arjake 4/24/16 - So glad my happy boy is back! 😀 #smalldude 4d

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arjake Beautiful day in Kansas for Barnyard Babies ! #smalldude 5d
  •   cljake I love to see our little guy outside with the animals. I hope it was a good time ....we love you buddy 3d

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arjake 36 weeks ! Finally, a bump picture because I put on something other than pajama pants. Sol and I had a date night planned (thanks to OBC Special Connections) but Silas had decided to "not feel well" right when we arrived. He cried for an hour and was fine as soon as we pulled out of the parking lot 🙄. On a more positive note, we had an ultrasound today and baby #2 looked great and is est. 6.5 lbs ! #boymom #raincheckplease 6d
  •   cljake ....looking beautiful ! 6d
  •   katie_ewing Looking soooo good, mama!🏼 6d
  •   bzwygart1 You look beautiful! Great report! Sorry Si didn't cooperate with the date night plans. 6d
  •   maryarn6 So happy for you! You are ADORABLE! 6d

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arjake Ya know, when it's Friday and you feelin' goooood 🏼🏼!! #smalldude 6d

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arjake Before haircut 🤗😀 | After haircut 🙄. I need a drink 🏼. #smalldude 1w

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arjake So happy to be home ! #smalldude 2w

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arjake 4/17/14 and 4/17/16 - These aren't great pictures but needed to document for my @chatbooks how Silas loves to spend his mom's birthday in the hospital 🏼! 2014 spent inpatient, a break in 2015 and now back at it in 2016! We get to go home today though! We are holding off on the growth hormone injections for now and will start conservative by giving him corn starch nightly and monitor his glucose levels when we feel it's needed or he's ill. If he still isn't acting himself or having too many episodes, we'll have to probably start the growth hormone regimen . It's getting pretty boring in here and we are all ready to see the sun ️! #smalldude #growthhormonedeficiency #littlestinker 2w

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arjake 04/17/16 Momma and her two boys 🏼🏼 . #smalldude #boymom #35weeks #shoutloveforsilas 2w

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arjake We had a great morning yesterday and it was downhill from there . Endo had a couple of stim tests run to check his ACTH levels and his growth hormone levels and he had to fast for them since we are also checking his blood sugars. He passed the ACTH test with flying colors (PHEW!) but we are still waiting on answers about the growth hormone test. I'm praying we don't have to deal with daily injections . After sleeping all day yesterday (no joke), he seems more himself this morning since getting food in his belly. We are hoping to go home today after we get a game plan together 🏼! #smalldude 2w

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arjake When you've been sick all week and wake up in the hospital feeling just fine 😑! Thanks for the prayers, hopefully we'll head home today after test results have come in. #smalldude #obviouslythetvwason 2w
  •   katie_ewing His smile gets me every time! So glad he's feeling better! 2w
  •   bzwygart1 Love you Buddy! You look like you're feeling better! 2w
  •   ksab09 Glad he is doing better. 2w
  •   cljake We love your sweet smile little one! ...hoping you're feeling better 2w

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arjake Best Dad hands down . After a long morning in clinic and the ER, we are finally settled in a room and Si is acting more like himself. Hoping new tests will shed some light on what's going on and we can get him feeling better 🏼! #smalldude #nomorepokes #medicalmama #bestdad 2w
  •   shortneyt Hope sweet Silas is doing better. Hate to see him there. Xxoo 2w
  •   erea81 Prayers!! 2w
  •   maryarn6 Praying for sweet Si 2w
  •   cljake Love you all ! 2w

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arjake My sweet little bobblehead has had a cruddy week . Poor kid (and Dad and nurse Vicki) spent almost 4 hours at the doctor yesterday getting labs and trying to figure out what was making him feel so bad. He's lost two lbs and was dehydrated, so pushed lots of fluids! After doing that last night, we got these smiles this morning and we thought he was doing better until today's labs said his blood sugar was a 28 -- apple juice, stat!! Anyway, after more labs this afternoon he is back to normal but worn out. I think he's trying his best to keep getting out of a haircut and to not have to wear his back brace 😑!! #smalldude #thathairtho 2w
  •   bzwygart1 I'm so glad you could find a smile for all of us! Love you! Hope you are feeling better soon! 2w
  •   ffejsgirl Hope he's on the mend soon! He looks like such a big boy here. 2w
  •   cljake Just the cutest smile 2w
  •   dk_odich27 Sweet little munchkin, you are gonna be alright 2w

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arjake aaannnnndddd....if you have a sick kid and dreaming of a tropical vacay, get yourself this little slice of "strawberry shortcake in a cup" heaven . I saw this on IG the other day and it looked amazing and didn't disappoint! 🏼 Iced Strawberry Acai Refresher, no water, sub coconut milk 🏼. #treatyoself 3w
  •   alb_4565 I love Starbucks! I am praying for that little guy! 🏻🏻🏻 3w
  •   annakolisa Was your ice blended ? 2w
  •   annakolisa Mine still looked different when I order it 2w
  •   arjake @annakolisa nope! They just out in the Acai Refresher + Coconut Milk + strawberries + ice and then shake it up by hand. 2w

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arjake This GI crap ain't no joke . I think we are all sick and tired of Squirty being sick and tired . So very thankful we can keep him hydrated and fed with his #gtube. I'm actually nervous to have a kid who doesn't have one ! #smalldude 3w
  •   george.stanley.me Feel better soon handsome. George & Stanley are sending you some healing. 3w
  •   bzwygart1 Awww--get better Si Buddy! 3w
  •   ofclongisland Pour little Buddy I hope He's better soon 3w
  •   cljake Awe. Just saw this sweet pic. Love you all ! 2w

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arjake My sweet pea is so sick . He unfortunately caught the GI bug I had this past weekend (that I got from Sol 🙄). I haven't seen him like this in a long time and his weak little cry just breaks our hearts . Hoping for a better day today! #smalldude 3w

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arjake Therapy time 🏼. Working on sitting up in his new brace and turning pages. He loves this book so much and finding the and make his day! 4/07/16 #smalldude 3w

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arjake Doing a happy dance for the @kcroyals opening day and the last day in his cast ! #foreverroyal #smalldude #mehtacast 4w
  •   gabriellas_journey_ I was going to say I thought u were done casting 4w
  •   gabriellas_journey_ Love him. We have another month in this cast and then one more for a month while we wait for our brace! I can't wait!!! To be cast free :) #scoliosisstrong #specialneedschildren 4w
  •   arjake @gabriellas_journey_ we are 🏼! He is supposed to get his brace tomorrow. I think casting is a great option for certain kids but it's time for us to move on. I'm not sure how the brace is going to go either 😬. I'm just glad we can bathe him!! 4w
  •   bzwygart1 Yay! Yay! Yay! 4w

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arjake Slowly getting things done in the nursery 🏼! We hung a few things up on the walls and ironed the curtains today. I'm loving the look of our rug but am getting super annoyed with it moving and shedding, so I need to get a rug pad/carpet grips to hold it in place -- any suggestions for rugs on carpet? Still waiting on a few things but really tried to cut down on the "stuff" this time around. Up next -- sterilizing bottles, breaking out the pump, washing baby clothes and packing the hospital bag !! #boynursery #boymom #33weeks 4w
  •   arjake @leanne_anne wow, thank you! 2w
  •   arjake @leanne_anne It was a crazy week and I didn't get you called but am still interested in ordering that rug pad! If your offer still stands, I'll give you a call! Anytime this week you will be working?! I'm also wanting to order the red gummy bear night light ️! Let me know! Thank you 6d
  •   leanne_anne Absolutely! Shoot me an email and we can narrow down a better time to talk. Leanne.lomax@landofnod.com 5d
  •   arjake @leanne_anne yes, will reach out soon! Thanks!! 5d

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arjake #Repost @goshoutlove with @repostapp.
・・・
Today we catch up with Si and his growing family! Here's his amazing mama @arjake: We are happy to report that Silas has been doing great! Despite the many physical challenges he continues to face due to his chromosome abnormality (trisomy 16q/monosomy 9p), he's been relatively illness free and for that we are thankful! He has definitely made the transition from infant to toddler and continually reminds us of this everyday! He loves to tell us his "stories" and he makes darn sure we hear him because this kid is LOUD! Communication is definitely a new struggle we are facing as he gets older and something we need to work on. We are currently in the process of preparing him for preschool next fall as he desperately needs to be around other children learning from them and interacting with them!! It's a little nerve wracking thinking about sending our non-verbal, non-mobile, gtube fed child to school (not to mention all the germs he'll be exposed to), but we are so excited for him and this next season in his little life. He continues to love Elmo on the iPad, going on walks and for drives, reading books, and making everyone smile. He is looking forward to his 3rd birthday and welcoming his new baby brother in May! We are so thankful for your continued prayers for our "not so small" #smalldude! #specialneeds #trisomy #mehtacast #tubie #chdkid #shoutloveforsilas
4w
  •   katie_ewing 4w
  •   bzwygart1 Love you all! 4w
  •   jeffman622 @arjake it can be very difficult to think about sending your lil guy off to school when he can't tell you how his day was. Not sure what school he's going to, but H is at a great school out here with the best special ed coordinator and all around group of therapists and educators. And lastly, the kiddos at his school literally compete to be able to spend time reading to him, helping push him around at recess and help make his day better. For me, the tough part is thinking about him NOT being at such a wonderful school and environment. Good luck! Maybe our little guys will be at the same school. 3w
  •   arjake @jeffman622 I hope so! We are so ready for him to make this next step. He NEEDS the socialization. I'm not going to lie, it was super hard walking through the halls and seeing all the typical kids...like take my breath away hard . It will be an adjustment for all of us but we are ready! 3w

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arjake Easter 2016 ! Just had an awesome brunch with friends and now off to church. We managed to rinse and dry Si's Easter shirt and I traded my dress in for leggings 😀! #easter2016 #jesusiscomingsoon #smalldude 1mon
  •   kpea5259 Love Si's shirt!!! 1mon
  •   jenkeesee Happy Easter you guys! Love the shirt, Si! 1mon
  •   bzwygart1 Happy Easter! Love you! 1mon
  •   cljake 4w

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