emilydiaz83 You don't stop there. If that wasn't enough... Now you were just showing off to us. Just for practice and pure curiosity, your doctor wanted to see if you can breastfeed. This doesn't usually get started till about 34-36 weeks. Of course when my lactation nurse brought this up, I immediately jumped at the opportunity. Any chance to hold you longer and have you close to me I was going to take it. We weren't expecting to do too much. Just hold you there, see if you were interested, see if you wouldn't push me way. On the contrary, you knew exactly what you needed to do. You were guided at first but you took over all on your own. Stopped to breathe, sucked, drank, and rested when you needed to. I can't explain the nurses face but I can tell you... She was shocked but not surprised. You have from the beginning proved yourself capable of so much. You will still continue to need your feeding tube until we can master breast feeding and bottle. We haven't tried the bottle yet but that's coming soon.
So many beautiful and mysterious questions unanswered. Why did my water break early... Why didn't you wait for your time... How does a baby, who is supposed to still be in my belly for another 6 weeks know just what to do? God surely does work in mysterious ways.
Lastly, we won't find you over at the Neonatal Intensive Care Unit. You don't need the help of big machines anymore, so you are now living down the hall at the Special Care unit!! You will still have the same doctors and nurses and you're still scheduled to be home around your due date but I see the finish line so much closer now. Now it's time to continue to eat and grow!
Happy 7th Week of life my baby girl. Momma is so proud of you!!! The countdown is really on, 44 days, 6 more weeks till your home. Wow, I really need to get ready for your arrival now.
Ecclesiastes 11:5 (the message) Just as you’ll never understand the mystery of life forming in a pregnant woman, So you’ll never understand the mystery at work in all that God does. #specialcareunit #nicujourney #niculife #26weeker #7weeksold #33weeks #preemie #prayforlaylagrace
19h
  •   nena_taina Its cute that in almost every picture she is sticking out her tongue like, yeah I'm a tough cookie and WHAT?!?!? Lol k chula!!!! 18h
  •   amberjo1105 Its a blessing to watch them grow. My little girl was born @24 weeks and amazes me everyday. She surly is a miracle i thank God for everyday for her. 18h
  •   mrs_summerchic Absoultley beautiful!!!! 18h
  •   superduperbrit Little champion!!!! 17h
  •   ksosa80 Strong and determined like her momma 12h
  •   katecappella These are such exciting accomplishments, good job baby girl!!! Isn't it amazing that they just know what to do when it comes to nursing!!? Mine where "32 weeks" and I remember feeling over the moon happy that they both did so well that first day 8h
  •   ktmumzy3 Wonderful Wonderful Wonderful!!! 7h

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emilydiaz83 August 27, 2014

Motherhood will take you places you never imagined. Oh Layla, You've taken me through mountains high and valleys low. I've gone through emotions like a roller coaster. The Joy of feeling you inside of me. The Panic in knowing you would come too soon. The Confidence in God that he will take care of you and put you in the best of hands. The Loneliness of sitting in the NICU, by myself praying for your every breath to return a millisecond later. The Peace I felt after every milestone you exceeded in. The Fear in seeing your monitors every time you bradyed or when your blood counts came back abnormal. But, the peace that God continues to give me is my favorite so far because when I look you.. I see a fighter. We've only just begun this journey, you and I -- and you continue to move me.

You continue to impress your nurses. You are now breathing 100% on your own. You no longer need a CPAP nor the nose cannulas. Your premature lungs are doing this all on their own, don't you see you're just a little baby but you keep proving yourself stronger than that.
Since you make great strides with your breathing, the nurses wanted to test you out in an open air crib. You did wonderfully for half a day but Unfortunately you can't seem to keep your temperature at a normal level. We had to put you back in your isolette to warm up again. I'm not concerned - you just need a little more mass on you to help you keep warm. That'll come soon enough. Trust me, When you get older you're going wish you had less mass but till then this is your time to pack it on!
After a couple weeks of infection and swelling, you lost some weight. But it wasn't enough to set you back. You regained and continue to grow! Most of the weight you lost was from the swelling. Last night night when we weighed you, we were in disbelief at what we saw. You are now weighing in at a whopping 4 pounds!!! Give me a second as I wipe the tears from my eyes. #7weeksold #26weeker #prayforlaylagrace
19h

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emilydiaz83 Almost forgot about #nationaldogday!! Someone found my neck pillow and got really comfortable. #ilovemymaltese #maltese #dogday 1d

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emilydiaz83 Someone was acting really fresh during her routines. She's lucky there were nurses watching me cause I was going to blow on that belly!! #mypreemie 2d
  •   buttahfli26 Lookn real goooood:) 2d
  •   ktmumzy3 She is gorgeous! Looks a bit cheeky too! 2d
  •   romancednloved tooo cute, can see both you and Joel in her.. 2d
  •   reneenicole27 Ahhh what a cutie! 1d
  •   nicciladybug .. She's getting so big and as gorgeous as ever@emilydiaz83 1d
  •   emilydiaz83 Thanks @nicciladybug she's such a little love bug too. It's so hard leaving her. 1d
  •   katecappella I love how she's sticking her little tongue out @emilydiaz83 yes.. Isn't leaving the hospital the hardest thing to do, I can't walk away unless both my babies are sound asleep - breaks my heart everyday!! 1d
  •   emilydiaz83 Seriously.. Especially since she's only awake short times. She has to be fast asleep for me to leave. @katecappella 1d

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emilydiaz83 Thank You @memoriesbymaddie for Layla's cute little #preemie outfit! She fit it perfectly.. She needs time to grow into the headband and shoes... But she's getting there. Oh and @say_cookielove that's the blanky you got her. She loves it!!! xox 3d
  •   janessa.aranda He is!! With his little double chin! Awe she will hit 4 lbs soon!! 37?! Wow! Crazy how they started out at 1 right? That's awesome I am so glad she's doing so well. Have the doctors given you any sort of time frame for her to go home? Or did they just say to anticipate her original due date? 2d
  •   emilydiaz83 They don't want to tell me any other date besides her due date because anything can change. But I feel like it's coming soon. Really soon and now I feel like the countdown is on. Have they told you anything? Are you breastfeeding yet? @janessa.aranda 2d
  •   neraizalg Awwww she is beautiful @emilydiaz83 2d
  •   janessa.aranda Yeah that's exactly what the doctors here tell me. However they did say the earliest he could go home is at 35 weeks! It's all up to him. I let him nuzzle during his feedings and he does latch on but I'm not sure how much milk he actually gets out. And for breast feeding I've heard different things. Some say 32 weeks but most say 34 weeks. So about 3 more weeks for sure he should bottle and breast feed! 2d
  •   katecappella She looks great - so adorable, i love the lil shoes!! Just reading the comments and am also just playing the waiting game to take my babies home! They are "36 week" tomorrow and were 5 weeks old yesterday! It's amazing how strong our lil miracles are and such fighters 2d
  •   emilydiaz83 Awwww I'm so glad all our babies are making great strides. I can't wait to see the pics of them happy at home with their mommies. It's coming soon!! @janessa.aranda @katecappella 2d
  •   emilydiaz83 Oh and her weight is at 3lbs 10oz. What she has been losing was water weight because she was so swollen recently. @janessa.aranda 2d
  •   lillydelv Butter cup is looking soo cute 1d

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emilydiaz83 big journeys begin with small steps • what a journey you've taken me on so far... #nicujourney #prayforlaylagrace 3d

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emilydiaz83 The nurses attempted the open air crib today. Layla did well for most of the day but she can't seem to keep her temperature up the full day. She's almost go it! I'm still so proud of her attempts so far. #mybiggirl #mypreemie #nicu #nicujourney 3d
  •   emilydiaz83 I agree. In her NICU she has been the only micropreemie so far during most of her stay, so it's felt like a lonely experience. But, I'm glad I've been able to follow other preemies progress through Instagram. I can't wait for the day til she gets to come home. I'll be praying for your daughter. @nicola_toghill_xx 3d
  •   nicola_toghill_xx And it always feels like everyone is leaving before you doesn't it? We are waiting to be transferred back to our local hospital but have been moved from intensive care to a high dependency room. It's amazing how much they progress in such a small amount of time x 3d
  •   emilydiaz83 Amazing!! That so awesome that she's been moved already. We're hoping for the special care unit (as they call it here) real soon ourselves. Not too much longer! @nicola_toghill_xx 3d
  •   nicola_toghill_xx Yes we have that here too, it's shortened to scbu. That's the next stop after the room she is in now. Not sure if she will go into that room. Hopefully you will get moved there soon x 3d
  •   lovemeghan10 My son did the same thing today to :D 3d
  •   emilydiaz83 How exciting!! @lovemeghan10 3d
  •   janessa.aranda This is awesome and exciting!!! I'm sure within days she will be in an open crib! Continuing my prayers! 3d
  •   emilydiaz83 Yes! She just needs to gain a little more mass on her body to keep herself warm. I have plenty on me LOL I wish I could give her some. @janessa.aranda 2d

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emilydiaz83 Being a mother is learning about strengths you didn't know you had, and dealing with fears you didn't know existed... #nicumom 1w
  •   romancednloved cannot wait to party with you LG 1w
  •   buttahfli26 Yayyyy Look how big she got:) 1w
  •   reinan88 I can imagine babes 1w
  •   lucidpainter Beautiful picture...congratulations and bless 1w
  •   __laura_beth__ Beautiful! Layla is such a strong lil girl, and so lucky to have such an amazing and strong mommy with her each step of the way! Sending love 1w
  •   emilydiaz83 Thank you @__laura_beth__ you have a beautiful little angel yourself. I'm sure she's just as strong as her mommy too. 6d
  •   juliaahed What a beautiful baby, I have a preemie myself. A 32 weeker who becomes a year now in september. 4d
  •   emilydiaz83 Awww happy to hear your baby is doing well! @juliaahed 4d

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emilydiaz83 Lastly, One of my favorite milestones so far is that you are regulating your own temperature. You are still in your Isolette but they are not heating it to regulate your temperature. Now that you are learning this, the nurse said something so exciting to us. You can wear clothes now! Sounds so silly to others, but to us this is the next step for us feeling like a parent.
In normal cases, you give birth to your baby and then a day later you can dress your baby in their first outfit. Something mothers look forward to when they make their hospital bag. A special moment during maternity when you get to overpack way too many things in your first diaper bag for the new baby. Cute outfits, maybe some shoes that you know are too big for a new born baby, and maybe even accessories like flowery headbands.
What will my baby wear for the first time?? Unfortunately, Layla won't be able to wear fancy clothes just yet. She'll be rocking a simple onsies with buttons, the buttons are for her wires to go through. And I'm ok with that. This is just the beginning baby girl, mommy and daddy can't wait to dress you in your first Sunday dress or your 1 year old Birthday outfit.
Even so, as we want to clothe you in beautiful garments, God has so much more for you!! "I am overwhelmed with joy in the LORD my God! For he has dressed me with the clothing of salvation and draped me in a robe of righteousness. I am like a bridegroom in his wedding suit or a bride with her jewels." Isaiah 61:10

This week was full of beautiful moments but I know they will only continue from there! Happy 6th week of life!!
1w
  •   momma_rn3 She is just beautiful!! 1w
  •   emilydiaz83 We tried her on her own over night and she did well but they ended up putting the nasal cannula in the morning. Baby steps. @unique_rosaa 1w
  •   unique_rosaa @emilydiaz83 oh wow thats amazing ! I told you these babies dont got through a small fall without coming back with a big jump 1w
  •   emilydiaz83 I tear up writing her updates. @mrs_summerchic 1w
  •   reinan88 She is getting chunky and so cute. I just want to bite her just a lil pleaseee lol 1w
  •   ak921 Ur baby's pics keep coming up on my "explore" page (bc of a common friend we have) and every time I tear up reading ur stats. Just wanted to let u know im praying for you and ur family. Shes a warrior of God. God bless her. ♡ 1w
  •   emilydiaz83 Thank you for those kind words and prayer!! We appreciate all the prayers. God bless you in return. @ak921 1w
  •   sunsetdolphins03 God bless the baby 6d

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emilydiaz83 August 20, 2014

Layla, my sweet little cupcake. This week has been full of milestones for you. Major steps in positive directions that have come sooner than we expected. After a week of sickness, more attempts at IV's that I would ever want see again, and drifts in your breathing... You have risen up out of it all. Though you are little... You are a mighty one.
As of last night, you have officially doubled your birthweight. Weighing now 3lbs 11oz. It's amazing to witness your transformation, all your pretty features are coming in and feisty expressions. And you continue to grow. You are now 15.25 inches long.
You are sucking on bigger pacifiers and graduated to bigger diapers. You know what that means... Bigger poops. Yay!! You were taken off the CPAP and is now using nose cannulas. This is the next step to having you breathe on your own. You are getting less invasive airflow and it's much more of your own breathing. We tried you without anything and you lasted through the night wonderfully but it got a little tough for you in the morning. The nose cannulas will help you with those light breathing drifts. One step at a time... Every week you now have to go through a very intrusive eye exam. You had your second one on Sunday. It was so tough for me to watch. I'd never heard you squeal like that. But, you never dropped your heart rate and breathing. I was so proud of you!!! And the results came back with great results. Even though you will continue to have the exams, we believe they will come out fine every time.
1w
  •   emilydiaz83 Those eye exams are seriously the worst. Poor little things. @superduperbrit @glrivera77 1w
  •   emilydiaz83 I'm glad you love hearing her story! @lew_v15 1w
  •   uniquekidz So sweet! 1w
  •   ksosa80 Omg i m so happy to hear that, what a beauty 1w
  •   jcdivineadie Im so happy for you my dear ! I know how it feels my daughter was born 32 weeks and now shes 4 months old . Everything is gonna go smoothly moving forward 3d
  •   emilydiaz83 Thank you sweetie. I've been following your sweet daughter. She's so chubby and cute. I love it! @jcdivineadie 3d
  •   jcdivineadie Thanks dear ! My daughter was only 1.6kg 11 inches when she was born , i always believe the #nicumoms have the bravest hearts ! 3d
  •   jcdivineadie @emilydiaz83 i can't wait for you to bring her home .. Its going to be a whole different ball game 3d

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emilydiaz83 Even after having a rough day... She still smiles and puts me at ease. I love you baby girl.
#prayforlaylagrace
1w
  •   emilydiaz83 Thank you.. She's my little munchkin. Literally lol @jocelyn_monroig 1w
  •   twinsiemomgately Oh my how precious!! Praying baby girl 1w
  •   ashroxs23 Being parent of a preemie means your extra special! After all God doesn't just pick ANYONE to witness a MIRACLE!!!! Supporting all nicu parents! 5d
  •   ashroxs23 It's the little things that make life worth living,?
    It's the little things that help us make it through.?
    I never knew how true those words were,?
    Until I first set my eyes on you.
    I feared because it was too early;?
    I cried because it was too soon.?
    Yet I underestimated?
    The strength in one as small as you.
    ?You were born a fighter, a warrior;?
    You would not quit nor move on.
    ?You strove, you fought, you tried,?
    Until your battle was won.?
    When hope might have faded,?
    When the trial seemed too great,?
    A tiny child, despite the odds,?
    Fought what was thought fate.?
    And a little baby triumphed,?
    A baby thought too small to live,?
    A baby knew that life?
    Is the most precious thing to give 5d
  •   emilydiaz83 Wow thank you! :) I guess you're right!! @ashroxs23 5d
  •   emilydiaz83 thank you for that poem. That was beautiful. I needed to read that! @ashroxs23 5d
  •   ashroxs23 We need to be here to support one another proud mommy of a nicu graduate just take it day by day :) everything will be just fine !! 5d
  •   janessa.aranda Love those smiles! They are the best! 3d

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emilydiaz83 Spending the day with these two joys of my life. #nicudad #prayforlaylagrace #kangaroocare #niculife #nicu 2w
  •   emilydiaz83 Awww... How is your baby doing??? They're little fighters. @unique_rosaa 2w
  •   unique_rosaa @emilydiaz83 he is doing good. Yes they are, makes them even more special , my son is 7 weeks old just a little older than your daughter 2w
  •   emilydiaz83 That's so awesome! I'm glad he's doing good. I would love to follow his progress. @unique_rosaa 2w
  •   unique_rosaa @emilydiaz83 thank you and yes of course , i cant wait to see yours, its already touched my heart, you should listen to the song athlete wires on youtube its made for nicu babies so cute(: 2w
  •   emilydiaz83 Ohhh I'm going to look it up. Thank You! @unique_rosaa hopefully I don't cry like a baby. Haha 2w
  •   unique_rosaa @emilydiaz83 i did its just exactly what they go through but put the one with the lyrics and really pay attention to it, its perfect for our babies 2w
  •   marie.yves She looks like a fighter.. May God continue to bless her. 2w

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emilydiaz83 Blowing #kisses for her mommy and daddy! @joel85diaz orrrrrr she's practicing her #duckface for her selfies. 2w

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emilydiaz83 "Place me like a seal over your heart, like a seal on your arm; for love is as strong as death..." Song of Songs 8:6-7 2w

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emilydiaz83 August 13, 2014

Oh Layla... My little girl...
A piece of my heart...
A precious jewel only God could've created... You've had a week full of ups and downs. On your day of life 30, your little body needed some help and the nurses had to put the IV back into your tiny little arm. Your blood needed a little boost to get you nice and strong. I would be lying if I said I wasn't scared for you... But then I thought about how God has helped you get this far. You proved to me once again that I had no reason to fear. Your red blood cells improved and you show that you're much stronger than I.
2w
  •   mariefrancephoto My little preemie has had to fight infections as well. They're the strongest babies and although its the longest rollercoaster ride of your life, it only gets better!! 2w
  •   emilydiaz83 So true.. Everyday she grows and looks even more beautiful.. You start to forget the low moments. @mariefrancephoto 2w
  •   elaineserrano What an amazing change! God bless her . She looks like @joel85diaz but prettier like her mommy, Anthony said. @emilydiaz83 2w
  •   emilydiaz83 Haha!!! She's still got time to turn it all around and really look like her gorgeous mommy. Lol @elaineserrano 2w
  •   devikanjustin She is gorgeous cant wait to see her come home and grow... Grow baby Layla grow.. Gonna follow ur journey. You could follow ours also. My son is a 29 Weeker Premie! I know how difficult NICU life is,but u'll get thru it. Premie babies are strong fighters <3!!!! @emilydiaz83 2w
  •   emilydiaz83 @devikanjustin thank you for the encouragement!! I pray your son continues being strong and healthy!! 2w
  •   jamie_stepho My 25 weeker is also named Layla. Its amazing the strength preemies and micropreemies can have. I will pray for your sweet Layla. Beautiful name. I named my daughter Layla Mae. 3d

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emilydiaz83 Now I lay me down to #sleep,
I pray for this #preemie God gave me to keep.
So very little, So very small,
I #pray you make it through it all.
Each day I hold you skin to skin,
I hope you feel my love within.
You are so brave, you are so strong, You came early because you belong.
Angels watch over you all through the night, God keep her safe and help her fight. #preemieprayer
2w

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emilydiaz83 Ellie wants to go to work with me... I'd take her if I could. #myotherprincess #maltese #ilovemymaltese 2w

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emilydiaz83 Baby girl is loving her new #micropreemie blanket we got her. Since she can't wear clothes yet, we thought this will keep her comfy from us. #preemie #nicu #nicujourney #31weeks #1monthold #premie #etsyfind #ilovemypreemie 2w

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emilydiaz83 Those cheeks and that chin. she's so lucky I'm not allowed to bite her... Yet! #1monthold #preemie #preemiepower #31weeks #nicu #nicujourney #premie #lovebug #chubbycheeks 3w

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emilydiaz83 Welcome to #31weeks and day of life 30 my baby girl.
Today Layla's red blood cells had decreased from her last blood work and the doctor decided to do the blood transfusion. Her first unit finished at 1pm and the last unit of blood will be at 1am. She's doing great, she hasn't had any episodes, and she's resting well. At her last changing she was kicking and even made a loud cry. I always forget she can cry! ️praying this is the only little bump in the road. #prayforlaylagrace
3w

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