3h arjake
Mayfair Allison Jacobsen
arjake Little Lovie has a --we'll go with-- a touch of pneumonia...maybe? The X-ray showed alittle something...possibly? Huh? Maybe he aspirated a bit? Oh whatever, just bring on the meds please! Pray they work - FAST. Pray they keep his surgery scheduled at the end of August. It'll be the THIRD time it's been rescheduled! Pray that the F word doesn't come up (fundoplication - other F words may make their way out of my mouth if this word does indeed come up!). Man, we had a really good, uneventful June. It was nice -- no illness and hardly any appointments. Si got to be a kid! AAAHHH, it was good while it lasted! #smalldude (not so small anymore thanks to the blended diet - 18lbs 6oz! I need a new hashtag!) #trisomy #raredisease #sickkiddo 3h
  •   wild_isthewind I just love him! 3h
  •   tracylynnnn73 Lots of prayers for him and mommy and daddy! 3h
  •   madisonlynnnnn7 I had a fun spoliation done when I was 21 and it literally cured my very server acid reflux! 2h
  •   ananasparachute Awww...prayers 2h
  •   abbyw50 @arjake are you followed by pulmonology? They can over ride another clinic trying to cancel a surgery due to recent illness. Also, a good GI doc will fight against a fundo any day. #justsayin Praying for healing and good news to come your way! 2h
  •   ofclongisland We'll keep little Si in our prayers!!!l Love to All of You 1h
  •   allisonkate Oh his hair! Praying for wisdom for your doctors so they can figure out all this baloney! 1h
  •   dtreg77 Awww big prayers get better and omg 18 lbs that's awesome ️. @arjake 1h

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arjake Sittin' on the dock of the bay, wastin' time....catching 🌞 and ZERO . Doc appt. at 3pm for Si, wish us luck. Thanks for your prayers yesterday. #staycation #nofishnofun 1d

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2d arjake
Willow Allison Jacobsen
arjake Little Lovie. #smalldude 2d

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2d arjake
Video Allison Jacobsen
arjake Well, we had a fun time with family this weekend, but now I think he has a little bug. He'd been having those low grade fevers again and not tolerating feeds, so we chalked it up to popping molars. He was good for a couple of days and then last night it went downhill . Poor bub has been a pukey, hot, sweaty mess with low sats and weak cry. We are all hoping it's short lived since Mommy and Daddy are on vacation this next week ! Little Squirt! #smalldude #trisomy #monosomy #tubie #gtube 2d

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arjake Check out all these Cool Kids! Thank you for shouting LOVE for Silas and spreading awareness for rare disease! We ️ you! #shoutloveforsilas #mightysi #smalldude #coolkids #raredisease #trisomy #goshoutlove 3d
  •   goshoutlove Where's the LOVE button?! 3d
  •   ashleydstark I got mine in last week and it's seriously my favorite shirt! I love following your sweet Silas 3d
  •   katie_ewing LOOOOOVE!!!! 2d
  •   bzwygart1 Awesome! 2d

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4d arjake
Valencia Allison Jacobsen

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arjake Just a little night brushing before bed 😬. He likes to do it himself now .... when it gets done (did I just say that !). Thank God he gets two sets! #smalldude #brushem #family 7d

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arjake A 2.5 hour nap would make anyone smile this big ! #smalldude #happycamper 1w

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1w arjake
Normal Allison Jacobsen
arjake Any of my #specialneeds mommas have the Firefly GoTo seat? How do you like it or would you recommend something else? Just thinking about seating and what's best as Si is growing out of his infant car seat and can't sit unassisted. Any advice on transitioning would be great! Thanks! #smalldude #staylittleforever #firefly 1w
  •   laurasneed We have one! Love it. I haven't been brave enough to use it out and about but we use it at home so Emma can sit at kitchen table with us 1w
  •   nat.martin Oh my! Gus needs one of those!!! I wonder if it would help Gus hold his better. I'm going to check into this! @arjake #kinggus 1w
  •   arjake @natmartin14 I'm just nervous about how I'm going to get around without his infant seat. I know I could put him in the stroller but that's not super convenient in the store. However, I'm not sure I would carry this with us all the time if it's too bulky and big. How do you girls take your kiddos out @natmartin14 @laurasneed. Honestly, thinking about all this makes me want to vomit. 1w
  •   nat.martin Since, the baby bump is getting bigger the Ergo is not an option right now. I use his stroller, lay him down in a booth (with a blanket) at restaurants, and my mom's help pushing a cart at the grocery store. I'm going to need something like the Firefly seat for Gus as he is growing. We have a Britax car seat that is rear facing and reclines. @arjake hope that helps. 1w

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2w arjake
Sierra Allison Jacobsen
arjake Earlier in radiology -- SWALLOW STUDY - IN PROGRSS! He PASSED and is SAFE to eat purées and nectar consistencies! What does this mean? It means that he isn't aspirating - food penetrating into his lungs. He will continue to get his nutrition via his gtube, BUT he will be able to ENJOY eating bits here and there! Good Job Si Buddy!! #smalldude #swallowstudy #aspirationrisk #gtube #tubie #radiology #trisomy 2w

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2w arjake
Lo-fi Allison Jacobsen
arjake Okay, LOVED the diet/exercise IGers that you all recommended on my last post. OMG, I'm so out of shape and I know to get results you've got to put the work in -- but dang, I really like food and laziness, and naps, AND EXCUSES! I'm the QUEEN ! You guys, my whole body is outta whack. I have this rash, thingy, crap on my face that the dermatologist has me taking antibiotics for, it's not going away, and I've had it ! I just want clear skin and to be able to fit into the bikinis in the junior section at Target (reality check - you're 30!) ! ANYWAY, I wanted to give essential oils a try (esp. for my face issue) and my girl @lindseyleif of @theprettyoil hooked me up with a #YLEO starter pack. Do you use essential oils and if so what are your favs?! I'm really excited to open these pretties! I'm praying that it will help with the rash and maybe miraculously melt the fat from my inner thighs...#YOLO #YLEO. #essentialoils #mindbodysoul #theprettyoil #fancy 2w
  •   arjake @daydreamer480 Thanks for all the tips. It's a little overwhelming because there are so many to choose from! 2w
  •   lmoulder83 I love how all my favorite IG people are on the same post! 2w
  •   lmoulder83 @mycolonialremodel if you want me to order you some grapefruit let me know! I have a package I've been meaning to send you since FEBRUARY! I misplaced it in the shuffle of our upstairs remodel and found it last week...such a relief! 2w
  •   lmoulder83 @lindseyleif I have grapefruit on my August ER order already! Just in time for swimsuit season right...a little too late for that. Fail! 2w
  •   arjake @natmartin14 @mary_wescott @lmoulder83 @hannahhaning @daydreamer480 @mrslingle @mellymbrown How do you guys use them? I know @lindseyleif mixed a drop or two with coconut oil and rubbed on but I'm freaked to put that on my already oily face! It looks like @brittneystansberry had good luck with the coconut oil though! I was a little excited and just put a drop of the pure oil on my finger and then on my face but WHOA it was strong! Novice move?! Thanks for the tips everyone! 2w
  •   testeinberg @arjake lavender diluted in coconut oil is a dream for sensitive skin, as well. But as others said, frankincense is also a great go-to! Enjoy your oils!! 2w
  •   alexiscain333 My aunt sells these!! 3d

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2w arjake
Normal Allison Jacobsen
arjake Oh, I wish it wasn't true but it is and I need motivation! What are you fav IGers for diet and exercise? Maybe they will motivate/inspire me? 😬 #iveturnedtofluff 2w

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arjake Did you guys see my last post!? This crazy prize pack is up for grabs!! Check it out and dance for Paisley! #Repost from @goshoutlove with @repostapp --- We are sweetening the prize pack! @4moms_hq loved what we were doing and decided to join in on the fun! We have now added a @4moms_hq mamaRoo infant seat to the package!

So our prize package now includes:

@4moms_hq mamaRoo infant seat
@carouseldesigns $200 Store Credit towards a designer crib bedding set
@dreamduffel Small Natural Leopard Print Limited Edition Dream Duffel bag
@princelionheart Your choice of Wheelie Bug
@sollybabywrap Wrap of choice
@enjoy_essentials $20 Shop Credit
@loveandlullabies Your choice of lovie blanket
@theshineproject $15 Shop Credit 
@bocobaby Personalized pair of leggings and choice of matching hat or headband
@joanngracedesigns Personalized Microfiber Beach Towel
@joanngracedesigns SHINE Blanket and Print
@boden_clothing Gift Card
@aliceandivory Dance inspired print

Three winners will receive a: $50 Target Gift card

Don't forget, the only way to be entered into the drawing for the prize package and $50 Target gift cards is by donating using your Paypal email address. You can either send the donation through Paypal or head to goshoutlove.com #linkinprofile.
2w

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2w arjake
Video Allison Jacobsen
arjake Wanna be a baller ! Oh, this isn't a sing off?! Just a little #hiphopbbq tonight after being challenged by @bowenandnellasmama for #idanceforpaisley. Yeah, anything for SWEET P . I pledge $30 if @mrslingle @allisonkate @lilcocobea (and we'll make it a $40 pledge if @oprah shakes her moneymaker for P !). Come on girls...let's make it rain for #raredisease and get yo' twerk on (okay, let's leave that to Miley!). . #goshoutlove #prayingforpaisley #smalldude #pleaseexcusemytotalhotness @goshoutlove 2w
  •   garnerwifey Oh wow! Si is a G! 2w
  •   enjoisunnydaze Aw he's so cute 2w
  •   bowenandnellasmama 😎 2w
  •   katie_ewing Stoooop!!!! This is THE best!!! Is it weird if I watch 30 times?! THANK YOU friend! So appreciate your love support & killer dance moves! Also, can we talk about how you tagged OPRAH?! @oprah you better bust out some of your moves for my girl Paisley!2w
  •   krisestok Yes! I'll donate 40 as well if @oprah jumps on board! 2w
  •   krisestok Heck, I'll donate 400 if @oprah gets on board! Come on @oprah! 2w
  •   goshoutlove @arjake do you mind if we share? 2w
  •   arjake @goshoutlove Sure! Maybe I should've worn makeup and some nicer clothes! 2w

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2w arjake
Video Allison Jacobsen
arjake He's got the cutest little webbed neck you ever did see, and he's just so ticklish . #skirty=squirty #smalldude #randomnicknames #daddysboy 2w
  •   meganburns LOVES it 2w
  •   goshoutlove Love 2w
  •   hoopla_earrings Oooooh he is so STINKIN handsome!!!! 2w
  •   jkzwygart That feels so good, doesn't it Si Buddy?! :) 2w
  •   roxie_3_ Love, built on strenghth. Your voice carries true love. Your husband smile and soft touch 2w
  •   ofclongisland Such a sweet boy!!! Love you lots!!! 2w
  •   annedemps @arjake I love the rando nicknames. My kiddos have tons. I call Charlie Moo all the time and my only boy has the girliest name/nickname out if all which is Grace/Gracey. 2w

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arjake More LOVE ️ being shouted for Si! We just love seeing you all in your T's! Thank you all for your continued support! Si's GI appt on Friday went well and the doctor thought his weight gain was good and we will continue with the blended diet! He has a swallow study on Friday that will determine how safe it is to take things by mouth. He hasn't had anything by mouth since February and so I'm not sure how this is going to go 😬!? I'm not sure we should even feed him by bottle anymore? Straw? Sippy? He LOVES his paci and used to LOVE his bottle, so hoping that he will pick it back up quickly although his main nutrition will probably still come via gtube. We shall see! #smalldude #goshoutlove #raredisease #shoutloveforsilas 2w
  •   ericaleigh_05 Can I still order a shirt? And how much do they cost? 2w
  •   jkzwygart Love the pictures--and all the cool people shouting love for Si! 2w
  •   katie_ewing So sweet! P wears hers all the time! So comfy! 2w

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arjake I can't wait to see what they've got up their sleeve! EEK! P.S. - T's that were ordered for Silas are still being shipped out! We want to see you in them shouting LOVE! Tag me or #goshoutlove so we can see you reppin'! #Repost from @goshoutlove with @repostapp --- Who do you dance for?? Because over here at Go Shout Love we dance for Paisley and we are about to prove it. Will you?! Guess we will find out on Monday!! #idanceforpaisley 3w

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arjake Hiiiii!!! First time sitting up like a big boy in his stroller and NOT in his infant seat! . I'm thinking maybe he might be ready for a different car seat 😬!? What happened to our #smalldude? I had read a comment from another special needs momma on here awhile back and it said something along these lines, "I needed to come to terms with the fact that despite his diagnosis he may NOT die but LIVE for a very long time!" This hit home because I feel the same way. I feel like I'm just waiting on the next thing to happen, but then I look at him and think you are doing so well!! Then, I get really overwhelmed thinking about the future and what it might look like. Will he ever walk, talk, eat by mouth? Will I be changing adult diapers, etc.? What new diagnosis will we face? SO.MANY.THINGS. He might be okay, but he's never going to be OKAY. Ugh, what a depressing post, sorry! We are really happy today believe it or not! It's the freaking weekend!! WhooHoo!! #smalldude #specialneedsmomma #fridayintroductions #trisomy #monosomy #blendeddiet #tubie #chd #clubfeet #gtube 3w
  •   arjake @eschwanke84 Yep! The doc was surprised by his weight gain! We could totally do Oreos AND I just bought the Reece's peanut butter cup ones! 😬 3w
  •   arjake @t21nanaandpapa thank you! 3w
  •   arjake @lynds_bolis @monkcharm1 @christyhomemom @tracylynnnn73 @mandakayk @dtreg77 Thank you girls! What an awesome community of support we have! 3w
  •   arjake @olive.r_jaxin thank you for sharing! I hope someday Si has a sibling like you who loves him unconditionally! 3w
  •   arjake @dianawrote thank you! Love your feed too! 3w
  •   arjake @katie_ewing Love you friend! 3w
  •   arjake @john146isjesus So glad you posted! It was the comment YOU made on @bowenandnellasmama feed that really hit home! You said it so perfectly! I just feel like I am waiting for next thing to happen and for him to not make it. It's been that way since we found out at 20 weeks in utero. I seriously need to get over that but the feeling continues to linger even though I'm realizing he could be with us a LONG TIME! Which is GREAT but the fears of the future start to creep in and start to overwhelm me. Oh my, what a crazy train (meds do help!! )! 3w
  •   bowenandnellasmama @arjake yes to everything in this post! I feel the same way like we are just waiting! It's so hard bc it's so easy to live a life of fear! The days are so hard sometimes thinking about what the future will bring. A lot of times I have to tell myself, but she's here now, and happy! And that's what gets me through the day. Seriously, one day at a time. Lots of love (and coffee) to you!! 3w

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arjake Mom, don't let him get too close to Sofie! #englishbulldog #smalldude #nosharingsofie #imwatchingyou 3w
  •   melaniekuenning This melts my heart!!! So cute!!! 3w
  •   dtreg77 Ha ha ha this is awesome I always love reading your heading your a trip @arjake 3w
  •   olvera222 So cute 3w
  •   jkzwygart Ha! I think Si wants to be the only one to chew on Sofie! 3w
  •   bergsten4 He looks so grown up. 3w
  •   kbkuhl Sitting so well!! :) 3w
  •   mrslingle Bahahaha...both their faces are funny! 3w
  •   karilova He is so sweet! You story touched my heart hope he is getting bigger and stronger everyday :) he is adorable ️love and light 3w

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3w arjake
Valencia Allison Jacobsen
arjake Look at my little boy! He's quite the charmer! Thanks for all the advice on the sleeping situation. He will probably stay in our room until we get him off continuous night feeds. It's just easier to roll out of bed to shut the pump off/give him his paci, etc. I HATE snoring though and am quite the if I don't get my sleep (as you could probably see by some of my friends comments!). We have a fan going, I do have a rain machine, and I have a fan app on my phone for travel . I'm quite the weirdo. Anyway, Si has been doing SO WELL lately! We have a GI appt. tomorrow and I can't wait to see what she thinks about his changes. EEEK! In other news...Ryan Gosling is going to be a Daddy. LOL! #smalldude #mancrush #iwonderifryangoslingsnores #iloveevamendes 3w
  •   ctbellalily Love that smile! 3w
  •   dtreg77 Awe so great to hear !! Little miracle can't wait to hear what's next on his list to show the doctors that he can do @arjake 3w
  •   lindseyleif Lets meet for margs and make up more amazing hashtags 3w
  •   jkzwygart Grandpa and Grandma love you little boy! :) 3w
  •   alisonroad28 @arjake white noise app in the iPhone girl. Put in between you and the noise/snoring. My baby boy snores too (allergies, adenoids, low tone in mouth). I put my iPhone with pink noise on in between us and sleep much better. 3w
  •   mcarp19 Foam ear plugs! I wore them before my son and was hesitant after he was born because I was afraid I wouldn't hear him. I hear him just fine and most times before my husband even wakes up. (Convenient). I take ambien too. A couple nights a week to offset the bad nights of sleep. Good luck! 3w
  •   ceciolivareslm Yes!!! You can do it!!! 3w
  •   dabba_dooya So precious 4d

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