chris_pierce One of Grif's favorite places to visit. 23h

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chris_pierce He seems so calm. So peaceful. So fine. He sleeps great. He smiles. He plays. He's happy. He had a stroke. He has seizures. He needs brain surgery. He needs blood transfusions for the rest of his life. He's on insane medications. He needs constant supervision. He needs intense physical, occupational and speech therapy. He's mine.
#strokesurvivor #sicklecell #brainsurgery #prayforgrif
3d

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chris_pierce I'm laying here in a hospital bed next to my precious little boy who's gone through and is going through so much and I can't help but think about my beautiful wife. I don't know a lot, but I do know a few things for certain, I am lucky to have @taypierce on my team, she is my perfect partner, she is much starter than I am and than most of you (ask Grif's neurologist). Thank you for helping me get through this. I am so very grateful for you. I love you to the moon and back. 3d
  •   shellnort I'm so sorry you're all going through this... 3d
  •   kindsaybree She's an amazing beautiful woman ️. We love you guys and continue to pray for you and your family. 3d
  •   shellsun101 She is a good one. 3d
  •   surfermama4 She is the best mom for Grif, and I know you will all pull through together. 3d
  •   mlwhite12 She is an incredible human. 2d

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chris_pierce Life is hard sometimes. I am grateful for family who make it less hard. This is Grandpa taking Hugh out for a sunset swim trying to keep life normal while we get through this obstacle. #prayforgrif #sunset #vland #grandpa #family 5d

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chris_pierce MRI Time again. It's our goal to be moved from PICU to the hematology floor sometime today. Then, we start the hard work to recovery. They said he can leave the hospital as soon as he can sit, stand snd walk. This will be a journey #prayforgrif #sicklecellanemia #strokevictim #mri 2w

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chris_pierce We have so many wonderful friends!! My text go on and on with kind messages from friends and family. Thank you for all the love and support. We are feeling truly loved right now. #prayforgrif #sicklecellanemia #love #support 2w
  •   lovescole That's because you guys are truly amazing! 2w
  •   khawkley We all love the Pierce family! 2w
  •   richie_norton Praying for Grif! 2w
  •   amberbaltzer You guys are the best!! I especially love that my last name is not blurred . Your family is an inspiration to all of us. 2w
  •   cymawu Prayers for little Grif 2w

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chris_pierce So. They took just a little bit of blood from Grif just now and replaced it with superman blood!! It's close to the hundredth transfer this go around. Last night, for 13 straight hours, was a continual transfer, one right after the next. All day he's been on a transfer more than he hasn't. This amount is collected in 1.5 hours #prayforgrif #sicklecellanemia #hangintheregrif #donateblood 2w
  •   jessedprice You're awesome Grif. Love you buddy! 2w
  •   natalie_buie Chase and I are praying for you guys! 2w
  •   brandrides Oh man! So sorry to hear Chris! Saying mad prayers brother. Hang in there we love you guys 2w
  •   mister_twon Lots of prayers your way brother. Love you guys. 2w
  •   meganepperson Prayers for this beautiful little one🏼 2w
  •   _emily_ames We are praying for you guys. 2w
  •   trey_fortucci You still living at turtle bay? I'd love to bring you guys dinner one of these nights. 808-277-4292 heal up griff buddy!!! 2w
  •   taypierce This picture makes me nauseous. 7d

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chris_pierce Thank you all for the well wishes, prayers and positive energy. We are blessed beyond belief. It has been eye opening going through this terrible, tough day seeing the outpouring of love and support for us and our sweet baby Grif. Thank you all so much.
In case you were wondering, this is what it looks like when they remove half your blood and replace it with regular blood. #hangintheregrif #sicklecellanemia #prayforgrif
2w
  •   jcleggster sweet little guy! 2w
  •   mossiwatene Love u little homie 2w
  •   ashleyjswenson Praying for your sweet boy in San Francisco!! 2w
  •   kristinmyoung Hi @chris_pierce + @taypierce ....on my knees for you guys and Grif. I don't "know" you--I saw Natalie's post yesterday. My niece, Nyiah, has a rare form of sickle cell with moyamoya. I'm not sure that is Grif also but she had a very similar situation when she was four years old...stroke, paralysis, etc. I just wanted to write and give you hope---she is now nine years old and a thriving gymnast. She still has to have a blood transfusion every three weeks and needs a bone marrow transplant (on the Be the Match List) but she recovered fully from all of her strokes with physical therapy (she had a series of them over a week period before doctors realized what was wrong.) We have a son going through treatment for brain cancer and I know y'all are strong but also know that seeing hope in the midst of can be encouraging. Praying for you!! 2w
  •   natalienorton @kristinmyoung oh! Thank you for this! @taypierce let's just hold on to this. As tight as we can. A thriving gymnast. I could see Grif in spandex. Yes! Bless you! @kristinmyoung (I'm praying for your son. Be brave. You're not alone.) 2w
  •   taypierce @kristinmyoung this sound all too familiar-- stroke for a week, paralysis, moyamoya, has a rare form of sickle cell (SC beta thalassemia), preparing for transfusions every month, praying for bone marrow. Thank you so so so much for sharing! 7d
  •   kristinmyoung @taypierce and @chris_pierce I'm so sorry Grif and Ny have to go through this! I'm tagging my brother and sister (Carlos @losski1 and Danielle @lilbit51 ) who are Nyiah's parents. I'm sure they can be a resource for you if you would like to reach out to them. They have been exactly where you are and have done a lot with Be the Match (plus they are very familiar with the grind of monthly transfusions). No pressure to contact them but just a resource should you want it. Continuing to pray for you guys! 🏽🏽🏽 6d
  •   taypierce @kristinmyoung I just scrolled through your feed and I'm so taken back--- your family is stunning. Your courageous son. You warrior mama. I'm crying. Thank you for finding is. I feel inspired by you. 6d

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chris_pierce Left some art on your Magic #EtchaSketch Screen @theartofcarlosmozo hope you love it and keep it forever. 3w

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chris_pierce Finally made it back to da aina! Longest Hawaii flight ever!!! #hawaii #home 1mon

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chris_pierce This is what happens when our 11am flight back home turns into a 4:30pm flight. #findingnemo #airportlife #travelingwithkids #homewardbound 1mon

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chris_pierce Rainbows for breakfast!!!
#rainbow #waffles
1mon

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chris_pierce A little photo burst of Hugh on his third day ever snowboarding!! Crazy boy!! 1mon

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chris_pierce 2016 started real good!! This is going to be a great year. Happy 2016!!! #2016 Fantastic photo @justbowen 1mon

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chris_pierce Ringing in the new year with @richie_norton 1mon

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