83 strong girl. . 5mon
  •   heba_x7 4mon
  •   jarins_wifey @know.more Look at this cutie! 4mon
  •   joetta_freeman She is so cute! 1mon

» LOG IN to write comment.

lizzamay The nurse practitioner is in! 5mon

» LOG IN to write comment.

lizzamay Are you kidding me with this? Love. This. Child. 5mon

» LOG IN to write comment.

5mon lizzamay
Normal lizzamay
lizzamay Happy to be home 5mon

» LOG IN to write comment.

lizzamay What a long day! Ms. Bug is in recovery right now and the VSD has been closed. THANK YOU for your thoughts and prayers today!! From the way the docs described it, we have a little Goldilocks on our hands - the first device (the one they intended to use) was too big, the second one was too small, and the third was just right. The hole itself was also bigger than anticipated - the doc said it was actually moderate to large but functioning like a large VSD; a lot of blood was getting through and she was experiencing heart failure. So it's kind of a blessing that she got sick last month so that her doctors decided to change their recommendation; this winter would have been pretty hard on her lungs without a repair. As it is, Leah still has a hole in her heart (a small ASD now being referred to as a PFO) and is more susceptible to infection (and slower to recover) because of the Down Syndrome, but we are hoping this repair makes a big difference for her. And this particular repair has made a huge difference already by allowing Leah to avoid open-heart surgery. We are not entirely out of the woods yet; the docs will observe her overnight and make sure the device isn't interfering with the heart's electrical impulses. Hopefully we will head home tomorrow. Thank you again for keeping Leah in your thoughts and prayers!!! I know it makes a difference! 6mon

» LOG IN to write comment.

lizzamay This beautiful bubba is home from the hospital, but she will be back next month for a VSD repair. They are going to TRY to do it by cardiac catheterization. 6mon

» LOG IN to write comment.

lizzamay Witnessed a drive-by Bruining while waiting for the train across from USC; a car drove by and the passenger yelled out, "#GoBruins!" Then a gaggle of little girls on the platform started yelling out things like "USC stinks!" and "UCLA is the best!" Someone has them well trained! #beatsc #beatusc #uclafightfightfight 6mon

» LOG IN to write comment.

lizzamay Found maybe the cutest pair of kittens on the PLANET at the #lafelinefilmfestival. If only I could take them home with me! 6mon

» LOG IN to write comment.