hellokittyy91 Share a #Coke with your soulmate! 6d

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hellokittyy91 Look what we found on our daily walk! #rheum #rheumyadventure #theyoungfaceofarthritis 3w

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hellokittyy91 Why in the world did I have to get a disease that no one sees or feels but me. No one knows I'm dying inside. No one knows why tears are running down my face. No one knows that in my head I'm screaming. #arthritis #rheumatoidarthritis #jra #autoimmunedisease #invisibleillness #chronicpain #chronicillness 3w
  •   bamberri21 Feel better ladies , ask for god in his name , we calm my pain !!! God bless u and him @hellokittyy91 my prayers are with u ##@boss512 3w
  •   myfountainofyouth Superb! 3w
  •   a_udreyy Praying for you beautiful... 3w
  •   komeh86 Oh noo 3w
  •   kimstaggs90 So sorry to hear!! Prayers coming your way. 3w
  •   hellokittyy91 @rozinfocus thanks love! Feeling better today but man last night was torture. Thanks for the good vibes. :) 3w
  •   hellokittyy91 @kimstaggs90 @a_udreyy thanks so much guys. Literally your prayers really helped because i amazingly fell asleep. Usually I can't sleep when I'm in that much pain but amazingly I did and slept through it. Thank God. Thanks guys. 3w
  •   hellokittyy91 @boss512 omg I feel you. Breakthrough pain is the worst. Nothing and I mean nothing helps. It's like you just have to wait for it to pass. Thankfully today I feel better but man it sucked. I hope you feel better!!!!! Prayers for you dear! 3w

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hellokittyy91 Determination baby! Fight through the pain.Walking around the block may be nothing to you, but to me it's a miracle. #rheum 4w

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hellokittyy91 Breakfast of Champions. Tiny Apple! 4w

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hellokittyy91 www.theyoungfaceofarthritis.comCHECK IT OUT!! This is the first time I went walking WITHOUT my Cane. Andres keeps singing the theme song to Fast and Furious. "too Fast...too Furious" I truly feel fast and furious, let me tell you!! #rheumatoidarthritis #jra #autoimmunedisease #arthritis #rheum #chronicpain #chronicillness #invisibleillness 1mon

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hellokittyy91 My date night meal! 1mon

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hellokittyy91 Beauty and the Beast. Guess who my DH says is the beast.... 😑 1mon

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hellokittyy91 #repost @dashboutique @abikiniaday #WINABAD Why would I want to win? Because I haven't had a new bathing suit since I was 17 and my 23rd birthday is 2 weeks from Saturday! #Cancer Pleaseeeee pick me. Im in LOVE your designs!! Especially this one!!! 2mon

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hellokittyy91 Haven't felt good enough to paint my nails in a loooong time. Loving the look and the feel!! 😇 #rheumatoidarthritis #jra #arthritis #chronicillness #chronicpain #invisbileillness #autoimmunedisease 2mon

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hellokittyy91 New Blog Post! I'm so excited to tell everyone that I'm feeling better! My Vectra DA score went from a 51 (high disease activity) down to a 30 (low-moderate disease activity). The Orencia is officially helping me! So happy. :) After years of wheelchairs and walkers, this is the first time in years I've been able to walk without any aids! The pain is still there and I still can't do certain things but improvement is improvement and I feel so grateful to all the support and love of my friends and family, and my #spooniesisters! :)) #rheumatoidarthritis #jra #arthritis #autoimmunedisease #chronicpain #chronicillness #chemo #orencia 2mon
  •   kbri27 2mon
  •   kimstaggs90 Wonderful news! 2mon
  •   sweetslicemiami They have a special on 7 news today and immediately thought of you the lady said " ra is part of me it's not me " and it's so true , your so strong and in my prayers daily that they may find something that makes you feel better without causing other symptoms , I'm so glad your doing better always sending positivity your way ! 2mon
  •   whxo Thats wonderful:) ! 2mon
  •   hellokittyy91 @kimstaggs90 @whxo thanks ladies!! Literally 5 failed treatments. I wasn't so sure it was gunna work there for a second! Still feeling symptoms but no where near as bad. :) how are you doing?? 2mon
  •   hellokittyy91 @sweetslicemiami thanks Laurita! You're so sweet! :) literally you saw me, I was struggling for so long. I can walk without the cane now! I mean, I still have to rest and take breaks but I haven't felt like this in a very long time. :) xo thanks for the support darling! :) 2mon
  •   kimstaggs90 @hellokittyy91 I'm so glad your meds are working! When I was officially diagnosed with RA my vectra score was 29. So my rheumy just started me on plaquenil. I'm feeling pretty good. My ankles and feet give me the most problems just can't get the swelling down. Don't want to stay on prednisone. Now I just trying to watch what watching to see if it helps. Thanks for asking. . Again. So happy for you. Love these kind of stories! 2mon
  •   hellokittyy91 @kimstaggs90 wow. You know that actually makes me feel a lot better. I have still been having pain & stiffness in my spine, right hip, knees and toes and I was wondering if that was normal of a 30 Vectra score. The pain before was like a 8-10 and I was walking with a cane/walker and even wheelchair on bad days but now I'm not even walking with the cane. Im glad you're feeling pretty good! I hate prednisone but it sure does work well. You know what helped me tons? Cortisone shots in the ankles. It works great. Hurts for about the first day but afterwards the results are worth it. Plus it lasts like 3 months. I hope you feel even better soon and are able to get off the prednisone. :)) xo Steph 2mon

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hellokittyy91 Yes, this is a safe I'm sitting on. All my #spooniesisters know what it's like to have to find a place to sit in odd places. Thanks @homedepot! #shopping #rheumatoidarthritis #arthritis #autoimmunedisease #chronicpain #chronicillness #jra #selfie 2mon
  •   ra_warriorr I do this all the time! 2mon
  •   hellokittyy91 @ra_warriorr haha right?? I hate the stores that are like "you can't sit there." I'm like "I'm in pain. I have rheumatoid arthritis. Leave me alone." Haha jk I don't say that but I want to! 2mon

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Normal Stephanie :o)
hellokittyy91 S/o to this sweetie @komeh86 for liking my pics especially the #hellokitty ones! Seriously, who doesn't love kitty white?! Lol. LOVE your ig and your turban! Im so YouTubing how to do that. Lol BTW totally enjoying reading about #SierraLeone! #represent www.sierra-leone.org #learnsomethingneweveryday 2mon
  •   komeh86 *Blushing* who doesnt love hello kitty... and totally excited about this...hehehehe have a good weekend. :) 2mon
  •   hellokittyy91 You also! @komeh86 :) 2mon

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hellokittyy91 To those that have yet to read my blog post "In Loving Memory," take a look! :) www.theyoungfaceofarthritis.com The title has a double meaning. In Loving Memory is what one usually writes on a headstone, but I'm not just referring to my dear Kiki's death, I'm also referring to my own death. One day. Not many people know that rheumatoid arthritis is a life-threatening illness. This is me being honest about my view on death. Being upfront that sometimes I wish I had something that I would have to survive with for so long. #instapets #InstaSize #rheumatoidarthritis #autoimmunedisease #chronicpain #chronicillness #invisibleillness #jra 2mon

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hellokittyy91 Yes yes I know I'm late! Just got a twitter! Follow me please! I'll follow back. :) #fb #followback #rheumatoidarthritis #autoimmunedisease #chronicpain #chronicillness #jra #arthritis #invisibleillness 3mon

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hellokittyy91 Night out in @hellokitty style! <what's in my clutch?> Sanrio for Japan Mirror to put on my HK Lip Balm , HK Hawaii Key cap, HK Key Ring & HK Key to get to where I'm going , #discontinued HK #boa debit card to buy the , HK sushi iPhone Accessory to stay in touch , & lastly Sanrio Original Soft Pouch to hold all my fav #hellokitty products necessary for a night out! #hellosweeps #helloloungefly 3mon
  •   crazylips I miss HK card so much. I have no clue why they discontinued it! 3mon

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hellokittyy91 Thank you Dr. Grand Eye Care for your amazing care! I love my new glasses! 8) 3mon
  •   bamberri21 Nice !!! 3mon
  •   bamberri21 Hope u feeling better these days 3mon
  •   hellokittyy91 Thanks doll! @bamberri21 yeah a bit better. :) how are you doing?? 3mon
  •   bamberri21 Good thank god.... Working on my health and eating habits ... Definitely better... Bless day !!! 3mon
  •   hellokittyy91 @bamberri21 that's great! Thank goodness. Perfect timing for summer. I hope you get to get out and enjoy it! 3mon

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hellokittyy91 R.I.P. Kiki Bubba. You were the best kitty in the whole world. I love you forever. @joshscott_724 #instacollage 3mon

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hellokittyy91 It's a girl's world. #hellokitty #pinkdrink 3mon

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hellokittyy91 New Blog Post! Tuscany #Sunflower Fields It's not easy to "condition" yourself. It's much like conditioning your dog to enjoy baths by giving him or her treats and lots of praise. This is me, "conditioning" myself to feel the most peace while I'm going through the worst pain. With practice and patience, it can be done. #rheumatoidarthritis #jra #autoimmunedisease #invisibleillness #chronicpain #chronicillness 3mon

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